Symptoms and Management of Vasculitis: A Patient's Guide - Internal Medicine

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Vasculitis symptoms issues?


Doctor, I am the previous patient who inquired about vasculitis.
It has been confirmed that my skin condition is not ANCA-related and has improved.
However, I am unsure why this afternoon I experienced some abdominal discomfort and lower back pain.
After dinner, I took a steroid pill, which improved my abdominal symptoms, but I still have some lower back pain, and my thigh also feels a bit painful.
I'm wondering if this means the disease is starting to affect other organs.
Should I go for blood and urine tests immediately, or should I just observe my symptoms and continue the steroid treatment until my follow-up appointment next week for further evaluation by the doctor?

Zhe, 40~49 year old female. Ask Date: 2023/06/30

Dr. Gao Jiankai reply Internal Medicine


Hello, thank you for your inquiry.
I believe the symptoms you described are not specific, but if you are concerned, you can schedule an earlier follow-up appointment for tests.
A simple urine test can help determine if there are any issues with your kidneys.
The Allergy, Immunology, and Rheumatology Department at Changhua Hospital, Ministry of Health and Welfare, cares about your well-being.

Reply Date: 2023/06/30

More Info


When dealing with vasculitis, especially in the context of a confirmed diagnosis, it's crucial to understand the symptoms, management strategies, and when to seek further medical attention. Vasculitis refers to a group of disorders that cause inflammation of blood vessels, which can lead to a variety of symptoms depending on which vessels are affected and the organs they supply.
In your case, the recent symptoms of abdominal discomfort, lower back pain, and thigh pain could be concerning, especially given your history of vasculitis. It is not uncommon for vasculitis to affect multiple systems in the body, and the symptoms you describe could indicate that the condition is becoming more active or affecting new areas. The fact that your abdominal discomfort improved after taking steroids suggests that inflammation may be playing a role in your symptoms, as corticosteroids are often used to reduce inflammation in vasculitis patients.

Here are some considerations regarding your situation:
1. Monitoring Symptoms: It is essential to keep a close eye on your symptoms. If the abdominal discomfort and back pain persist or worsen, or if you develop new symptoms such as fever, significant fatigue, or changes in urination, it would be prudent to seek medical attention sooner rather than later.
2. Steroid Management: Continuing your prescribed steroid treatment is important, as these medications help control inflammation and prevent flares of vasculitis. However, it is also vital to communicate any new or worsening symptoms to your healthcare provider, as they may need to adjust your treatment plan based on your current condition.

3. Laboratory Tests: While it may not be necessary to rush for blood and urine tests immediately, if your symptoms do not improve or if they escalate, you should definitely consider getting evaluated. Blood tests can help assess inflammation levels (such as ESR and CRP), kidney function, and other parameters that may indicate how well your body is managing the disease. Urinalysis can check for signs of kidney involvement, which is crucial in vasculitis.

4. Follow-Up Appointments: Since you have a follow-up appointment next week, it would be wise to prepare for that visit by documenting your symptoms, any changes you’ve noticed, and how they correlate with your treatment. This information will be invaluable for your physician in determining the best course of action.

5. Lifestyle and Support: In addition to medical management, consider lifestyle factors that can support your overall health. This includes a balanced diet, adequate hydration, regular but gentle exercise, and stress management techniques. Engaging in supportive therapies, such as physical therapy or counseling, can also be beneficial in managing chronic conditions like vasculitis.

6. Education and Resources: Understanding your condition is vital. Seek out reputable resources about vasculitis, such as the Vasculitis Foundation or similar organizations, which provide educational materials and support networks for patients.

In conclusion, while it is essential to monitor your symptoms and adhere to your treatment plan, do not hesitate to reach out to your healthcare provider if you have concerns about new or worsening symptoms. Early intervention can be key in managing vasculitis effectively and preventing complications. Your health and well-being should always be the priority, and maintaining open communication with your medical team is crucial in navigating this complex condition.

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