I suspect that I have mad cow disease (Creutzfeldt-Jakob disease)?
Two weeks ago, after having Japanese barbecue with my girlfriend, I have experienced headaches for a whole week, along with temporary memory loss, where I forget what I did earlier in the day without any recollection.
My head hurts a lot, and during the barbecue, I particularly enjoyed eating beef from various cuts.
I am concerned that I might have contracted Creutzfeldt-Jakob disease (CJD).
I would like to ask the doctor: 1.
If I need to undergo tests, what kind of tests should I consider? I have heard that X-rays are not very helpful in diagnosing CJD.
2.
If I need to do an electroencephalogram (EEG), does health insurance cover part of the cost? If not, how much would it be? 3.
I live in the Kaohsiung-Pingtung area; could you recommend any specialists or hospitals related to CJD in that region? Thank you.
Zhang Tongxue, 20~29 year old female. Ask Date: 2008/07/05
Dr. Chen Shunsheng reply Rare Disease
The new variant of Creutzfeldt-Jakob disease associated with mad cow disease has an incubation period of three to seven years.
Symptoms occurring for a week after consuming barbecued food are unrelated to the new variant of Creutzfeldt-Jakob disease and do not resemble it.
Symptoms such as headaches and temporary memory loss should indeed be evaluated by a neurologist.
Please make an appointment with the Neurology Department at Chang Gung Memorial Hospital in Kaohsiung.
Reply Date: 2008/07/05
More Info
Mad Cow Disease, also known as Bovine Spongiform Encephalopathy (BSE), is a neurodegenerative disease that affects cattle and can be transmitted to humans in the form of variant Creutzfeldt-Jakob Disease (vCJD). Your concerns about experiencing headaches and temporary memory loss after consuming beef are understandable, especially given the serious nature of these conditions. However, it’s important to note that the likelihood of contracting vCJD from eating beef is extremely low, particularly in countries where stringent regulations are in place regarding cattle feed and meat processing.
Symptoms of vCJD
The symptoms of variant Creutzfeldt-Jakob Disease typically include:
- Psychiatric Symptoms: Depression, anxiety, and behavioral changes.
- Neurological Symptoms: Memory loss, confusion, and difficulty with coordination and balance.
- Physical Symptoms: Severe headaches, visual disturbances, and muscle stiffness.
The symptoms you are experiencing, such as headaches and temporary memory loss, can be attributed to a variety of causes, including stress, anxiety, or even other neurological conditions. It is crucial to consult a healthcare professional for a proper evaluation.
Recommended Tests
1. MRI (Magnetic Resonance Imaging): This is the most commonly used imaging test for diagnosing vCJD. It can help identify characteristic changes in the brain.
2. EEG (Electroencephalogram): While not definitive for diagnosing vCJD, an EEG can show abnormal brain activity that may support a diagnosis.
3. Lumbar Puncture: This test can analyze cerebrospinal fluid for certain proteins associated with prion diseases, although it is not routinely performed for vCJD.
X-rays are indeed not useful for diagnosing vCJD, as they do not provide information about brain tissue.
Costs and Insurance Coverage
Regarding the EEG, coverage can vary by insurance provider. In the U.S., the cost of an EEG can range from $200 to $1,000, depending on the facility and whether you have insurance. It’s advisable to check with your insurance provider about coverage for diagnostic tests related to neurological symptoms.
Specialist Recommendations
In the Kaohsiung-Pingtung area, you may want to consult with a neurologist who specializes in neurodegenerative diseases. Hospitals such as Kaohsiung Medical University Hospital or Chang Gung Memorial Hospital in Kaohsiung have neurology departments that can provide comprehensive evaluations and testing.
Conclusion
While your symptoms are concerning, they are not definitive indicators of vCJD. It is essential to seek medical attention promptly to rule out other potential causes and receive appropriate care. A thorough evaluation by a neurologist will help determine the next steps, including necessary tests and treatments. Remember, early intervention is key in managing any health concerns effectively.
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