Suppurative hidradenitis
It has been over ten years, and I experience outbreaks five to eight times a year, with lesions primarily located in the genital area.
However, recently, I have had outbreaks in the groin and underarm areas.
The lesions keep recurring in the same vicinity, healing and then reappearing.
After a month of treatment with medication and topical ointments, there has been no improvement.
During my follow-up appointment today, the doctor diagnosed me with hidradenitis suppurativa rather than furuncles.
They changed my medication and advised me to be patient with the treatment.
I am feeling very anxious; I read online that hidradenitis suppurativa is difficult to treat and can leave many scars.
I also saw that some patients have severe cases, and I worry that I might end up like that in a few years, especially since I have been dealing with this for ten years, with recurrent folliculitis in the same areas.
Typically, I only need to take medication for two to three weeks to feel better, but I don’t understand why it keeps recurring.
I am very concerned that my condition may be worsening.
What else can I do to help my body heal more quickly? Generally, how long does it take to completely cure hidradenitis suppurativa?
Kio, 40~49 year old female. Ask Date: 2023/12/06
Dr. Wu Yuxin reply Dermatology
So far, there is no definitive cure for hidradenitis suppurativa.
In addition to surgical treatment, newer options include biologic agents that can improve the condition.
However, not all patients may qualify for insurance coverage for biologic treatments, and some may need to pay out of pocket.
Reply Date: 2023/12/06
More Info
Hidradenitis Suppurativa (HS) is a chronic skin condition characterized by recurrent painful lumps, abscesses, and scarring, primarily occurring in areas where skin rubs together, such as the armpits, groin, and under the breasts. It can significantly impact a person's quality of life due to its painful nature and the psychological burden it carries. Understanding the treatment options, concerns, and recovery time is crucial for managing this condition effectively.
Treatment Options
1. Medications: The first line of treatment often includes antibiotics to manage infections and reduce inflammation. Topical treatments, such as antiseptic washes and corticosteroid creams, may also be prescribed to help alleviate symptoms. In more severe cases, systemic medications like biologics (e.g., adalimumab) have shown effectiveness in reducing flare-ups and improving skin condition.
2. Surgical Interventions: For patients with recurrent or severe HS, surgical options may be considered. This can include draining abscesses, removing affected skin areas, or even more extensive procedures like skin grafting. Surgery can provide significant relief and reduce the frequency of flare-ups.
3. Lifestyle Modifications: Maintaining a healthy weight, wearing loose-fitting clothing, and practicing good hygiene can help minimize friction and irritation in affected areas. Some patients find that dietary changes, such as reducing dairy and sugar intake, can also help manage their symptoms.
4. Psychological Support: Given the chronic nature of HS and its impact on mental health, seeking psychological support or counseling can be beneficial. Support groups can also provide a sense of community and understanding.
Concerns and Recovery Time
Your anxiety regarding the chronicity of HS and the potential for scarring is understandable. HS is indeed a long-term condition, and while some patients experience periods of remission, others may have persistent symptoms. The recovery time can vary significantly from person to person. Some may find relief within weeks of starting treatment, while others might require months or even years of management to achieve significant improvement.
It's important to communicate openly with your healthcare provider about your concerns. They can help set realistic expectations regarding treatment outcomes and recovery time. Regular follow-ups are essential to monitor your condition and adjust treatment as necessary.
Managing Anxiety and Expectations
Feeling anxious about the progression of your condition is common among HS patients. Here are some strategies to help manage your anxiety:
- Educate Yourself: Understanding HS can empower you. Knowledge about the condition, treatment options, and what to expect can alleviate some fears.
- Focus on Self-Care: Engage in activities that promote relaxation and well-being, such as yoga, meditation, or gentle exercise. These can help reduce stress and improve your overall outlook.
- Stay Connected: Reach out to friends, family, or support groups. Sharing your experiences and feelings can provide emotional relief and practical advice from those who understand what you're going through.
- Set Realistic Goals: Work with your healthcare provider to set achievable goals for your treatment. Celebrate small victories along the way, as they can help maintain motivation and positivity.
Conclusion
Hidradenitis Suppurativa is a challenging condition that requires a comprehensive approach to treatment and management. While it can be frustrating to deal with recurrent flare-ups and the potential for scarring, advancements in treatment options provide hope for better management and improved quality of life. By working closely with your healthcare team, focusing on self-care, and seeking support, you can navigate this condition more effectively. Remember, you are not alone in this journey, and there are resources available to help you cope with the challenges of HS.
Similar Q&A
Is There a Difference in Treatment for Hidradenitis Suppurativa Between Clinics and Hospitals?
I am currently being treated for hidradenitis suppurativa at a clinic. The doctor prescribed oral doxycycline, some prim, and topical fusidic acid. During the treatment, a pustule at the same location ruptured and began to heal, but new redness and swelling appeared nearby, leadi...
Dr. Wu Yuxin reply Dermatology
Suppurative hidradenitis is inherently difficult to treat and has a high tendency for recurrence. It is recommended to cooperate closely with your original physician and it may not be necessary to go to a large hospital.[Read More] Is There a Difference in Treatment for Hidradenitis Suppurativa Between Clinics and Hospitals?
Managing Recurrent Suppurative Hidradenitis: Treatment Options and Advice
Hello, doctor. I have been struggling with suppurative hidradenitis for a long time. Over ten months ago, I visited a clinic where the doctor drained the pus. However, it has recently recurred, and there is a lump (in the same condition and location). I have tried to squeeze out ...
Dr. Wu Yuxin reply Dermatology
If it is the same question, it is generally acceptable.[Read More] Managing Recurrent Suppurative Hidradenitis: Treatment Options and Advice
Understanding the Difference: Lipoma vs. Hidradenitis Suppurativa
Hello, doctor. I first developed symptoms in my first year of high school, with a lump in my left armpit. At that time, the doctor at the hospital diagnosed it as a sebaceous cyst. Later, the left side became infected, so they performed a drainage procedure, and subsequently, I h...
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These two conditions are actually quite similar, with similar symptoms and treatments, and they are prone to recurrence. In addition to oral medications, timely debridement is necessary in the treatment.[Read More] Understanding the Difference: Lipoma vs. Hidradenitis Suppurativa
Understanding Redness and Swelling: Skin Conditions of the Face and Body
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Dr. Huang Ruiyun reply Dermatology
Hello: I’m sorry, but even with the photos you provided, I am unable to make a diagnosis due to regulations. Since you have already had a biopsy, you should continue with follow-up care (there should be some blood tests as well, right?). Providing you with possible differential d...[Read More] Understanding Redness and Swelling: Skin Conditions of the Face and Body
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