Managing AVM Complications: Insights on Treatment Options and Transfers - Neurosurgery

Share to:

Arteriovenous malformation of the brain with associated intracerebral hemorrhage?


Dear Doctor: My family member, in their forties, was diagnosed with an arteriovenous malformation (AVM) two years ago.
After angiography, surgery was deemed too risky due to the deep location of the AVM, so only radiation therapy was recommended.
Recently, they experienced a hemorrhage associated with the AVM and have been in a coma for 41 days.
Since the external drainage surgery on the first day, their Glasgow Coma Scale (GCS) score has remained at 3, and they have not regained consciousness.
They are currently in the intensive care unit (ICU), where the doctors are employing conservative treatment with external ventricular drainage.
About 30 days into the hospitalization, there was a temporary rebleeding at the site of the malformation, prompting MRI, CT scans, and cerebral angiography, which concluded that surgery was not suitable.
The doctors also mentioned that radiation therapy is not being considered.
Last week, an endovascular embolization procedure was performed to remove a small portion of the clot, and a ventricular-peritoneal shunt surgery is planned for next week.

I would like to ask the following:
1.
Is placing an internal drainage catheter the only option available at this time?
2.
Can you provide other treatment directions or suggestions?
3.
Are there any novel devices or experimental treatment methods that are not publicly available?
4.
We are considering transferring to a major hospital in Taipei; is this a suitable time for such a transfer? What should we be aware of regarding the transfer?
5.
I called another hospital for inquiries, and the operator said that transfers cannot be initiated by the public and must be communicated between hospitals.
If there are no available beds or if a specific physician cannot be designated, would I be left in a difficult situation at the current hospital?

Xiang Tian Xiao Gong Zhu, 30~39 year old female. Ask Date: 2023/02/23

Dr. Zhang Junwei reply Neurosurgery


Currently, there does not seem to be a better treatment option available, but since each individual's condition varies, it is still recommended to have a detailed consultation in an outpatient setting.

Reply Date: 2023/02/23

More Info


Managing arteriovenous malformations (AVMs) and their complications can be quite complex, especially when dealing with severe cases that involve hemorrhaging and prolonged unconsciousness. Your family member's situation, having suffered from a brain AVM with subsequent bleeding and a Glasgow Coma Scale (GCS) score of 3, indicates a critical condition that requires careful management and consideration of treatment options.

1. Current Treatment Options: The placement of an external ventricular drain (EVD) is indeed a common approach in managing increased intracranial pressure and hydrocephalus resulting from AVM-related complications. This method allows for the drainage of cerebrospinal fluid (CSF) and can help alleviate pressure on the brain. However, it is not the only option available. In cases where the AVM is causing significant symptoms or complications, other interventions may be considered, such as endovascular embolization, which you mentioned was performed to remove some blood clots. This procedure can help reduce the blood flow to the AVM and potentially decrease the risk of further bleeding.

2. Alternative Treatment Directions: If the current conservative management is not yielding improvements, it may be worth discussing with the medical team the possibility of other interventions, such as stereotactic radiosurgery (SRS) or further endovascular techniques. These methods can be less invasive than traditional surgery and may be appropriate depending on the specific characteristics of the AVM and the patient's overall condition.

3. Innovative Treatments: Research in the field of AVM treatment is ongoing, and there are always emerging techniques and technologies. For instance, advancements in imaging techniques and minimally invasive surgical approaches are being developed. However, these treatments may still be in clinical trials or not widely available. Consulting with a specialized center that focuses on neurovascular disorders may provide insights into cutting-edge treatments.

4. Transfer to a Larger Hospital: Considering a transfer to a larger medical facility, such as a university hospital in Taipei, can be beneficial, especially if they have a specialized neurovascular team. The timing of the transfer should ideally be when the patient's condition is stable enough to allow for safe transport. It’s crucial to communicate with both the current hospital and the receiving hospital to ensure that they are prepared to accept the patient and that there are available resources.

5. Transfer Protocols: Regarding the transfer process, it is standard practice for hospitals to communicate directly with one another regarding patient transfers. If you encounter difficulties in transferring, it may be helpful to have your current medical team advocate for the transfer, as they can provide necessary medical documentation and justify the need for specialized care. If there are concerns about bed availability or physician assignment, it’s important to address these with the receiving hospital to ensure a smooth transition.

In conclusion, managing AVM complications requires a multidisciplinary approach and careful consideration of all available treatment options. It is essential to maintain open communication with the medical team, explore all possible avenues for treatment, and ensure that any transfer is conducted safely and efficiently. Your family member's condition is serious, and seeking the best possible care is paramount.

Similar Q&A

Understanding AVM: Causes, Stroke Connection, Recovery, and Prevention Tips

Arteriovenous malformation (AVM) is a condition characterized by an abnormal connection between arteries and veins, which can lead to various complications, including hemorrhage. The exact cause of AVM is not fully understood, but it is believed to be a congenital condition, mean...


Dr. Huang Yingzhe reply Neurology
Arteriovenous malformation (AVM) is a congenital vascular anomaly and is a major cause of young-onset stroke. The typical treatment for AVM is surgical resection; however, in some cases located deep within the brain or in critical functional areas, the risks and complications ass...

[Read More] Understanding AVM: Causes, Stroke Connection, Recovery, and Prevention Tips


Understanding Arteriovenous Malformations in the Foot: Treatment Options and Concerns

Hello, doctor. I have been diagnosed with arteriovenous malformation (AVM) in my left foot. MRI and ultrasound have revealed several hemangiomas. I have previously undergone surgery and two sclerotherapy treatments without issues, but during the third sclerotherapy injection, it ...


Dr. He Dongjin reply Cardiology
Hello, it is a congenital disease! It is hereditary! Besides sclerotherapy, I am not sure what other treatments are available. I do not meet the qualifications to apply for a major illness card or a disability handbook. Changhua Hospital cares about you.

[Read More] Understanding Arteriovenous Malformations in the Foot: Treatment Options and Concerns


Choosing Between Surgery and Gamma Knife for AVM Treatment: A Patient's Dilemma

I was hospitalized at the end of December last year due to bleeding from an arteriovenous malformation. At that time, the doctor administered medication to reduce intracranial pressure. After I regained consciousness, I noticed that I could no longer see the peripheral vision on ...


Dr. Ding Xianwei reply Neurosurgery
Since you have not provided detailed information about the arteriovenous malformation, I am currently unable to offer specific advice. Generally speaking, the complications associated with embolization are fewer; however, there is a risk of rebleeding within one to two years afte...

[Read More] Choosing Between Surgery and Gamma Knife for AVM Treatment: A Patient's Dilemma


Managing Chronic Headaches After AVM Surgery: Expert Insights

I underwent a craniotomy in 2001 for a congenital arteriovenous malformation located near my left temple, close to my left eye. It was pressing against my left eye (approximately 4-5 cm). Prior to the discovery of this condition, I had a habit of experiencing migraines. Even afte...


Dr. Huang Yingzhe reply Neurology
Director Huang Ying-Che of the Neurology Department at Tainan Hospital, Ministry of Health and Welfare, responded: Hello, A-Mei. Your headache may be related or unrelated to the pre-existing arteriovenous malformation, but a thorough evaluation is necessary. An electroencephalogr...

[Read More] Managing Chronic Headaches After AVM Surgery: Expert Insights


Related FAQ

Intracranial Vascular Malformation

(Neurosurgery)

Cerebrovascular

(Neurosurgery)

Car Accident

(Neurosurgery)

Posterior Head

(Neurosurgery)

Meningitis

(Neurosurgery)

Cerebrovascular Embolism

(Neurology)

Family Medicine

(Neurosurgery)

Other

(Neurosurgery)

Intracranial Hemorrhage

(Neurology)

Head Injury

(Surgery)