Eligibility for Major Illness Card with Rare Disease List

Rare Disease List Summary Table

Hello, may I ask if the rare disease list announced by the Department of Health includes item number 68, Wilms' tumor, aniridia, genital abnormalities, and intellectual disability syndrome (WAGR syndrome)? Can one apply for a major illness card if they meet any one of these conditions, or do they need to have all four (Wilms' tumor, aniridia, genital abnormalities, and intellectual disability syndrome) to qualify for the major illness card?

Xiao Wei, 20~29 year old female. Ask Date: 2009/01/12

Dr. Jian Yingxiu reply Rare Disease

To apply for this major illness card, one must meet the criteria for WAGR syndrome.
Some patients may not exhibit all clinical features, which include Wilms tumor, aniridia, genital abnormalities, and intellectual disability.
Therefore, the diagnostic method relies on molecular testing, specifically showing a deletion at chromosome 11p13.
Please discuss the diagnostic methods and subsequent assistance with your physician.
Thank you.

Reply Date: 2009/01/12

More Info

To understand the eligibility for the Major Illness Card concerning the WAGR syndrome (Wilms tumor, Aniridia, Genitourinary abnormalities, and Range of developmental delays), it is essential to clarify the criteria set forth by health authorities regarding rare diseases and their associated benefits.

The WAGR syndrome is a genetic condition that encompasses a spectrum of symptoms, including Wilms tumor (a type of kidney cancer), aniridia (absence of the iris in the eye), genitourinary abnormalities, and intellectual disability. Each of these components can significantly impact the individual's health and quality of life, and they are recognized as serious medical conditions.

According to the guidelines typically established by health departments, the eligibility for the Major Illness Card often depends on the specific criteria outlined for each rare disease listed. In the case of WAGR syndrome, it is generally understood that having any one of the conditions associated with the syndrome may qualify an individual for the Major Illness Card. Therefore, if a patient has Wilms tumor, for instance, they may be eligible for the card even if they do not exhibit the other symptoms of the syndrome.

However, it is crucial to consult the specific regulations and guidelines provided by the health authority in your region, as these can vary. Some health departments may require documentation or confirmation of the diagnosis from a healthcare provider, and they may have specific forms or applications that need to be completed.
In summary, if you or someone you know has been diagnosed with any one of the components of WAGR syndrome, it is advisable to apply for the Major Illness Card. The application should include all relevant medical documentation that supports the diagnosis. If there are any uncertainties regarding eligibility, contacting the health department directly or consulting with a healthcare provider can provide clarity and guidance on the application process.

Additionally, it is important to note that the Major Illness Card can provide various benefits, including access to specialized medical care, financial assistance for treatments, and other support services that can significantly alleviate the burden of managing a rare disease. Therefore, pursuing this application can be a beneficial step for individuals affected by WAGR syndrome or any of its components.

Similar Q&A

How to Apply for Major Illness Card for Rare Diseases

How to apply for a major illness card for rare diseases.

Dr. Lin Xiujuan reply Rare Disease
Please have a specialist physician issue a medical certificate, which can be submitted to the National Health Insurance Administration within 30 days.

Can You Get a Major Illness Card with Sjögren's Syndrome?

Hello, doctor. I would like to ask if a confirmed diagnosis of Sjögren's syndrome (dry syndrome) is sufficient to obtain a major illness card, or if the application might be denied due to milder symptoms. Thank you.

Dr. Gao Jiankai reply Internal Medicine
Hello, thank you for your inquiry. To apply for a major illness card from the National Health Insurance Administration, certain criteria must be met. Your physician will assist you in the application based on the results of your current tests for Sjögren's syndrome, but the ...

Reevaluating Major Mental Health Diagnoses: Autism and Trauma Insights

1. Should the diagnosis for the Major Disability Card and Disability Handbook be corrected? What are the advantages and disadvantages? 2. What are the similar manifestations or symptoms of Schizophrenia, Autism, and Borderline Personality Disorder?

Dr. Wu Menghuan reply Psychiatry
Hello, (1) Major Illness Card: The Major Illness Card is issued by the Ministry of Health and Welfare's National Health Insurance Administration, which exempts holders from certain out-of-pocket medical expenses under the National Health Insurance. The diagnosis must meet ...

Can My Sister Apply for a Major Illness Card Due to Mental Health Issues?

Hello Dr. Chou: My sister is 31 years old and has previously been diagnosed with suspected depression by a psychiatrist. Recently, she secretly signed contracts for three properties with three different real estate agencies within a month, paying over 600,000 NTD in deposits. Sin...

Dr. Zhou Sunyuan reply Psychiatry
Your question is viewed as follows: Your sister has a past diagnosis of suspected depression. Now, she is exhibiting behavior involving significant financial expenditures. To understand whether your sister's behavior is related to a psychiatric diagnosis, it is essential to ...