Managing Arteriovenous Malformations: Patient Care and Future Concerns - Neurosurgery

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Arteriovenous malformation (AVM)


Dear Dr.
Lai,
Thank you for your response.
I would like to provide some clarification.
The patient has been suffering from the condition since their teenage years and has always been cared for by their mother.
Currently, the mother drives the patient to the Shalu Children's Hospital for medication.
However, as parents age, they cannot provide care indefinitely, and there are concerns about the patient's safety when driving alone for long distances to seek medical attention in the event of a seizure.
Therefore, we hope to arrange for the patient to obtain medication from a nearby hospital.
We also appreciate your willingness to allow the patient to visit your clinic for medication.
However, the last examination took place approximately seven years ago, and the current doctor at Shalu Children's Hospital has not planned any further examinations, so there are no recent CT scan images or EEG reports available to provide to you.
Perhaps due to the psychological burden caused by a long-term illness, the patient has some apprehension about switching doctors, and the family is providing careful support.
Could you please advise if there are alternative solutions available without the necessary documentation? Thank you for taking the time to read and respond.

Miss Huang, 60~69 year old female. Ask Date: 2022/01/16

Dr. Lai Zhaokang reply Neurosurgery


Hello: 1.
If it is not possible to copy the recent CT scan disc due to the passage of time and there are no EEG report records, you can provide old discharge summaries or recent outpatient records to Changhua Hospital.
You may also request the original treating physician to write a diagnosis letter.
This can at least demonstrate your past medical condition.
2.
If you come for a consultation, we will arrange for a new CT scan and EEG for your convenience in future follow-up treatment at our hospital.
Wishing you health and peace.
// Neurosurgeon Dr.
Lai Chao-Kang

Reply Date: 2022/01/16

More Info


Managing arteriovenous malformations (AVMs) requires a comprehensive approach that addresses both the medical and psychological needs of the patient. Given the complexities associated with AVMs, particularly in the context of long-term care and the potential for complications such as seizures, it is crucial to establish a supportive and effective management plan.

Patient Care Considerations:
1. Regular Monitoring and Follow-Up: Given that the patient has not had a check-up in seven years, it is essential to schedule a comprehensive evaluation. This should include imaging studies such as MRI or CT scans to assess the current status of the AVM and any changes that may have occurred. Regular follow-ups are critical in managing AVMs, as they can change over time, and timely intervention can prevent complications.

2. Coordination of Care: It is important to have a coordinated care approach involving a neurologist, neurosurgeon, and possibly a psychologist. This multidisciplinary team can provide a holistic treatment plan that addresses both the physical and emotional aspects of living with an AVM. If the patient is experiencing anxiety or depression related to their condition, a referral to a mental health professional may be beneficial.

3. Medication Management: If the patient has a history of seizures, it is crucial to have an appropriate antiepileptic medication regimen in place. The patient's previous experience with medication should be reviewed to ensure that any new prescriptions are safe and effective. If the patient has had adverse reactions to medications in the past, alternative treatments should be considered.

4. Education and Support: Educating the patient and their family about AVMs, potential symptoms, and when to seek immediate medical attention is vital. Support groups or counseling services can also provide emotional support and help alleviate feelings of anxiety regarding the future.

5. Transition Planning: As the patient's primary caregiver, the mother is understandably concerned about the future. It is important to discuss transition plans for when she may no longer be able to provide care. This could involve identifying local healthcare providers who can take over the patient's care, ensuring that the patient is comfortable with the transition, and that they have a support system in place.

Future Concerns:
1. Long-Term Management: AVMs can pose risks such as hemorrhage or neurological deficits. Therefore, long-term management strategies should include regular imaging to monitor the AVM and assess the need for potential interventions, such as embolization or surgical resection, if indicated.

2. Psychosocial Impact: The psychological impact of living with a chronic condition like an AVM can be significant. It is important to address any mental health concerns proactively. Engaging with a psychologist or counselor who specializes in chronic illness can help the patient cope with the emotional challenges they may face.

3. Emergency Preparedness: Given the risk of seizures or other complications, it is essential for the patient and their family to have a plan in place for emergencies. This includes knowing when to seek immediate medical care and having a list of medications and medical history readily available.

4. Community Resources: Exploring community resources, such as local health services or support groups for individuals with neurological conditions, can provide additional support and resources for both the patient and their family.

In conclusion, managing arteriovenous malformations requires a proactive and comprehensive approach that encompasses medical care, psychological support, and careful planning for the future. By establishing a strong support system and ensuring regular medical follow-ups, the patient can lead a more stable and fulfilling life despite the challenges posed by their condition.

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