Seeking Help for Post-Surgery Neurological Issues: A Call for Assistance

Q: Seeking Help for Post-Surgery Neurological Issues: A Call for Assistance

Hello： It is recommended that you return to Dr. <br>Huang Jinshan's outpatient clinic for further evaluation and treatment. <br>Additionally, if the brain tumor is benign, you will not be able to apply for major illness benefits. <br>Sincerely, Dr. <br>Ding Hsien-Wei, Neurosurger

Emergency Assistance (Forwarded by the Department of Health)

My wife, Li Mi, underwent a 9 cm meningioma surgery on March 14, 2003, at Cathay General Hospital, performed by neurosurgeon Dr.
Huang Jinshan.
Since then, she has been unable to sleep normally and requires a combination of four sleeping pills and sedatives to have any chance of falling asleep.
In June 2003, she experienced a mild episode of involuntary movements, and by August 2003, these involuntary movements became frequent.
In September 2003, she began taking medications prescribed by the neurosurgery department at Cathay General Hospital.
In October 2003, she switched to medications prescribed by Dr.
Jiang Cuiru from the neurology department and Dr.
Zhang Jingrui from the psychiatry department at the same hospital.
In March 2004, due to severe involuntary movements, she was admitted to the psychiatry department at Cathay General Hospital for a week without improvement, and was subsequently transferred to Chang Gung Memorial Hospital, where Dr.
Lu Qingsong from the neurology department conducted CT scans, MRIs, and nerve conduction studies, all of which returned normal results.
Initially, her involuntary movements included head and hand shaking and leg jerking; now, they have progressed to head shaking, nodding, and rotating, along with hand shaking, clapping, twitching, and rotating, as well as leg shaking, clapping, twitching, rotating, and jumping, body twisting, continuous teeth grinding, and tongue protrusion and retraction.
Due to the lack of a definitive diagnosis, she is unable to apply for major illness benefits and does not meet the criteria for disability.
We hope that compassionate individuals can provide assistance and help us find a physician.
Her occupational and social functions have deteriorated, requiring long-term treatment to maintain her basic self-care abilities in daily life, and she needs a caregiver.
Phone: 223627050928840532, Contact: Zhuo Zhihong, Email: [email protected].

Zhuo Zhi Hong, 30~39 year old female. Ask Date: 2004/04/30

Dr. Ding Xianwei reply Neurosurgery

Hello: It is recommended that you return to Dr.
Huang Jinshan's outpatient clinic for further evaluation and treatment.
Additionally, if the brain tumor is benign, you will not be able to apply for major illness benefits.
Sincerely, Dr.
Ding Hsien-Wei, Neurosurgery, Taoyuan Hospital, Department of Health, Executive Yuan.

Reply Date: 2004/04/30

More Info

Post-surgery neurological issues can be complex and challenging, especially after significant procedures such as the removal of a meningioma. Your wife's situation, characterized by persistent insomnia, involuntary movements, and the need for multiple medications, indicates a multifaceted problem that requires careful management and support.

1. Understanding the Symptoms: The involuntary movements your wife is experiencing could be indicative of a condition known as dyskinesia, which can occur after neurological surgeries. This can manifest as tremors, jerks, or other involuntary movements, and may be exacerbated by medications or the underlying neurological condition. The fact that these movements have evolved over time suggests that they may be related to the brain's adjustment post-surgery or a side effect of the medications being used.

2. Sleep Issues: The reliance on sleep medications and sedatives to achieve rest is concerning. Chronic insomnia can lead to a range of complications, including increased anxiety, cognitive impairment, and a decline in overall health. It is essential to address the root causes of her sleep disturbances, which may include pain, anxiety, or the effects of medications. A sleep study might be beneficial to assess her sleep patterns and identify any underlying sleep disorders.

3. Medication Management: It appears that your wife has been on various medications prescribed by different specialists. It is crucial to have a coordinated approach to her medication management. Consulting with a neurologist who specializes in movement disorders may provide insights into optimizing her medication regimen to minimize side effects while effectively managing her symptoms.

4. Rehabilitation and Therapy: Engaging in physical therapy and occupational therapy can be beneficial for improving her motor control and reducing involuntary movements. Therapists can work with her to develop strategies to manage her symptoms and improve her daily functioning. Additionally, speech therapy may be helpful if she experiences any difficulties with communication or swallowing.

5. Psychological Support: Given the psychological impact of her condition, including the potential for anxiety and depression, it may be beneficial to involve a mental health professional. Cognitive-behavioral therapy (CBT) can be effective in helping patients cope with the emotional challenges associated with chronic neurological conditions.

6. Seeking Specialized Care: If her current treatment plan is not yielding improvements, it may be worthwhile to seek a second opinion from a specialized center that focuses on post-surgical neurological rehabilitation. These centers often have multidisciplinary teams that can provide comprehensive care tailored to her specific needs.

7. Support Systems: It is essential to establish a strong support system for your wife. This includes family, friends, and possibly support groups for individuals with similar conditions. Connecting with others who understand her challenges can provide emotional support and practical advice.

8. Monitoring and Follow-Up: Regular follow-ups with her healthcare providers are crucial to monitor her progress and make necessary adjustments to her treatment plan. Keeping a detailed journal of her symptoms, medication effects, and any changes in her condition can be helpful for her medical team in making informed decisions.

9. Community Resources: Explore community resources that may offer assistance, such as home health services, respite care, or local support groups for caregivers and patients with neurological conditions. These resources can provide additional support and relief for both you and your wife.

In conclusion, addressing your wife's post-surgery neurological issues requires a comprehensive and coordinated approach involving medical professionals, therapists, and support systems. By focusing on her physical, emotional, and psychological well-being, you can help her navigate this challenging journey towards recovery.

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