Ichthyosis: Myths, Treatments, and Personal Experiences

Ichthyosis

I am a patient with hereditary ichthyosis.
I found this statement on Yahoo Knowledge (You can also try an old method: first, poke the ichthyosis until it bleeds, then mix lime and borax with water, apply it, wait for ten minutes, and then scrape it off.
Although it is very painful, this method makes the ichthyosis disappear, and sometimes people in my family have been cured using this method).
Is it worth trying? Is there a chance of a cure?

Oldfox, 10~19 year old female. Ask Date: 2005/07/16

Dr. Hou Jiawei reply Rare Disease

The symptoms of ichthyosis can range from dry itching to ichthyosis-like erythroderma.
The aforementioned methods are home remedies that only provide temporary desquamation effects and are prone to infection, and are not recommended for use.
Currently, the treatment goal for ichthyosis focuses on skin care, which requires careful selection of less irritating cleansers.
The use of moisturizers is essential to control skin cracking and prevent infections.
In cases with more severe keratinization, the active use of alpha hydroxy acids, such as lactic acid ointment (5%), citric acid ointment (5%), or ammonium lactate lotion (12%), applied multiple times daily can be beneficial.
Due to the widespread nature of ichthyosis on the body, caution should be exercised regarding systemic reactions that may lead to metabolic acidosis and milder adverse reactions such as dermatitis when using treatments like alpha hydroxy acids.

Reply Date: 2005/07/16

More Info

Ichthyosis is a group of genetic skin disorders characterized by dry, scaly skin. The most common form is ichthyosis vulgaris, which is often inherited and can vary in severity. It is important to understand that ichthyosis is a chronic condition; while there are treatments available to manage symptoms, there is currently no cure.

The method you mentioned, involving puncturing the skin to the point of bleeding and applying a mixture of lime and borax, is not a medically recognized treatment for ichthyosis and could be harmful. This approach could lead to skin infections, scarring, and further complications. The skin barrier in individuals with ichthyosis is already compromised, and introducing injury or irritation can exacerbate the condition rather than alleviate it.

Instead, the management of ichthyosis typically involves the following:
1. Moisturizers: Regular application of emollients and moisturizers is crucial. These products help to hydrate the skin and reduce scaling. Look for creams or ointments that contain ingredients like urea, lactic acid, or glycerin, which can help to soften and exfoliate the skin.

2. Exfoliating Agents: Topical treatments that contain alpha-hydroxy acids (AHAs) or beta-hydroxy acids (BHAs) can help to remove dead skin cells and improve the texture of the skin. These should be used under the guidance of a healthcare provider.

3. Retinoids: In some cases, dermatologists may prescribe topical retinoids, which can help to normalize skin cell turnover and reduce scaling. However, these should be used with caution, as they can cause irritation.

4. Bathing Practices: Regular bathing in lukewarm water can help to hydrate the skin. Adding bath oils or oatmeal can also be beneficial. It is important to avoid hot water and harsh soaps, as they can strip the skin of its natural oils.

5. Sun Protection: Individuals with ichthyosis may be more susceptible to sunburn. Using broad-spectrum sunscreen and protective clothing is essential when spending time outdoors.

6. Consultation with a Dermatologist: It is crucial to work with a dermatologist who can provide personalized treatment options based on the severity of your condition and your specific needs. They can help monitor your skin and adjust treatments as necessary.

Regarding the possibility of "curing" ichthyosis, it is important to set realistic expectations. While treatments can significantly improve the appearance and comfort of the skin, they do not eliminate the underlying genetic cause of the condition. Many individuals with ichthyosis find that with consistent care, they can manage their symptoms effectively and lead fulfilling lives.

In conclusion, while it may be tempting to try unverified home remedies, it is essential to prioritize safe and effective treatments. Always consult with a healthcare professional before attempting new treatments, especially those that involve invasive procedures or potentially harmful substances. Your skin health is important, and there are proven methods to help manage ichthyosis effectively.

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