Managing Interstitial Cystitis: A Young Man's Struggle with Symptoms - Urology

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Interstital cystitis flare-up?


Hello, Dr.
Du.
I am a male diagnosed with interstitial cystitis, and I am still under 25 years old.
This unusual condition has been with me for a year now.
I have been undergoing hyaluronic acid treatment, which has shown some improvement.
However, the problem is that whenever I masturbate and ejaculate, I feel uncomfortable afterward, as if I am back to square one, making me feel like all the previous treatments were in vain.
Initially, I thought about refraining from masturbation, but even without it, I experience nocturnal emissions or discomfort just from browsing adult websites, even if I do not ejaculate and only experience an erection with some secretion of pre-ejaculatory fluid.
Is this discomfort due to stimulation regardless of the situation? Dr.
Du, what should I do about this? Does this mean I will never be able to engage in sexual activity for the rest of my life?

Yao, 20~29 year old female. Ask Date: 2018/11/04

Dr. Du Shixi reply Urology


Hello: It is recommended that the medical center conduct further examinations, as there may be other issues besides interstitial cystitis.
Wishing you good health.

Reply Date: 2018/11/04

More Info


Interstitial cystitis (IC), also known as painful bladder syndrome, is a chronic condition that can significantly impact a person's quality of life. It is characterized by bladder pressure, bladder pain, and sometimes pelvic pain, which can vary in intensity and can be exacerbated by certain activities, including sexual activity. Your experience of discomfort following ejaculation is not uncommon among those with IC, and it can be quite distressing.

Firstly, it’s essential to understand that IC is a complex condition with no single known cause. It can be influenced by various factors, including bladder inflammation, nerve dysfunction, and even psychological stress. The symptoms can be triggered or worsened by certain foods, beverages, and activities, including sexual activity.
In your case, it seems that the act of ejaculation, whether through masturbation or sexual intercourse, leads to a resurgence of discomfort. This could be due to several reasons:
1. Nerve Sensitivity: Individuals with IC often have heightened sensitivity in their pelvic region. The act of ejaculation may stimulate nerves that are already sensitive due to the condition, leading to pain or discomfort.

2. Bladder Irritation: Sexual activity can cause temporary irritation of the bladder, which may exacerbate your symptoms. This irritation can occur even if ejaculation does not happen.

3. Psychological Factors: Anxiety and stress about your condition can also play a role in how your body responds to sexual activity. The fear of pain or discomfort may lead to a cycle of anxiety that can worsen your symptoms.

Given that you have already undergone hyaluronic acid treatment with some improvement, it’s clear that you are taking proactive steps to manage your condition. However, the recurrence of symptoms after sexual activity is understandably concerning.

Here are some strategies that may help you manage your symptoms:
1. Communication with Your Partner: If you are in a relationship, discussing your condition with your partner can help both of you understand the limitations and find ways to be intimate without exacerbating your symptoms.

2. Modify Sexual Activity: You might consider experimenting with different forms of sexual activity that do not lead to ejaculation or that allow for more gentle stimulation. This could help you gauge what is comfortable for you.

3. Pelvic Floor Therapy: Consulting with a pelvic floor physical therapist can be beneficial. They can provide exercises and techniques to help relax the pelvic muscles, which may reduce discomfort during and after sexual activity.

4. Medication: Discuss with your healthcare provider the possibility of medications that can help manage pain and discomfort associated with IC. There are various options available, including oral medications and bladder instillations.

5. Diet and Lifestyle Modifications: Keeping a symptom diary can help identify any food or drink triggers that worsen your symptoms. Common irritants include caffeine, alcohol, spicy foods, and artificial sweeteners.

6. Stress Management: Since stress can exacerbate IC symptoms, incorporating stress-reduction techniques such as mindfulness, yoga, or meditation may be beneficial.

7. Consult a Specialist: If you haven’t already, consider seeing a urologist who specializes in IC. They can provide tailored treatment options and may suggest additional therapies that could help.

It’s important to remember that while IC can be a challenging condition, it does not mean that you must give up on sexual activity altogether. Many individuals with IC find ways to maintain a fulfilling sexual life with appropriate management strategies. It may take time and experimentation to find what works best for you, but with the right support and treatment, it is possible to manage your symptoms effectively. Always consult with your healthcare provider before making any significant changes to your treatment plan or lifestyle.

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