Endometriosis: Treatment Options and Post-Surgery Pain Management - Obstetrics and Gynecology

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Endometriosis


Hello Doctor, I am 29 years old and have been experiencing dysmenorrhea.
I have been taking medication for nearly a year, including a treatment called Theragyn for over a month, which resulted in side effects such as frequent, unexplained leg cramps.
The doctor mentioned that this is similar to postmenopausal osteoporosis.
I then switched to birth control pills, but they were ineffective.
I later tried progesterone, which had limited results.
The doctor suggested a minor surgery to perform uterine artery embolization, which could alleviate some pain and reduce menstrual flow.
I underwent laparoscopic surgery on June 6, and the doctor showed me pictures, explaining that there were adhesions, endometriosis fluid, and that my intestines were adhered to my uterus, among other issues.
They addressed these problems during the surgery.
However, when my period came on June 24, I was still in excruciating pain and had continuous diarrhea, with menstrual flow remaining about the same as before, which was already moderate.
I had to resort to painkillers, but after taking them frequently, their effectiveness seemed to diminish compared to when I first started.
During my follow-up appointment on July 3, the doctor performed an ultrasound and said that the blood vessels should be tied off, but the pain could be caused by issues that have penetrated into or adhered to the uterus.
I would like to know why there has been no improvement after the surgery.
Are there other treatment options available, or is a complete hysterectomy the only solution? Thank you.

jj, 20~29 year old female. Ask Date: 2001/07/04

Dr. Wei Fumao reply Obstetrics and Gynecology


It is generally recommended to take the medication for more than three months to observe the menstrual cycle in July.

Reply Date: 2001/07/04

More Info


Endometriosis is a complex and often painful condition where tissue similar to the lining inside the uterus, known as the endometrium, grows outside the uterus. This can lead to a variety of symptoms, including severe menstrual pain, chronic pelvic pain, and gastrointestinal issues, as you have experienced. Your case highlights the challenges many women face when dealing with endometriosis, especially when initial treatments, including medication and surgery, do not provide the expected relief.

After undergoing laparoscopic surgery to address your endometriosis, adhesions, and other complications, it is understandably frustrating to still experience significant pain and discomfort. The persistence of symptoms post-surgery can be attributed to several factors. First, endometriosis can be a chronic condition, and while surgery can remove visible lesions, it may not eliminate all endometrial tissue or address underlying inflammation. Additionally, the healing process after surgery can also contribute to pain, as the body adjusts and recovers from the procedure.

In terms of treatment options, there are several avenues you might consider:
1. Pain Management: Since you mentioned that pain medications have become less effective over time, it may be beneficial to discuss alternative pain management strategies with your healthcare provider. This could include different classes of pain relievers, such as nonsteroidal anti-inflammatory drugs (NSAIDs), or even adjunct therapies like physical therapy, acupuncture, or cognitive behavioral therapy to help manage chronic pain.

2. Hormonal Treatments: Hormonal therapies can be effective in managing endometriosis symptoms. If the birth control pills and progesterone you have tried did not yield satisfactory results, you might discuss other hormonal options, such as GnRH agonists (like leuprolide) or hormonal IUDs, which can help reduce menstrual flow and alleviate pain.

3. Diet and Lifestyle Changes: Some women find relief through dietary modifications, such as reducing inflammatory foods, increasing omega-3 fatty acids, and maintaining a balanced diet rich in fruits and vegetables. Regular exercise and stress management techniques, such as yoga or meditation, can also play a role in managing symptoms.

4. Second Opinion: Given the complexity of your case and the ongoing pain, seeking a second opinion from another specialist in endometriosis may provide new insights or alternative treatment options. Different surgeons may have varying approaches to managing endometriosis and could suggest additional surgical options or therapies.

5. Surgical Options: If all else fails and your quality of life is significantly impacted, discussing the possibility of a hysterectomy (removal of the uterus) with your doctor may be warranted. This is typically considered a last resort, especially for women who wish to retain their fertility, but it can provide relief for those with severe endometriosis.

6. Support Groups and Counseling: Connecting with others who have endometriosis can provide emotional support and practical advice. Support groups can be a valuable resource for sharing experiences and coping strategies.

In conclusion, while it can be disheartening to experience ongoing pain after surgery for endometriosis, there are multiple avenues to explore for further treatment and management. Open communication with your healthcare provider about your symptoms and concerns is crucial in finding the most effective approach for your situation. Remember, you are not alone in this journey, and there are resources and support available to help you navigate the challenges of endometriosis.

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