Treatment for Multiple Sclerosis
Hello, Doctor.
I was diagnosed with multiple sclerosis this year.
I found information online stating that if I do not start medication early to control it, I may develop disabilities within five years.
However, my application for the major illness card was not approved, and I cannot access medications covered by health insurance.
My family is already facing financial difficulties, and without insurance, I cannot afford to pay out of pocket.
I would like to know if my situation means I can only wait until the next relapse to be hospitalized.
If the affected areas are in the memory, logic regions, or frontal lobe, or if my brain is shrinking at a faster rate than normal, I might not even notice it, just like how my MRI shows multiple white spots that I was previously unaware of.
This feeling of having to passively wait until I become disabled is very distressing.
Since my attending physician and the hospital have not provided me with education, all my information comes from the internet, so I want to verify with a doctor.
Because I have no medication, I want to seek help to reduce my anxiety:
1.
Are there patients who can maintain a non-active disease state through diet, exercise, stress management, sleep, etc., without medication? (I know there are functional medicine approaches abroad that advocate this, but I fear it may be a remedy.)
2.
How can I determine if my disease is progressing? Is it certain that without medication, it will develop into secondary progressive MS (SPMS) or primary progressive MS (PPMS) within 10 to 20 years?
3.
For patients without available medication, how often do relapses typically occur?
4.
What can I do at this stage, or what resources can I seek for help? Thank you, Doctor!
Lily, 20~29 year old female. Ask Date: 2024/06/11
Dr. Jiang Junyi reply Neurology
Dear Ms.
Lily,
You mentioned, "I was diagnosed with multiple sclerosis this year..." Clinically, doctors will conduct an MRI examination within six months to determine the progression of the disease.
You also mentioned, "Patients can rely on diet, exercise, stress management, and sleep..." This is not a folk remedy; maintaining a regular lifestyle is a fundamental requirement for life.
Sustaining consistent habits will lead to better immunity and functionality.
I recommend that you consider joining an association, as there will be many friends to support you.
Thank you for your inquiry, and if you have any related questions, feel free to discuss further! Wishing you good health, peace, and joy.
Dr.
Jiang Junyi, Hua Medical/Tao Medical, cares about you.
Reply Date: 2024/06/11
More Info
Navigating the complexities of multiple sclerosis (MS) treatment without medication can be challenging, especially when faced with financial constraints and limited access to healthcare resources. It’s understandable to feel anxious about the potential progression of your condition, particularly when you are aware of the risks associated with delaying treatment. Here, I will address your concerns and provide insights based on current medical understanding.
1. Lifestyle Modifications: While medication is a cornerstone of MS treatment, many patients have reported benefits from lifestyle changes that may help manage symptoms and potentially slow disease progression. These include:
- Diet: A balanced diet rich in fruits, vegetables, whole grains, and healthy fats may support overall health. Some studies suggest that diets low in saturated fats and high in omega-3 fatty acids could be beneficial for MS patients. However, it's essential to consult with a healthcare professional or a nutritionist before making significant dietary changes.
- Exercise: Regular physical activity can improve strength, mobility, and overall well-being. Exercise has been shown to reduce fatigue and improve mood in MS patients. Activities like swimming, yoga, and walking can be particularly beneficial.
- Stress Management: Stress can exacerbate MS symptoms. Techniques such as mindfulness, meditation, and deep-breathing exercises can help manage stress levels. Engaging in hobbies and social activities can also provide emotional support and distraction from symptoms.
- Sleep Hygiene: Quality sleep is crucial for overall health and can help manage fatigue, a common symptom of MS. Establishing a regular sleep schedule, creating a restful environment, and avoiding stimulants before bedtime can improve sleep quality.
2. Monitoring Disease Progression: Without medication, it can be challenging to determine if your MS is progressing. Regular follow-ups with a neurologist are essential, even if you are not on medication. They can perform neurological exams and MRI scans to monitor any changes in your condition. Keeping a symptom diary can also help you track any new or worsening symptoms, which can be valuable information for your healthcare provider.
3. Frequency of Relapses: The frequency of MS relapses can vary significantly among individuals. Some may experience frequent relapses, while others may have long periods of stability. Without medication, the risk of relapses may increase, but it is not a certainty that you will experience them at regular intervals. Each case is unique, and factors such as lifestyle, stress levels, and overall health can influence relapse rates.
4. Seeking Support: It’s crucial to seek support during this time. Consider reaching out to local or online MS support groups, where you can connect with others facing similar challenges. These groups can provide emotional support, share coping strategies, and offer information about resources available in your area. Additionally, organizations like the National Multiple Sclerosis Society (NMSS) offer educational resources and may assist with finding financial aid or support programs.
In conclusion, while medication is a critical component of managing MS, lifestyle modifications can play a significant role in maintaining your health and potentially reducing the frequency and severity of relapses. Regular communication with your healthcare provider is essential to monitor your condition and adjust your management plan as needed. Remember, you are not alone in this journey, and there are resources and communities available to support you.
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