Rare neck tumors
Hello Doctor: A friend discovered a mass in the neck and upon examination, it was found to have spread to the thoracic cavity, including the heart and lungs.
A biopsy revealed it to be "sclerosing pneumocytoma," which is a rare benign tumor.
The oncologist and radiologist stated that since it is a benign tumor, chemotherapy and radiation therapy are not options, and surgical removal is the best course of action.
However, the tumor's location is too close to major blood vessels and other vital organs, making the surgeon hesitant to proceed with surgery.
Over the course of two months of consultations, the situation has worsened, and the stomach has also started to be affected.
Recent examinations show that the tumor has grown to twice its size since the initial assessment, and if no surgeon is willing to operate, it may have to be left untreated.
I would like to ask how this condition can be treated.
Are there any recommended otolaryngologists? Thank you for your response, Doctor.
YuriChen, 30~39 year old female. Ask Date: 2018/08/29
Dr. Li Jiaxuan reply Otolaryngology
It is advisable to seek treatment at a medical center and consult with an otolaryngologist as well as a cardiothoracic surgeon for a combined surgical approach.
In Taipei, National Taiwan University Hospital, Veterans General Hospital, or Tri-Service General Hospital are highly recommended.
Wishing you good health.
Reply Date: 2018/08/29
More Info
When dealing with rare neck tumors such as sclerosing pneumocytoma, the treatment options can be quite challenging, especially when the tumor has spread to critical areas like the chest, heart, and lungs. Sclerosing pneumocytoma is a rare benign tumor that primarily occurs in the lung but can also manifest in other areas, including the neck. Given its benign nature, chemotherapy and radiation therapy are typically not effective treatment options. The standard recommendation is surgical excision; however, this becomes complicated when the tumor is located near vital structures such as major blood vessels and organs.
The primary concern in such cases is the risk associated with surgery. Surgeons must weigh the potential benefits of removing the tumor against the risks of damaging surrounding tissues and organs. This is particularly critical when the tumor is large and has invaded or is in close proximity to important anatomical structures. The fact that the tumor has doubled in size over two months and is now affecting the stomach indicates a need for urgent intervention, as the tumor's growth could lead to further complications.
In cases like this, a multidisciplinary approach is essential. It is advisable to consult with a team of specialists, including an otolaryngologist (ENT specialist), a thoracic surgeon, and possibly an oncologist. These professionals can collaboratively assess the situation and determine the best course of action. They may consider advanced imaging techniques to better understand the tumor's relationship with surrounding structures and to plan the safest surgical approach.
If surgery is deemed necessary, it may be performed using techniques that minimize risks, such as robotic-assisted surgery or minimally invasive approaches, depending on the tumor's location and size. In some cases, preoperative embolization may be considered to reduce blood flow to the tumor, thereby minimizing bleeding during surgery.
If surgical removal is not feasible due to the tumor's location, other options may include close monitoring with regular imaging studies to track the tumor's growth and any changes in symptoms. Palliative care may also be an option to manage symptoms and improve quality of life.
As for finding a qualified ENT surgeon, it is recommended to seek treatment at a comprehensive medical center or academic hospital where specialists have experience dealing with complex cases involving rare tumors. Institutions such as National Taiwan University Hospital or Taipei Veterans General Hospital are known for their expertise in head and neck surgery and oncology.
In summary, the treatment of rare neck tumors like sclerosing pneumocytoma requires careful consideration of the risks and benefits of surgery, a multidisciplinary approach, and potentially advanced surgical techniques. It is crucial to act promptly, given the tumor's rapid growth and the emerging symptoms. Seeking care from a specialized medical center will provide the best chance for effective management of this challenging condition.
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