Interstitial Cystitis: Symptoms, Treatments, and Related Issues - Urology

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Interstitial cystitis


Hello, doctor.
I have interstitial cystitis and chronic gynecological inflammation, which causes me long-term lower abdominal pain (on both sides) and sometimes pain in the lower abdomen after holding my urine for too long.
I haven't received any bladder instillation treatments for four months due to the pandemic.
Additionally, because of work, I sometimes have to hold my urine for extended periods.
Once, after holding it for a particularly long time, I noticed white strands in my urine and experienced kidney pain.
What could be the issue? Also, I have a pre-existing problem with lower back pain, which has worsened recently.
Could this be related to my urinary issues? Thank you.

Minnie, 30~39 year old female. Ask Date: 2022/06/07

Dr. Du Shixi reply Urology


Hello: You should seek medical attention for a urinalysis to check for infection.
If you have previously had kidney examinations due to back pain and no abnormalities were found, it is likely unrelated.
However, if the urinalysis shows an infection and you develop a fever, it may indicate a kidney infection as well.
Wishing you good health.

Reply Date: 2022/06/07

More Info


Interstitial cystitis (IC), also known as painful bladder syndrome, is a chronic condition characterized by bladder pressure, bladder pain, and sometimes pelvic pain. It can significantly impact a person's quality of life, leading to discomfort and frequent urination. Understanding the symptoms, treatments, and related issues is crucial for managing this condition effectively.


Symptoms of Interstitial Cystitis
The symptoms of interstitial cystitis can vary widely among individuals but commonly include:
1. Chronic Pelvic Pain: This is often felt in the bladder area and can extend to the lower abdomen, lower back, and pelvic region. The pain may worsen with bladder filling and improve after urination.


2. Frequent Urination: Individuals may experience an urgent need to urinate frequently, often more than 8 times a day and several times at night.

3. Pain During Intercourse: Many women with IC report pain during sexual activity, which can further complicate relationships and emotional well-being.

4. Urinary Urgency: A sudden, strong urge to urinate that may be difficult to control.

5. Changes in Urine Appearance: Some patients report changes in urine, such as the presence of white flakes or cloudy urine, which can indicate inflammation or infection.


Treatments for Interstitial Cystitis
Treatment for IC is often multifaceted and may include:
1. Medications: Common medications include oral medications like pentosan polysulfate sodium (Elmiron), which can help restore the bladder lining. Antihistamines may also be prescribed to reduce urgency and frequency.

2. Bladder Instillations: These involve directly instilling medication into the bladder through a catheter. This can provide relief from symptoms and is often used when oral medications are ineffective.

3. Physical Therapy: Pelvic floor physical therapy can help alleviate pain and improve bladder function by addressing muscle tension and dysfunction.

4. Dietary Changes: Some individuals find that certain foods and beverages exacerbate their symptoms. Keeping a food diary can help identify triggers.

5. Stress Management: Since stress can worsen symptoms, techniques such as mindfulness, yoga, and counseling may be beneficial.

6. Surgery: In severe cases, surgical options may be considered, but this is typically a last resort.


Related Issues
Given your symptoms of chronic lower abdominal pain, urinary urgency, and the recent appearance of white flakes in your urine, it is essential to consider a few possibilities:
1. Urinary Tract Infection (UTI): The presence of white flakes could indicate a UTI, especially if accompanied by kidney pain. UTIs can occur alongside IC and may require antibiotic treatment.

2. Kidney Issues: The worsening of your back pain could be related to kidney function or infection. If you experience flank pain (pain in the side), it may warrant further evaluation through imaging studies.

3. Pelvic Floor Dysfunction: Holding urine for prolonged periods can lead to pelvic floor issues, which may exacerbate both bladder and lower back pain.

4. Chronic Inflammation: Your history of gynecological chronic inflammation could be contributing to your symptoms. It might be beneficial to consult with a gynecologist to evaluate any underlying conditions.


Conclusion
It is crucial to maintain open communication with your healthcare provider regarding your symptoms, especially since you have not received bladder instillation treatments for several months due to the pandemic. Regular follow-ups can help manage your condition effectively and address any new or worsening symptoms. If you experience severe pain, fever, or changes in urinary habits, seek medical attention promptly to rule out any serious complications.

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