Regarding the sequelae after cervical spine surgery?
I would like to consult with the doctors:
1.
In January, I experienced severe headaches and projectile vomiting, which resulted in mild paralysis on the left side of my body.
I was sent to Chang Gung Memorial Hospital, where an MRI diagnosed me with an intramedullary vascular tumor at the C1-C2 level, which was compressing the nerves on the left side.
After the diagnosis, I was treated with steroids until my surgery on March 9.
After the surgery, I underwent rehabilitation until September, and after stopping the steroids, my left leg began to tremble uncontrollably, especially when standing still or walking.
The doctors tried various interventions, but the results were the same, and my balance was very poor, often causing me to lean to the left.
Subsequently, my neurologist advised against continued steroid use and switched my treatment to Depakine and Tegretol.
Initially, my symptoms improved slightly, but the aforementioned issues still persist.
However, I don't think my symptoms are classified as epilepsy; I'm curious why the doctor chose these medications for treatment.
Additionally, I sometimes forget to take my medication and then take it later; what side effects might this cause?
2.
Cervical vascular tumors are a congenital condition, but there is limited information available online.
I wonder where I can find more detailed information.
Logically, after the tumor is removed, I should be fine, but I still experience numbness in my palms and soles, and I have persistent pain in my left neck and shoulder.
I would like to know if these conditions are likely to improve.
During my follow-up appointment in November, the doctor mentioned that I am nearing the end of the six-month critical period and expressed concern that my walking might become fixed (related to question 1).
Is this true? I feel like my walking is getting worse, and I am very afraid that I will have to live like this for the rest of my life.
Thank you.
claire, 20~29 year old female. Ask Date: 2004/11/29
Dr. Lai Lunxiang reply Neurology
Hello! 1.
Are there any side effects? Please consult your attending physician for an assessment.
2.
It will get better, but very slowly.
Thank you!
Reply Date: 2004/11/29
More Info
After undergoing cervical spine surgery, particularly for conditions such as a vascular malformation at the C1-C2 level, it is not uncommon to experience a range of post-operative symptoms. These can include persistent pain, numbness, weakness, and other neurological symptoms. Your case, which involves a history of severe headaches, vomiting, and left-sided weakness, adds complexity to your recovery process.
1. Post-Surgery Symptoms: It is important to understand that after any significant spinal surgery, the body undergoes a healing process that can take time. The symptoms you are experiencing, such as the shaking of your left leg and balance issues, could be attributed to several factors. These may include nerve irritation or inflammation, which can occur post-operatively as the nerves begin to heal. The use of steroids prior to surgery may have masked some symptoms, and their cessation could lead to a resurgence of symptoms as your body adjusts.
2. Medication Management: The transition from steroids to medications like Depakine (valproate) and Tegretol (carbamazepine) suggests that your doctors are addressing potential seizure activity or nerve-related issues. While these medications can help manage certain neurological symptoms, they also come with potential side effects, including dizziness, drowsiness, and coordination problems. It is crucial to adhere to your medication schedule to maintain stable blood levels of the drugs, as missing doses can lead to fluctuations in your symptoms.
3. Balance and Coordination: The issues with balance and the sensation of wanting to lean to one side may indicate that your body is still adjusting to the changes following surgery. The brain and body often need time to recalibrate after such significant interventions. Physical therapy can be beneficial in this regard, focusing on balance training and strengthening exercises to help improve stability.
4. Long-term Outlook: Regarding your concerns about the "golden period" of recovery, it is true that the first six months post-surgery are often critical for healing. However, this does not mean that improvement cannot occur after this period. Many patients continue to see gradual improvements over a year or more. It is essential to maintain open communication with your healthcare team about your symptoms and any changes you experience.
5. Cervical Vascular Malformation: As for the cervical vascular malformation, it is indeed a congenital condition, and while surgical removal can alleviate the immediate pressure on the spinal cord or nerves, some residual symptoms may persist due to nerve damage that occurred prior to surgery. The numbness in your hands and feet, as well as the pain in your neck and shoulder, could be related to nerve regeneration, which can take time.
6. Future Considerations: If your symptoms do not improve or worsen, it may be worthwhile to seek a second opinion from a neurosurgeon or a specialist in spinal disorders. They can provide further insights into your condition and potential treatment options. Additionally, exploring resources such as academic journals or reputable medical websites may provide more information on cervical vascular malformations and their long-term management.
In summary, while your post-surgery symptoms can be distressing, they are not uncommon. Continued rehabilitation, adherence to medication, and regular follow-ups with your healthcare providers are essential for optimizing your recovery. It is important to remain hopeful and proactive in your treatment plan, as many patients experience significant improvements over time.
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