Comprehensive questions about schizophrenia?
Dear Dr.
Wu,
Thank you for taking the time to read this.
I will first provide a brief overview of my medical history, followed by a list of questions regarding my condition.
In March of the year before last, while living alone, I experienced my first episode of auditory hallucinations.
The voices were giving me commands, asking me to do things like isolate myself from others, keep the lights and faucets on 24 hours a day, and other trivial yet absurd tasks.
This lasted for about a month.
As a religious person, I believed these commands were messages from the Buddha (which I now find quite ridiculous).
After a month, the voices stopped, and I returned to my normal life, not thinking much about them afterward.
The second episode of auditory hallucinations occurred from late last year to early this year, also lasting about a month.
Again, the voices were perceived as commands from the Buddha.
I followed these commands with some skepticism until my sister found me and asked, "If this is the Buddha, would He instruct you to do these things?" This question jolted me awake, and I began to examine my actions through Buddhist teachings, realizing I had strayed from the right path, which prompted me to seek medical help.
The doctor diagnosed me with schizophrenia.
From January of last year until now, I have seen three doctors.
I stopped seeing the first doctor because the medication was too strong and caused severe side effects.
I switched from the second doctor because my family felt it was ineffective.
The third doctor has been my current physician since August of last year.
Between May and July of last year, I did not experience auditory hallucinations, but I had strange thoughts.
I began to believe that everything I experienced through my five senses—sights, sounds, smells, tactile sensations, information on my computer, teachings from various monks, and even people on the street—was somehow directed at me, suggesting that they were conveying messages related to the previous commands from the Buddha.
This caused me significant distress and fear, leading me to distrust everyone while maintaining a facade of peace with my family.
I felt as though I was in danger, and I seriously considered that rather than being silenced, I might as well end my life (not in a self-destructive sense).
I recalled instances in Buddhism where an Arhat chose to end their life to liberate their consciousness from a deteriorating body.
I continuously assessed my spiritual practice, reaffirming that I was just an ordinary person (I did make gestures of self-harm but ultimately refrained).
I also researched the consequences of suicide (actual suffering and karmic repercussions) and concluded, through rational evaluation, that I should never take my life in this lifetime or any future lifetimes, as it would be too tragic and not worth it.
I realized I cherished life even more as an ordinary person.
In August of last year, I began seeing the third doctor.
Initially, I was still skeptical, believing there were indeed commands from the Buddha (or that I was cursed by someone), so I did not take my medication regularly.
In October, after two months of self-observation and continuous reflection, my previously firm beliefs began to loosen (that everything was about me and that everyone was watching me, wanting to take my life).
I started to take my medication regularly and now completely view my past experiences as absurd, hoping for a swift recovery.
During my last follow-up, the doctor noted that I seemed more stable and provided me with a continuous prescription.
However, I mentioned to the doctor that I was experiencing recurring anxiety, leading the doctor to revert to monthly follow-ups and increase my medication dosage.
My anxiety is primarily concentrated in my neck and upper back, often appearing without reason.
It manifests as a tight, flowing sensation that distracts me, making it difficult to focus (I have to consciously and carefully adjust my attention).
It resembles the feeling of embarrassment or humiliation that most people experience when they are publicly shamed.
This anxiety often recurs throughout the day (I haven't tracked how many times), affecting my ability to continue tasks or read.
In moments of struggle, I frequently abandon what I'm doing and lie down, coexisting with that feeling (which feels like a form of avoidance).
Currently, my greatest distress comes from this inexplicable anxiety.
I no longer experience auditory hallucinations or feel that everything is about me, but when I think about real-life issues, such as my future path, I do feel anxious.
However, I clearly recognize that this anxiety is psychologically induced (there is a distinction between the two).
I am currently taking Ativan 0.5 mg/tab (twice a day) and Abilify 10 mg/tab (once a day, 1.5 tablets each time).
Here are my questions:
1.
The doctor mentioned that schizophrenia has a broad spectrum, and I fall into a milder category.
What type of schizophrenia do I have?
2.
If we were to rate schizophrenia from mild (1) to severe (10), what would my score be?
3.
How can one assess the negative symptom of poverty of speech? (Currently, I cannot determine if it is due to self-isolation from society for too long, leading to a lack of common topics with others, or if it is genuinely poverty of speech, as I feel my ability to express myself in writing and speech is not as fluent as before.)
4.
I often plan many things to do, but when the aforementioned anxiety arises, it feels as if there is a string pulling me back from taking action, making it difficult to motivate myself.
I often end up lying down for the entire day.
How can I overcome this cycle of anxiety and lethargy?
5.
Is my anxiety a form of negative symptom, and will it disappear with long-term medication treatment, returning me to a state without anxiety?
6.
Is it possible for negative symptoms to completely disappear?
7.
I plan to ordain in the future.
If I consistently cooperate with my doctor regarding medication and find ways to overcome negative symptoms, and if I remain stable for two years without any positive symptoms, will the doctor allow me to discontinue medication? Would this be considered a medical recovery? Additionally, are negative symptoms also a criterion for recovery?
8.
Is the current healthcare system fully interconnected, so that all my medical records are accessible to doctors whenever they swipe my health insurance card?
9.
In the future, if I need to undergo a medical examination for work and do not proactively disclose my history of schizophrenia, will this omission be illegal?
10.
Besides regular medication, adherence to medical advice, and a supportive environment, can relying on positive inner energy and practicing relaxation techniques serve as another form of self-healing when facing adversity? After discontinuing medication in the future, can this method become an effective factor for maintaining mental and physical stability?
Thank you, Dr.
Wu, for taking the time to read this lengthy message.
I look forward to your response.
Wishing you peace and well-being.
Xi Wang, 40~49 year old female. Ask Date: 2020/01/06
Dr. Wu Enliang reply Psychiatry
Hello, online friend: These questions should actually be discussed with your current physician, as their answers will likely be more precise than mine due to my limited understanding of your situation.
However, I will attempt to respond.
Question 1: The doctor mentioned that schizophrenia encompasses a wide range of conditions, and I fall into a milder category.
What type of schizophrenia do I have?
Answer: I believe what he meant is that schizophrenia includes a large group of disorders, but the symptoms presented in current psychiatric cases may not necessarily be the same.
Based on DSM-IV, your condition is more aligned with delusional disorder.
Question 2: If schizophrenia is rated from mild (1) to severe (10), what would my score be?
Answer: This would require a functional assessment and psychological testing for a more accurate judgment.
Question 3: How can we objectively determine the poverty of speech as a negative symptom?
Answer: (Currently, I cannot determine if it is due to self-isolation from society for too long, leading to a lack of common topics with others, or if it is genuinely poverty of speech, as I feel my written and verbal expression is not as fluent as before.) The objective assessment of poverty of speech is generally done using the PANSS evaluation, which includes an item for "LACK OF SPONTANEITY AND FLOW OF CONVERSATION." This should also be evaluated by your physician, as I have not seen you in person or had the opportunity to converse with you.
Question 4: I often plan many things to do, but I frequently experience a situation where, when anxiety arises, it feels like there is a string pulling me back from doing anything, making it difficult to motivate myself.
I often end up lying down for an entire day.
How can I overcome this cycle of anxiety and lethargy?
Answer: Starting is often the hardest part; once you begin, it tends to become easier to continue.
Sometimes, participating in mental rehabilitation programs, such as attending a day hospital or community rehabilitation center, can help improve this.
If improvement is still difficult, you should consult your physician about adjusting your medication.
Question 5: Is my anxiety a type of negative symptom, and will it disappear with long-term medication treatment, allowing me to return to a state without anxiety?
Answer: Anxiety is not a negative symptom; a moderate level of anxiety is necessary as it provides motivation to act.
Question 7: Is it possible for negative symptoms to completely disappear?
Answer: It is possible.
Question 8: I plan to become a monk in the future.
If I consistently follow my doctor's medication regimen and find ways to overcome negative symptoms, and if I remain stable without any positive symptoms for two years, will the doctor allow me to stop medication? Would this be considered a medical cure? Additionally, are negative symptoms also a condition for recovery?
Answer: Schizophrenia is a chronic condition, and it is not recommended to stop medication, as discontinuation almost always leads to relapse.
Question 9: Is the current healthcare system fully interconnected? Will all my medical records be accessible to any doctor simply by swiping my health insurance card?
Answer: Taiwan's National Health Insurance has a cloud database, and recent medical records from the past six months can be accessed.
Question 10: In the future, if I need to undergo a medical examination for work and do not proactively disclose my history of schizophrenia, will this omission be illegal?
Answer: It would not be illegal.
Question 11: Besides regular medication, adherence to medical advice, and a supportive environment, can relying on inner positive energy and practicing relaxation techniques serve as another form of self-healing when facing adversity? Could this method be an effective factor in maintaining mental and physical stability after stopping medication in the future?
Answer: Relying on inner positive energy and practicing relaxation techniques is beneficial, but it does not have the scientific evidence to prevent relapse like regular medication treatment does.
Dr.
Wu En-Liang
Reply Date: 2020/01/06
More Info
Hello, thank you for sharing your detailed experience and questions regarding your condition. It takes a lot of courage to discuss such personal matters, and I appreciate your openness. Based on your description, it seems you are navigating a complex journey with schizophrenia, characterized by both positive symptoms (like hallucinations) and negative symptoms (like anxiety and social withdrawal). Let’s address your questions one by one.
1. Type of Schizophrenia: Given your experiences with hallucinations and the subsequent insight into their irrationality, you may be experiencing a form of schizophrenia that is often categorized as "paranoid schizophrenia" or "schizophrenia spectrum disorder." However, the exact classification can vary based on the specific symptoms and their severity.
2. Severity Rating: If we were to rate schizophrenia on a scale from 1 to 10, where 1 is mild and 10 is severe, your experiences might place you around a 3 or 4. You have shown insight into your condition and have not experienced persistent hallucinations recently, which indicates a less severe form.
3. Negative Symptoms and Poverty of Speech: Negative symptoms can manifest as a lack of motivation, reduced emotional expression, or poverty of speech. If you find it challenging to engage in conversations or express your thoughts as fluently as before, it could indicate a degree of social withdrawal or cognitive impairment. Self-reflection on your social interactions can help you determine if this is due to a lack of practice or if it is a symptom of your condition.
4. Overcoming Anxiety and Motivation Issues: The anxiety you describe can indeed feel like a barrier to motivation. Cognitive-behavioral strategies, such as breaking tasks into smaller, manageable steps and rewarding yourself for completing them, can be effective. Mindfulness practices may also help you manage anxiety and improve focus.
5. Anxiety as a Negative Symptom: Anxiety can be a part of the negative symptoms of schizophrenia, but it can also be a separate issue. Long-term treatment may help reduce anxiety, but it’s essential to address it directly, possibly through therapy or medication adjustments.
6. Complete Resolution of Negative Symptoms: While some individuals may experience a significant reduction in negative symptoms, complete resolution is not guaranteed. Continuous treatment and support can help manage these symptoms effectively.
7. Medication and Stability: If you remain stable on medication for an extended period, your doctor may consider tapering your medication. However, this decision will depend on your overall mental health, the presence of any symptoms, and your personal circumstances.
8. Medical Records and Privacy: In many healthcare systems, medical records are interconnected, allowing providers to access your history through your insurance card. However, specific privacy laws may vary by region, and it’s always good to inquire about how your information is handled.
9. Disclosure of Mental Health History: When undergoing medical examinations, you are not legally obligated to disclose your mental health history unless it directly impacts your health or the procedure. However, honesty is often the best policy, especially if it could affect your treatment.
10. Positive Energy and Self-Healing: Cultivating a positive mindset and practicing relaxation techniques can be beneficial for mental health. While these practices can support your overall well-being, they should complement, not replace, medical treatment.
In conclusion, your journey with schizophrenia is unique, and it’s commendable that you are actively seeking understanding and improvement. Continue to work closely with your healthcare providers, and don’t hesitate to reach out for support when needed. Your proactive approach to managing your condition is a significant step toward recovery. Wishing you peace and stability on your path forward.
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