Crohn's disease
Hello Dr.
Jian: My husband is American and has a rare disease called Crohn's disease.
I would like to ask you, if he needs a doctor, where can we find help? My husband and I live in Taoyuan County.
anniesmith, 20~29 year old female. Ask Date: 2005/01/27
Dr. Jian Yingxiu reply Rare Disease
Please consult a gastroenterologist at a medical center.
Reply Date: 2005/01/27
More Info
Dear Mrs. Smith,
Thank you for reaching out regarding your husband's condition. Crohn's disease is indeed a complex and chronic inflammatory bowel disease (IBD) that requires specialized care. It can lead to a variety of symptoms, including abdominal pain, severe diarrhea, fatigue, weight loss, and malnutrition. Given its nature, ongoing management and treatment from a knowledgeable healthcare provider are essential for maintaining quality of life.
In Taoyuan County, there are several healthcare facilities and specialists who can assist with Crohn's disease. As mentioned in the previous correspondence, Dr. Ming-Yao Su at Chang Gung Memorial Hospital is a well-regarded gastroenterologist specializing in inflammatory bowel diseases, including Crohn's disease. This hospital is one of the largest and most comprehensive medical centers in Taiwan, equipped with advanced diagnostic tools and treatment options.
Additionally, you may consider visiting National Taiwan University Hospital, where Professor Cheng-Yi Wang is known for his expertise in this area. Both of these institutions have a reputation for providing high-quality care and are familiar with the latest treatment protocols for Crohn's disease.
When you visit these specialists, it is crucial to bring any previous medical records, including colonoscopy reports, laboratory results, and any medications your husband is currently taking. This information will help the doctors understand his medical history and tailor a treatment plan that suits his specific needs.
In terms of treatment, Crohn's disease management often involves a combination of medication, dietary changes, and sometimes surgery. Medications may include anti-inflammatory drugs, immune system suppressors, antibiotics, and biologics that target specific pathways in the inflammatory process. Nutritional support is also vital, as patients may struggle with malabsorption and nutritional deficiencies due to the disease.
It's also important to establish a good communication line with the healthcare team. Regular follow-ups are necessary to monitor the disease's progression and adjust treatment as needed. Patients with Crohn's disease may experience flare-ups and remissions, so having a proactive approach to managing symptoms is essential.
In addition to medical treatment, support groups and counseling can be beneficial for both patients and their families. Living with a chronic illness can be challenging, and having a support network can provide emotional relief and practical advice.
If you need further assistance in scheduling appointments or navigating the healthcare system in Taiwan, consider reaching out to local patient advocacy groups or organizations that focus on IBD. They can provide additional resources and support tailored to your husband's needs.
I hope this information helps you and your husband find the care he needs. Please feel free to reach out if you have any more questions or need further assistance.
Best regards,
Doctor Q&A Teams
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