Heart Defects in Children: Growth and Treatment Insights - Pediatrics

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A heart defect can affect development?


Hello Dr.
Wang,
My daughter is one year and seven months old, currently weighing around 8.5 to 9 kilograms.
She was diagnosed with a heart defect at birth, which requires her to have check-ups every six months.
After our visit to the hospital yesterday, I began to have many questions.
For instance, during the first examination, the defect measured 3mm, and during the second examination, it measured 4.5mm.
According to the current doctor, due to the heart defect, my daughter's development is slower, and her weight is lighter.
The best solution suggested is surgical treatment, which would allow for more normal development.
However, all other heart functions are normal, so we can wait until she is 4 to 5 years old for the surgery.

P.S.
The same physician has been overseeing her care throughout this period.
1.
Why do the results of the first examination differ from those of the second?
2.
My daughter tends to cry and be restless during examinations; will this affect the accuracy of the results?
3.
Why has the heart defect increased in size as she has grown older?
4.
Why do some children’s heart defects resolve on their own while others do not?
5.
Are there better treatment options available with current medical technology?
6.
If surgery is performed, will there be any long-term complications?
7.
What causes some children to have heart defects?
8.
Are there any medications available to treat or manage this condition?
9.
Given my daughter's situation, are there specific dietary or caregiving considerations we should be aware of?
10.
Can you provide more detailed information or resources regarding this matter?
Note: We have been living in Indonesia for a long time, so the examination results I provided were from a local hospital here.
I also have concerns about whether the medical standards and technology in Indonesia truly address patients' issues.
This has been a source of ongoing worry for me, so I would greatly appreciate it if you could address my concerns.
Thank you very much.

A He Zai, 30~39 year old female. Ask Date: 2006/11/23

Dr. Wang Jiayi reply Pediatrics


Hello, Ah He: It seems that you care deeply for your child.
Your questions should be answered by a trusted pediatric cardiologist who can provide regular follow-up.
Different opinions from various doctors may only add to your concerns.
There are some good reference materials available regarding pediatric heart diseases (including atrial septal defects, ventricular septal defects, etc.).
Please also contact the Children's Heart Disease Foundation of the Republic of China.
The foundation's website is http://www.ccft.org.tw/index01.htm and their phone number is 02-23319494.
The pediatric department at Hualien Hospital is here to support you.

Reply Date: 2006/11/23

More Info


Understanding heart defects in children, particularly conditions like ventricular septal defects (VSD), is crucial for parents navigating their child's health. Your concerns about your daughter’s heart defect and its implications for her growth and development are valid and shared by many parents in similar situations.
1. Variability in Measurements: The difference in measurements of the heart defect (3mm to 4.5mm) can be attributed to several factors. First, the size of the defect can change as the child grows; the heart and surrounding structures develop, which can affect the perceived size of the defect during echocardiograms. Additionally, variations in the imaging technique, the child's position during the exam, and even the operator's experience can lead to different measurements.

2. Impact of Anxiety on Results: It is common for young children to feel anxious during medical examinations, which can affect their heart rate and overall demeanor. However, while crying and distress can lead to temporary changes in heart rate, they typically do not significantly impact the structural findings of an echocardiogram. The doctor will account for these factors when interpreting the results.

3. Growth of the Defect: As children grow, the heart and its components grow as well. Sometimes, a defect may appear to enlarge because the surrounding heart structures are developing at a different rate. In some cases, the hemodynamic changes associated with growth can also lead to changes in the defect's size.

4. Spontaneous Closure: Some children with VSDs experience spontaneous closure of the defect as they grow. This is more likely with smaller defects, as the heart's natural growth can lead to the edges of the defect coming together. However, larger defects or those with significant blood flow may not close on their own, necessitating surgical intervention.

5. Current Treatment Options: Surgical intervention is often the most effective treatment for significant VSDs, especially if they are causing symptoms or affecting growth. Advances in minimally invasive techniques have improved outcomes and reduced recovery times. However, the decision to operate is typically based on the defect's size, the child's overall health, and the presence of symptoms.

6. Potential Surgical Risks: Like any surgery, there are risks associated with heart surgery, including infection, bleeding, and complications related to anesthesia. Long-term risks can include arrhythmias or issues with heart function, but many children go on to lead healthy lives post-surgery.

7. Causes of Heart Defects: The exact cause of congenital heart defects like VSD is often unknown. They can result from genetic factors, environmental influences during pregnancy, or a combination of both. Family history can play a role, but many children with heart defects have no known family history.

8. Medications: There are no specific medications to "cure" VSDs, but some medications can help manage symptoms or complications, such as diuretics for heart failure or antibiotics to prevent endocarditis.
9. Dietary and Care Considerations: While there are no strict dietary restrictions for children with VSDs, ensuring a balanced diet rich in nutrients can support overall health and growth. Regular follow-ups with a pediatric cardiologist are essential to monitor heart function and growth.

10. Further Information: For more detailed information, consider reaching out to reputable organizations such as the American Heart Association or local pediatric cardiology centers. They often provide resources and support for families dealing with congenital heart defects.

In conclusion, while your daughter's heart defect may pose challenges, many children with VSDs grow up healthy and active, especially with proper medical care and monitoring. Regular check-ups with a trusted pediatric cardiologist will be key in managing her condition and ensuring her healthy development.

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