Navigating Long-Term Mental Health Care: Seeking New Solutions After 20 Years - Psychiatry

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I have been seeking medical care for over ten years?


I have been seeing a psychiatrist for nearly 20 years due to emotional instability, which causes me to talk to myself and isolate myself, often laughing alone.
Although I have been treated at a specialized hospital, the doctors later told me that there were no alternative medications available and suggested I seek another physician.
However, since it's the same hospital, they all have access to the same medical records, so I am unsure how switching to a different doctor within the same institution would be beneficial.
I then sought treatment at an external clinic, where the physician is very experienced, but they only prescribe medications that the hospital doctors avoid due to their high costs.

It has been over seven years, and sometimes I feel reluctant to continue treatment, but since my thoughts affect my emotional state, I still take antipsychotic medication, although its effectiveness is limited.
If I need to switch doctors again, I am uncertain about how to proceed.
In psychiatry, medications are typically covered, but other treatments, like psychotherapy, often require out-of-pocket expenses, leaving me unsure of how to continue my care.
I frequently find myself ruminating on past events, including those involving people I haven't seen in 25 years.
What recommendations do you have for seeing a doctor?

Fen, 30~39 year old female. Ask Date: 2021/03/27

Dr. Liao Dinglie reply Psychiatry


Hello, dear netizen: Over the past 20 years, there have been significant advancements in the pharmacological treatment of mental illnesses, particularly in the improvement of medication side effects.
I believe you have had considerable communication with your physician regarding both medication and treatment.
Mental health is not only about pharmacotherapy and psychological counseling; the arrangement of daily life is also crucial.
Beyond attending appointments, establishing an orderly and structured lifestyle after improvements in mental illness can further aid recovery.
Reflecting on past events can be beneficial, but incorporating a variety of enriching activities into your life can help prevent memories from being stuck on unpleasant experiences.
If possible, I recommend discussing lifestyle arrangements with your physician and making more friends, as these aspects contribute meaningfully to life and are worth thoughtful consideration.
I wish you a more fulfilling life and a reduction in your ailments.
Dr.
Ding-Lieh Liao

Reply Date: 2021/03/27

More Info


Navigating long-term mental health care can be a complex and often frustrating journey, especially after nearly two decades of treatment. Your experience reflects a common struggle faced by many individuals dealing with chronic mental health conditions, including mood disorders and schizophrenia. Here are some insights and recommendations that may help you as you seek new solutions.

Firstly, it’s important to acknowledge the challenges you’ve faced with medication management. Over time, patients may find that certain medications become less effective, or they may experience side effects that impact their quality of life. This phenomenon, known as "tolerance," can lead to a frustrating cycle of adjusting dosages or switching medications without achieving the desired results. It’s also not uncommon for patients to feel disheartened when they perceive a lack of options, especially if they have been told by their current healthcare providers that there are no new medications available.

Given your situation, here are several strategies you might consider:
1. Seek a Comprehensive Evaluation: If you haven’t already, consider seeking a comprehensive evaluation from a psychiatrist who specializes in treatment-resistant cases. This could involve a thorough review of your medical history, current medications, and any previous treatments you’ve undergone. A fresh perspective may lead to new insights or alternative treatment options that haven’t been explored yet.

2. Explore Psychotherapy: While you mentioned that many psychotherapy options require out-of-pocket expenses, it’s worth considering the potential benefits of therapy. Cognitive Behavioral Therapy (CBT), Dialectical Behavior Therapy (DBT), or other therapeutic modalities can provide valuable tools for managing symptoms, improving coping strategies, and addressing thought patterns that contribute to emotional instability. Some community health centers or non-profit organizations offer sliding scale fees for therapy, which could make it more accessible.

3. Consider Alternative Treatments: In addition to traditional medications and therapy, there are alternative treatments that may be beneficial. For example, Transcranial Magnetic Stimulation (TMS) is a non-invasive procedure that has shown promise for treatment-resistant depression and anxiety. Similarly, Ketamine infusions have been explored as a rapid-acting treatment for severe depression. Discussing these options with a knowledgeable psychiatrist could provide you with additional avenues for treatment.

4. Engage in Support Groups: Connecting with others who share similar experiences can be incredibly validating and helpful. Support groups, whether in-person or online, can provide a sense of community and understanding. They can also offer practical advice on navigating the healthcare system and managing symptoms.

5. Lifestyle Modifications: While medication and therapy are crucial components of mental health care, lifestyle changes can also play a significant role in managing symptoms. Regular physical activity, a balanced diet, adequate sleep, and mindfulness practices such as meditation or yoga can contribute positively to mental well-being. These changes may not replace medication but can enhance overall treatment effectiveness.

6. Advocate for Yourself: It’s essential to be your own advocate in the healthcare system. If you feel that your current treatment plan is not working, don’t hesitate to express your concerns to your healthcare provider. If necessary, seek a second opinion or explore other healthcare facilities that may offer different treatment philosophies or options.

7. Financial Assistance Programs: If medication costs are a barrier, look into patient assistance programs offered by pharmaceutical companies, non-profits, or community health organizations. These programs can sometimes provide medications at reduced costs or even for free, depending on your financial situation.

In conclusion, navigating long-term mental health care requires persistence, self-advocacy, and a willingness to explore various treatment options. While it can be disheartening to feel stuck in a cycle of limited choices, remember that there are always new avenues to explore. By seeking comprehensive evaluations, considering alternative treatments, and engaging in supportive communities, you can work towards finding a more effective and fulfilling treatment plan. Your mental health journey is unique, and it’s important to find a path that resonates with your needs and circumstances.

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