Please clarify what the issue is?
Hello, Dr.
Jiang.
I have some unusual symptoms.
In January, I had my second molar extracted, and since then, I have had an ulcer that has not healed for a month.
I have been very worried that it might be something serious.
I keep checking my gums and have seen many doctors, including having a biopsy done abroad, but no abnormalities were found.
Currently, my symptoms are localized to the left side of my mouth, where I feel persistent swelling in the soft palate, a slight burning pain in the mucosa, and my salivary glands appear more prominent.
The gums around the ulcer feel uncomfortable and slightly swollen.
The back and middle sides of my tongue have an unusual salty taste, even when I am not eating or drinking.
Sometimes, I also sense a metallic taste, like blood, on the left side of my mouth, but dental examinations have shown no significant issues.
A month ago, I also had the last tooth, which I suspected was rubbing against my cheek, extracted, but the symptoms did not disappear.
Since these symptoms have persisted for five months, I have visited many hospitals without finding the true cause.
I am feeling very frustrated and stressed daily due to these symptoms.
I keep checking my gums and worry that the symptoms began after the extraction.
I have undergone a CT scan of my head and neck with contrast, which revealed a lymph node in my neck that the doctor said is within acceptable limits.
Could this lymph node be causing my oral symptoms? Recently, I have also felt sharp pain in my neck and discovered a bone tumor in my frontal sinus measuring about 1.6 cm.
The doctor suspects it may be pressing on a nerve, but this tumor was discovered three years ago.
I was advised to consult my previous doctor to see if the tumor has grown, but that doctor dismissed it without reviewing the imaging, stating it was unlikely to have changed in size.
They believe it is improbable that this tumor is causing my oral symptoms since the issue has been present for three years.
I was told not to worry about my tongue, as it can still move.
Hearing this was disheartening, especially since the doctor mentioned that removing the tumor is risky and would only clarify if it is related to my oral symptoms.
However, due to the high risk, I am hesitant to proceed.
I have also undergone an MRI of my head in the neurology department, which did not reveal any significant structural abnormalities.
Some neurological tests are still pending.
I would like to ask if my recent irregular menstrual cycles, as I just gave birth seven months ago, could be related to autonomic or endocrine dysfunction that might cause these abnormal oral sensations.
Additionally, can the CT scan of the head and neck rule out any issues in the floor of the mouth or gums? Is there any further testing I should consider? I am unsure what my condition is and whether I will ever recover.
I am willing to explore any possibilities to find the cause and hope for recovery.
Also, could my symptoms be related to stress causing abnormal nerve sensations? A dentist once suggested I might have a temporomandibular joint issue combined with oral sensations, as if there is a miscommunication in the brain.
What other specialists should I see, and what further tests might reveal other underlying issues? Will I ever recover? Currently, my doctor has prescribed me medication (Zanax and Rifaximin) to take one of each before bed.
I feel that the medication has sedative properties, which slightly alleviates my symptoms, but they become very pronounced and uncomfortable during the day.
I apologize for the lengthy message, and I appreciate your patience in reading it.
Thank you for your help in analyzing my situation.
Wishing you peace and health.
Miss Lin, 40~49 year old female. Ask Date: 2019/06/10
Dr. Jiang Junyi reply Neurology
Hello: Because your age group is more susceptible to certain rheumatic and autoimmune diseases, I wonder if you have undergone any examinations related to this.
Wishing you good health and peace.
Dr.
Jiang, Department of Internal Medicine, Taoyuan Hospital, cares about you.
Reply Date: 2019/06/10
More Info
Hello, thank you for sharing your detailed symptoms and medical history. It sounds like you are experiencing a complex set of oral and neurological symptoms that have been quite distressing for you. Based on the information you've provided, let's break down your concerns and explore potential avenues for further investigation and management.
Firstly, the symptoms you describe—persistent oral discomfort, a burning sensation in the mucosa, abnormal taste, and swelling—could indeed be multifactorial. Given that you've already undergone extensive imaging studies (CT and MRI) without revealing significant abnormalities, it may be worth considering other underlying conditions that could contribute to your symptoms.
1. Neurological Factors: You mentioned that some doctors have suggested a possible neurological component to your symptoms. Conditions such as trigeminal neuralgia or other neuropathies could potentially cause pain and abnormal sensations in the oral cavity. Trigeminal neuralgia is characterized by episodes of severe, shooting pain in areas innervated by the trigeminal nerve, which includes parts of the mouth and face. If your symptoms align with this, a consultation with a neurologist specializing in pain management may be beneficial.
2. Autoimmune Conditions: The burning sensation and oral ulcers could also suggest an autoimmune process, such as Sjögren's syndrome, which can lead to dry mouth and oral discomfort. This condition is often associated with other systemic symptoms, including fatigue and joint pain. A referral to a rheumatologist for further evaluation of autoimmune markers might be warranted.
3. Hormonal and Stress Factors: You mentioned experiencing irregular menstrual cycles and having recently given birth, which can significantly impact hormonal balance and stress levels. Hormonal fluctuations can affect oral health, potentially leading to conditions like oral lichen planus or exacerbating existing issues. Stress can also manifest physically, contributing to muscle tension and discomfort in the jaw and oral cavity. Techniques such as mindfulness, stress management, and possibly therapy could be beneficial in addressing these aspects.
4. Oral Examination and Biopsy: Since you have had a persistent ulcer and ongoing discomfort, it may be worthwhile to revisit an oral surgeon or an oral medicine specialist for a thorough examination. If there are areas of concern, a biopsy may be necessary to rule out conditions such as oral cancer or other lesions that could explain your symptoms.
5. Lymph Node and Bone Lesions: The lymph node you mentioned and the bone lesion in your frontal sinus could potentially be related to your symptoms. While the doctors have indicated that these findings are within acceptable limits, it may be prudent to have a follow-up with an ENT specialist to monitor these areas, especially if you notice any changes.
6. Further Imaging: If your symptoms persist, additional imaging focused on the oral cavity, such as a dedicated MRI of the jaw or a panoramic X-ray, might help identify any subtle changes that previous scans may have missed.
In conclusion, your symptoms are complex and may involve a combination of neurological, autoimmune, hormonal, and possibly psychological factors. It is essential to continue advocating for your health by seeking further evaluations from specialists in neurology, rheumatology, and oral medicine. While it can be frustrating to navigate through these symptoms without a clear diagnosis, many patients do find relief and improvement with the right combination of treatments and interventions. Please continue to communicate openly with your healthcare providers about your symptoms and concerns, and do not hesitate to seek second opinions if you feel it is necessary. I wish you the best in your journey toward understanding and managing your symptoms.
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