Tardive dyskinesia
I have been taking Seroquel at Far Eastern Memorial Hospital's psychiatry department for a year, but I developed severe tardive dyskinesia (TD), with my face contorted and constantly making grimaces, along with persistent lip movements.
Therefore, I stopped the medication.
It has been six months since I stopped, but the symptoms remain severe.
The doctor at Far Eastern Memorial Hospital told me that there are currently no medications available for treatment and that it should gradually improve over time.
However, it has been six months since I stopped the medication, and the symptoms are still as severe as ever.
I am afraid to go out.
1.
Are there any medications available to treat tardive dyskinesia? My symptoms are particularly severe in my facial muscles and lip movements, which greatly affect my ability to eat, bathe, and brush my teeth.
I am also afraid to go out for a haircut, and I can only stay at home, unable to work.
Given how severe my facial symptoms are, who would want to hire me? I am reliant on my family for care, and I am only 36 years old.
Is it true that there are no medications available for treatment? Or will I recover if I stop the medication for a longer period?
2.
I found information online about a medication called Tetrabenazine, which seems to be able to treat TD.
Why didn't the psychiatrist at Far Eastern Memorial Hospital prescribe it for me? Is it possible that this medication is not suitable for my symptoms?
3.
Is there a way for tardive dyskinesia to gradually improve on its own? Thank you.
ER, 30~39 year old female. Ask Date: 2022/02/08
Dr. Lin Mianzhang reply Psychiatry
Hello,
The side effects you are experiencing after taking medication are certainly not what you or your physician would want to see.
However, there is still a chance for recovery from tardive dyskinesia (TD), and I hope you do not lose hope.
According to the literature, the remission rates for TD vary widely, ranging from 0% to 73%.
If remission occurs, it typically happens within several months after discontinuing the antipsychotic medication.
Therefore, you may want to observe whether there will be a natural improvement.
As for medications to treat TD, there are deutetrabenazine and valbenazine available abroad, but these two drugs are not imported to Taiwan.
Tetrabenazine is a medication that works similarly to the aforementioned drugs, but it is only approved in Taiwan for the treatment of Huntington's disease.
Although it may have the potential to treat TD, it is not covered by health insurance for this indication, so it would need to be paid for out-of-pocket.
I recommend consulting a neurologist for further advice.
Wishing you a speedy recovery!
Reply Date: 2022/02/08
More Info
Tardive Dyskinesia (TD) is a complex and often distressing condition that arises as a side effect of long-term use of antipsychotic medications. It is characterized by involuntary, repetitive movements, particularly in the face, lips, and tongue, which can severely impact a person's quality of life. Your experience of persistent symptoms even after discontinuing the medication is unfortunately not uncommon, and it raises several important questions regarding treatment options and recovery.
1. Treatment Options for Tardive Dyskinesia: While there is no definitive cure for TD, there are treatment options available that may help manage the symptoms. Medications such as Tetrabenazine, which you mentioned, are often used to reduce the severity of involuntary movements. Tetrabenazine works by depleting dopamine in the brain, which can help alleviate the hyperkinetic movements associated with TD. However, it is essential to note that not all patients respond to this medication, and it may not be suitable for everyone. Other medications, such as Valbenazine and Deutetrabenazine, have also been approved for the treatment of TD and may be worth discussing with your healthcare provider.
2. Why Your Doctor May Not Prescribe Tetrabenazine: There could be several reasons why your doctor at the psychiatric hospital has not prescribed Tetrabenazine or similar medications. It may be due to concerns about potential side effects, interactions with other medications you are taking, or the specific nature of your symptoms. Each patient's situation is unique, and your doctor may believe that the risks outweigh the benefits in your case. It is crucial to have an open dialogue with your healthcare provider about your symptoms and treatment options. If you feel that Tetrabenazine could be beneficial, consider discussing this directly with your doctor or seeking a second opinion from a specialist in movement disorders.
3. Self-Management and Recovery: Regarding the potential for self-resolution of TD symptoms, it is important to understand that while some individuals may experience a gradual improvement over time, others may find that their symptoms persist for an extended period. The duration of TD can vary significantly from person to person. Engaging in supportive therapies, such as occupational therapy, can help you develop coping strategies and improve your daily functioning. Additionally, stress management techniques, such as mindfulness and relaxation exercises, may also help alleviate some symptoms.
4. Psychosocial Support: Given the impact of TD on your daily life and mental health, it is crucial to seek support from mental health professionals who understand the challenges associated with this condition. Support groups, whether in-person or online, can provide a sense of community and shared experience, which can be incredibly beneficial. Connecting with others who are facing similar challenges can help reduce feelings of isolation and provide practical coping strategies.
In summary, while there is no one-size-fits-all solution for Tardive Dyskinesia, there are treatment options available that may help manage your symptoms. It is essential to maintain open communication with your healthcare provider about your concerns and treatment preferences. Additionally, exploring supportive therapies and connecting with others who understand your experience can provide valuable emotional support as you navigate this challenging condition. Remember, you are not alone in this journey, and there are resources available to help you cope and improve your quality of life.
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