Photosensitive Epilepsy: Symptoms and What to Avoid - Neurology

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Two days ago, I decided to test whether I have photosensitive epilepsy by watching several videos with intense flashing lights.
Unexpectedly, I experienced two situations: the first was that during the viewing, my neck muscles suddenly stiffened and twitched; the second was that there was no twitching in my neck, but shortly after, I felt very fatigued, my heart rate increased, and I suddenly felt scared.
What should I do?

Jose, 20~29 year old female. Ask Date: 2023/02/18

Dr. Jiang Junyi reply Neurology


Hello Mr.
Jose: You mentioned that "photosensitive epilepsy" typically involves generalized brain discharges, which can lead to temporary loss of consciousness.
This is usually observed by family members.
Your symptoms should first consider abnormalities in the muscle fascia.
It is recommended to check for any abnormal brain waves; if the results are normal, I suggest consulting a neurologist to discuss further examinations and treatment options.
Thank you for your inquiry, and feel free to discuss further.
Wishing you good health, peace, and happiness.
Dr.
Jiang from Taoyuan Medical Center is concerned about you.

Reply Date: 2023/02/18

More Info


Photosensitive epilepsy is a type of epilepsy that is triggered by visual stimuli, particularly flashing lights or contrasting patterns. It is most commonly observed in children and can manifest in various ways, including generalized seizures, focal seizures, or even non-convulsive episodes. The symptoms you described, such as sudden muscle stiffness in the neck and feelings of fatigue, rapid heartbeat, and anxiety, could potentially be related to this condition or other underlying issues.

When you watched videos with intense flashing lights, your body reacted in ways that might indicate a sensitivity to such stimuli. The sudden stiffness in your neck could suggest a muscle spasm or a reflexive response to the visual input, while the feelings of fatigue and anxiety could be a result of overstimulation or a heightened state of alertness in response to the flashing lights.
To address your concerns, here are several steps you should consider:
1. Consult a Neurologist: It is crucial to seek a professional evaluation from a neurologist who specializes in epilepsy. They can conduct tests, such as an electroencephalogram (EEG), to monitor your brain activity and determine if there are any abnormal patterns that suggest epilepsy or other neurological conditions.

2. Avoid Triggers: If you suspect that you may have photosensitive epilepsy, it is essential to avoid known triggers. This includes not watching videos with flashing lights or patterns, avoiding certain video games, and being cautious in environments with strobe lights or rapid visual changes.

3. Document Your Symptoms: Keep a detailed record of your experiences, including when they occur, the type of visual stimuli involved, and any physical or emotional responses you have. This information can be invaluable for your healthcare provider in diagnosing and managing your condition.

4. Consider Other Factors: Your symptoms may not solely be related to photosensitive epilepsy. Factors such as anxiety, stress, or even muscle tension could contribute to your experiences. Discussing these aspects with a healthcare provider can help in understanding the full picture.

5. Lifestyle Adjustments: Incorporate stress-reducing techniques into your daily routine, such as mindfulness, meditation, or yoga. These practices can help manage anxiety and improve your overall well-being.

6. Educate Yourself: Understanding photosensitive epilepsy and its triggers can empower you to make informed decisions about your health. Familiarize yourself with the condition, its symptoms, and management strategies.

7. Support System: Engage with a support group or community of individuals who have similar experiences. Sharing your concerns and learning from others can provide emotional support and practical advice.

In summary, while your symptoms may suggest a sensitivity to visual stimuli, it is essential to consult a healthcare professional for a thorough evaluation. Avoiding known triggers, documenting your experiences, and considering other contributing factors can help you manage your symptoms effectively. Remember that early intervention and education are key in addressing any potential neurological concerns.

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