Lingual and Oral Mucosal Issues: Seeking Answers - Otolaryngology

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Oral mucosal tongue issues?


Hello, Doctor.
I have been experiencing discomfort in my oral cavity for over four months.
During this time, I have seen several doctors, including dentists, oral specialists, and ENT specialists.
The discomfort is primarily on the left side of my tongue, particularly near the base and the corresponding area below.
When I am not eating, I experience abnormal taste sensations, often feeling a persistent saltiness, along with a slight tingling sensation.
The left side of my oral mucosa also feels mildly burning, painful, and swollen.
All these symptoms are limited to the left side, but none of the doctors I consulted found any obvious damage or issues.
Initially, I thought it might be due to my teeth irritating the oral mucosa, but since I have had my molars extracted, there should not be any dental issues.
However, I still feel discomfort in the gum area.
An oral medicine specialist once suggested that my symptoms might be related to temporomandibular joint (TMJ) issues combined with oral sensory abnormalities, indicating that the discomfort could be due to miscommunication from my brain.
At that time, I did not mention the issues with my tongue.
Recently, the discomfort in my tongue has become more pronounced; as long as I am not eating or drinking, I continuously experience strange tastes and tingling sensations.
Today, I visited an ENT specialist again, and the doctor casually asked what my problem was, seemingly thinking I might be mentally ill.
He briefly examined my tongue and said there was no issue, advising me to ignore the abnormal sensations.
However, I explained that this has been ongoing for several months, and the doctor dismissed my concerns, saying it was not a problem.
I felt very upset and cried as soon as I left the office.
I am not trying to waste resources or suggest that I have a mental illness; this ongoing oral discomfort has been very distressing.
Because I have not been able to find the cause or receive effective treatment, I have continued to seek help from doctors, yet I have not encountered anyone who can assist me.
I am also worried that this could be an early symptom of a serious condition that has not been detected.
I am genuinely scared, and the symptoms have made me very unhappy.
I kindly ask for your help in analyzing which specialty I should consult or what examinations I should undergo to confirm that there are no serious issues with my gums or tongue.
Can you recommend any doctors in Taipei who specialize in abnormal sensations in the oral cavity and tongue? Please help me; I truly appreciate it.

Miss Lin, 40~49 year old female. Ask Date: 2019/05/24

Dr. Zheng Jueyi reply Otolaryngology


Hello, if you have already been examined by an otolaryngologist and a dentist, it is likely that any oral lesions can be initially ruled out.
If there are any abnormalities, the physician will often recommend a biopsy for confirmation.
If there are no obvious structural abnormalities, you may consult a neurologist to evaluate whether the unusual sensations in the oral cavity or tongue are due to neurological dysfunction.
Wishing you safety and good health.
Sincerely, Dr.
Jue-Yi Cheng, Director of the Department of Otolaryngology, Taoyuan Hospital, Ministry of Health and Welfare.

Reply Date: 2019/05/24

More Info


I'm sorry to hear about the discomfort and distress you've been experiencing with your oral health. It sounds like you've been through a lot in trying to find answers and relief for your symptoms. Let's break down your situation and explore potential avenues for further evaluation and treatment.

From your description, it appears that you are experiencing a combination of symptoms, including abnormal taste sensations, a burning sensation in the oral mucosa, and a tingling feeling on the left side of your tongue and mouth. You mentioned that these symptoms have persisted for over four months, and despite consulting various specialists, no clear diagnosis has been established.


Possible Causes of Your Symptoms
1. Neuropathic Pain: The symptoms you describe, particularly the tingling and abnormal taste sensations, could be indicative of neuropathic pain. This type of pain occurs when there is damage or dysfunction in the nerves that transmit sensory information. It can sometimes occur without any visible lesions or abnormalities in the oral cavity.

2. Temporomandibular Joint (TMJ) Disorders: Given that a previous doctor suggested a connection between your symptoms and TMJ issues, it may be worthwhile to explore this further. TMJ disorders can lead to referred pain in the mouth and tongue, as well as sensations of discomfort or altered sensations due to the close proximity of the joint to the oral cavity.

3. Oral Mucosal Conditions: Conditions such as oral lichen planus or burning mouth syndrome can cause similar symptoms, including burning sensations and altered taste. These conditions may not always present with visible lesions, making them challenging to diagnose.

4. Psychogenic Factors: Chronic pain and discomfort can lead to significant psychological stress, which may exacerbate physical symptoms. It's essential to consider the interplay between mental health and physical health, especially if you feel that your concerns are not being taken seriously by healthcare providers.


Recommendations for Further Evaluation
1. Oral and Maxillofacial Specialist: Since you've already seen various specialists, I recommend seeking out an oral and maxillofacial surgeon or a specialist in oral medicine. These professionals have extensive training in diagnosing and treating complex oral and facial conditions and may provide a fresh perspective on your symptoms.

2. Neurologist Consultation: Given the tingling and abnormal sensations, a consultation with a neurologist may be beneficial. They can evaluate for any underlying neurological issues that could be contributing to your symptoms.

3. Pain Management Specialist: If neuropathic pain is suspected, a pain management specialist may offer treatments such as medications specifically targeting nerve pain, which could provide relief.

4. Psychological Support: If you are feeling overwhelmed or anxious about your symptoms, consider speaking with a mental health professional. They can help you cope with the emotional aspects of chronic discomfort and provide strategies for managing stress.


Diagnostic Tests
- MRI or CT Scan: If not already done, imaging studies may help rule out any structural issues in the jaw or surrounding areas.

- Blood Tests: Comprehensive blood tests can help identify any systemic issues, including vitamin deficiencies or autoimmune conditions.

- Biopsy: If there are any suspicious lesions or areas of concern in the oral cavity, a biopsy may be warranted to rule out any pathological conditions.


Finding the Right Specialist
In terms of finding a specialist in Taipei, I recommend looking for a university-affiliated dental school or a hospital with a reputable oral medicine department. They often have specialists who are well-versed in complex oral conditions and can provide a thorough evaluation.


Conclusion
It's understandable to feel frustrated and anxious when dealing with persistent symptoms without clear answers. Continue advocating for your health, and don't hesitate to seek second opinions or explore new avenues for diagnosis and treatment. Your well-being is paramount, and finding the right healthcare provider who listens to your concerns is crucial. I hope you find relief soon and can regain your quality of life.

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