Pituitary tumor, endocrine dysfunction, tumor issues?
Doctor, I am 25 years old and was diagnosed with polycystic ovary syndrome (PCOS).
Blood tests showed a prolactin level of over 90, and an MRI revealed a 0.5 mm pituitary tumor.
Now at 28, the tumor size has not changed.
Initially, my prolactin level was over 90, but after taking medication for a year, it has normalized.
I have consulted several hospitals, including Kaohsiung Medical University, Tzu Chi Medical Center, National Taiwan University Hospital, and Linkou Chang Gung Memorial Hospital, and all the doctors have said that surgery is not necessary and that I should just be monitored.
However, my endocrine and immune systems are completely abnormal.
I have not had my menstrual cycle for a long time, and I frequently experience unexplained infections, including urinary and skin issues (I have blood-filled pustules on my body and face that do not heal).
I have gained over 20 kg, and recently I have started to grow excessive hair.
My memory is also declining, along with a host of other problems, including headaches and dizziness.
Currently, the neurosurgery department has referred me to obstetrics and gynecology, stating that my blood tests are normal and they cannot address my issues, suggesting I see that specialty for any discomfort.
The obstetrics and gynecology department has referred me back to neurosurgery.
I have been on menstrual regulation medications for many years, and each doctor says to take them for six months, but they have not worked.
Recently, I have been told to just give up and not to worry about it.
I have also tried traditional Chinese medicine.
Can you give me some advice?
En, 20~29 year old female. Ask Date: 2017/10/01
Dr. Chen Sirong reply Oncology
Patient: En, 28 years old, female
1.
Unsure if symptoms are side effects of medication.
2.
Consider consulting an endocrinologist.
Wishing you peace and joy,
Taoyuan Hospital,
Chen Si-Rong
Reply Date: 2017/10/01
More Info
Understanding pituitary tumors, particularly in the context of hormonal imbalances and associated symptoms, is crucial for managing the health of individuals affected by these conditions. In your case, the presence of a 0.5 mm pituitary tumor, along with elevated prolactin levels, suggests a prolactinoma, which is a benign tumor of the pituitary gland that secretes prolactin. Elevated prolactin can lead to various symptoms, including menstrual irregularities, infertility, and galactorrhea (milk production not associated with childbirth).
The fact that your prolactin levels have normalized after a year of medication is a positive sign, indicating that the treatment was effective in managing the hormonal imbalance. However, the persistence of other symptoms, such as irregular menstrual cycles, weight gain, skin infections, and cognitive issues, suggests that there may be additional underlying factors at play.
It's important to note that pituitary tumors can sometimes lead to a condition known as "empty sella syndrome," where the sella turcica (the bony cavity housing the pituitary gland) is filled with cerebrospinal fluid, potentially affecting hormonal regulation. Additionally, the hormonal imbalances you are experiencing could be related to other endocrine disorders, such as polycystic ovary syndrome (PCOS), which you mentioned having been diagnosed with. PCOS can lead to insulin resistance, weight gain, and irregular menstrual cycles, compounding the issues you are facing.
Given the complexity of your symptoms and the interplay between the pituitary tumor and potential PCOS, it is essential to adopt a comprehensive approach to your healthcare. Here are some recommendations:
1. Endocrinology Consultation: Since your symptoms are multifaceted, a thorough evaluation by an endocrinologist who specializes in pituitary disorders and reproductive endocrinology could provide valuable insights. They can assess your hormonal levels comprehensively and determine if there are other hormonal imbalances contributing to your symptoms.
2. Regular Monitoring: Continue to have regular follow-ups with your healthcare providers. Even though the tumor size has remained stable, monitoring is essential to ensure that there are no changes in your condition. Regular blood tests to check hormone levels, including prolactin, estrogen, testosterone, and insulin, can help guide treatment decisions.
3. Lifestyle Modifications: Implementing lifestyle changes, such as a balanced diet and regular exercise, can help manage weight and improve insulin sensitivity, particularly if you have PCOS. Weight management can also positively influence menstrual regularity and overall hormonal balance.
4. Mental Health Support: The cognitive issues and emotional distress you are experiencing may benefit from psychological support. Consider speaking with a mental health professional who can help you cope with the challenges of living with a chronic health condition.
5. Consider Alternative Therapies: If conventional treatments have not provided relief, exploring complementary therapies such as acupuncture or nutritional counseling may offer additional support. However, always discuss these options with your healthcare provider to ensure they align with your overall treatment plan.
6. Patient Advocacy: If you feel that your concerns are not being adequately addressed, consider seeking a second opinion or advocating for yourself within the healthcare system. It is essential to have a healthcare team that listens to your concerns and works collaboratively with you to find solutions.
In conclusion, managing a pituitary tumor and its associated hormonal imbalances requires a multidisciplinary approach. By working closely with healthcare providers, making lifestyle adjustments, and seeking support for your mental and emotional well-being, you can take proactive steps toward improving your health and quality of life. Remember, you are not alone in this journey, and there are resources available to help you navigate these challenges.
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