Neurological Symptoms: Seeking Answers for Lingering Issues - Neurology

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Hello, thank you for reaching out with your concerns. It sounds like you are experiencing a complex array of neurological symptoms that have been troubling you for quite some time. I understand how distressing it can be to deal with ongoing discomfort and uncertainty regarding your health.

From what you've described, it seems that you have undergone various tests, including MRI scans and neurological assessments, which have not revealed any significant abnormalities. However, you mentioned that a doctor noted some issues with the function of the left side of your brain, particularly related to cranial nerves that control taste and sensation in your tongue. This could indeed explain the unusual sensations and burning pain in your oral mucosa that you are experiencing.

The symptoms you are describing, such as altered taste, tingling sensations, and oral discomfort, can be linked to several potential causes. One possibility is that these symptoms are related to the functioning of the cranial nerves, particularly the glossopharyngeal (CN IX), vagus (CN X), and hypoglossal (CN XII) nerves. Dysfunction in these nerves can lead to altered sensations in the mouth and throat, which may manifest as a burning sensation or abnormal taste perception.

You also mentioned the possibility of temporomandibular joint (TMJ) issues or trigeminal nerve problems. While your doctor indicated that your MRI did not suggest these conditions, it is worth noting that TMJ disorders can indeed cause referred pain and discomfort in the oral cavity. The trigeminal nerve, which is responsible for sensation in the face, can also be a source of pain and discomfort if it is irritated or compressed.

Regarding your concerns about the need for further imaging, such as another MRI with contrast, it is not uncommon for doctors to request additional imaging if they believe that a more detailed view of the brain or surrounding structures is necessary. This could be to rule out any subtle abnormalities that may not have been visible in previous scans or to assess changes over time. The fact that your endocrinologist is interested in your pituitary gland and hormonal levels suggests they are considering the possibility of an endocrine issue that could be contributing to your symptoms.

As for your anxiety about the potential for serious underlying conditions, it is understandable to feel apprehensive, especially when dealing with unexplained symptoms. However, it is important to remember that many neurological symptoms can be caused by less serious issues, such as nerve irritation or inflammation, which may improve with time and appropriate treatment.

In terms of management, continuing to follow your doctor's recommendations regarding medication and dietary supplements, such as B vitamins, is essential. These can support nerve health and may help alleviate some of your symptoms. Additionally, consider discussing your symptoms in detail with your healthcare providers, including any changes you notice after starting new medications or treatments.

If you feel that your current healthcare team is not addressing your concerns adequately, it may be beneficial to seek a second opinion from a neurologist or a specialist in oral medicine. They may provide further insights into your symptoms and suggest additional diagnostic tests or treatment options.

In summary, while it is challenging to pinpoint the exact cause of your symptoms without further evaluation, it is crucial to remain proactive in your healthcare journey. Keep communicating openly with your doctors, and do not hesitate to seek additional opinions if you feel it is necessary. Your well-being is paramount, and there are pathways to finding relief and understanding your condition better. I wish you the best in your upcoming evaluations and hope for a resolution to your symptoms soon.