Ankylosing Spondylitis: Managing Pain and Sleep Issues - Orthopedics

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Ankylosing Spondylitis


I have been suffering from ankylosing spondylitis for 15 years.
Currently, I am taking anti-inflammatory and muscle relaxant medications at the Immunology and Rheumatology Department of Taipei Veterans General Hospital.
Two weeks ago, I suddenly experienced sharp pain (or spasms) in my lower back while sleeping, which has prevented me from falling asleep.
When lying flat, it feels like my spinal cord is being compressed, making my entire back very sensitive.
Any touch to my back causes unbearable pain.
On average, I can only sleep for 2 to 3 hours before waking up to use the restroom, but getting up is very difficult due to severe back pain.
As a result, I am unable to sleep well at night, leading to daytime drowsiness at work.

I am still taking my medications, but they do not seem to help.
Should I consider seeing a different specialist? 1.
Is it tendonitis? 2.
Is it muscle atrophy? 3.
Is there swelling in the joints? 4.
Are there issues with my kidneys or liver? I would greatly appreciate your response.
Thank you very much.

A Chao, 30~39 year old female. Ask Date: 2010/01/24

Dr. Shi Qiming reply Orthopedics


Ankylosing spondylitis is a chronic long-term disease that affects various parts of the body, particularly the spine and joints.
The pathology occurs due to the adhesion between the joints, leading to a gradual loss of mobility and resulting in stiffness.
Additionally, decreased physical activity can lead to muscle atrophy, causing joint pain.
Besides medication, long-term swimming exercises are recommended as they can be very beneficial.

Reply Date: 2010/01/24

More Info


Ankylosing Spondylitis (AS) is a chronic inflammatory disease primarily affecting the spine and the sacroiliac joints, leading to pain and stiffness. Managing pain and sleep disturbances associated with AS can be particularly challenging, as you've described. Let's break down your concerns and explore potential solutions.


Understanding Your Symptoms
1. Pain and Sleep Disturbances: The pain you experience in your lower back, especially during sleep, could be attributed to inflammation in the spinal joints or surrounding tissues. This inflammation can lead to muscle spasms, which may explain the "cramping" sensation you feel at night. The sensitivity of your back when lying down suggests that your body is reacting to the inflammation, making it difficult to find a comfortable sleeping position.

2. Frequent Urination: Waking up multiple times to use the restroom can be a result of various factors, including medications, fluid intake before bed, or even the discomfort from your back pain, which may make you feel the need to relieve yourself more frequently.

3. Daytime Fatigue: The lack of quality sleep can lead to daytime fatigue, which is common among individuals with chronic pain conditions. This can affect your concentration and overall productivity at work.


Potential Causes of Your Symptoms
1. Tendinitis or Muscle Spasms: The pain you describe could be related to tendinitis or muscle spasms in the back muscles due to the underlying inflammation from AS.
2. Joint Swelling: Inflammation can also lead to swelling in the joints, which might contribute to your discomfort when lying down.

3. Organ Issues: While it’s less common, severe inflammation can sometimes affect other organs. However, if you have not experienced other symptoms (like changes in urination, jaundice, or significant fatigue), it may be less likely that your kidneys or liver are directly involved.


Recommendations for Management
1. Medication Review: Since you are currently on anti-inflammatory and muscle relaxant medications, it may be beneficial to discuss with your rheumatologist whether your current regimen is adequate or if adjustments are needed. Sometimes, medications like NSAIDs (non-steroidal anti-inflammatory drugs) or biologics can provide better control of inflammation and pain.

2. Physical Therapy: Engaging in physical therapy can help improve your flexibility and strengthen the muscles around your spine, which may alleviate some of the pain and discomfort. A physical therapist can also provide guidance on proper sleeping positions and exercises that can be beneficial.

3. Sleep Hygiene: Improving your sleep environment and habits can also help. Consider using a firm mattress and pillows that support your spine's natural curvature. Establishing a bedtime routine that promotes relaxation, such as gentle stretching or meditation, may also be beneficial.

4. Consulting Other Specialists: If your symptoms persist despite medication adjustments, consider consulting a pain management specialist or a sleep specialist. They can offer additional strategies, including cognitive behavioral therapy for insomnia (CBT-I) or other interventions tailored to your needs.

5. Monitoring Symptoms: Keep a detailed log of your symptoms, including pain levels, sleep quality, and any other relevant factors. This information can be invaluable for your healthcare team in determining the best course of action.


Conclusion
Managing Ankylosing Spondylitis, particularly with associated pain and sleep disturbances, requires a comprehensive approach. By working closely with your healthcare providers, including rheumatologists, physical therapists, and possibly sleep specialists, you can develop a tailored plan that addresses both your pain and sleep issues. Remember, it’s essential to communicate openly with your healthcare team about your symptoms and any changes you experience. This collaboration can lead to more effective management strategies and ultimately improve your quality of life.

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