Bilateral Renal Cysts: Concerns and Management Options - Internal Medicine

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Bilateral renal cysts?


Hello, Doctor.
Around May, I underwent a health check-up due to frequent feelings of dizziness and lack of energy.
An abdominal ultrasound revealed "bilateral renal cysts" and a "right lobe liver mass." Initially, my family medicine physician mentioned that the renal cysts were not a major concern, so I decided to visit a gastroenterology clinic for further evaluation.
The results from a CT scan indicated that there were no significant issues with my liver, but the doctor informed me that "both of my kidneys are filled with various sizes of cysts," causing them to be enlarged.
(The doctor mentioned that typically, people have at most 1 or 2 cysts, but I have almost all of mine filled.) He said my condition is more severe.
When I asked the doctor why this is happening, he explained that it is a matter of my constitution and advised me to have an ultrasound follow-up once a year.
He mentioned that this condition is not treatable.

I would like to ask the following:
1.
During my initial health check-up, my blood tests showed normal kidney function, but the urinalysis indicated the presence of proteinuria (±1).
How should I manage my kidney health?
2.
Should I schedule an appointment with a nephrologist?
3.
Are there specific dietary considerations I need to be aware of?
4.
How often should I have follow-up examinations?
Seeing so many cysts has frightened me, and I am worried about the possibility of needing dialysis in the near future...
I am only in my twenties, and I am truly fearful about this.
I hope you can provide me with some advice.
Thank you, Doctor!

tesuia, 20~29 year old female. Ask Date: 2011/06/27

Dr. Wu Jiyu reply Internal Medicine


Dear Tesuia: Based on your description (both kidneys are filled with various sizes of cysts), it is possible that you have "hereditary polycystic kidney disease." Fortunately, your blood test results for kidney function are normal, and the urine protein test is (±) pending re-evaluation (cysts do not necessarily indicate the presence of urine protein).

1.
How should I manage my kidney health?
Answer: It is advisable to consult a nephrologist for follow-up tests (blood tests, urine tests, and ultrasound).
If it is confirmed to be "hereditary polycystic kidney disease," you will need to have regular monitoring.
2.
Do I need to schedule another appointment with a nephrology clinic?
Answer: Yes, you should see a nephrologist for follow-up (blood tests, urine tests, and ultrasound).
3.
How often should I have follow-up examinations?
Answer: If initial results are normal, follow-up examinations every six months are recommended.
4.
Are there dietary considerations I need to be aware of?
Answer: Yes, you should follow a low-sodium, low-fat, and low-protein diet, and monitor your blood pressure to ensure it remains normal.
Thank you for your inquiry.
Changhua Hospital cares about your health.

Reply Date: 2011/06/27

More Info


Understanding bilateral renal cysts can be quite concerning, especially when you are experiencing symptoms such as dizziness and fatigue. It’s important to approach this situation with a clear understanding of what renal cysts are, their implications, and the management options available.


1. Nature of Renal Cysts
Renal cysts are fluid-filled sacs that can form in the kidneys. They are quite common, especially in older adults, and most are benign. However, the presence of multiple cysts, especially if they are numerous and large, can indicate a condition known as Polycystic Kidney Disease (PKD), which is a genetic disorder characterized by the growth of numerous cysts in the kidneys. In your case, the ultrasound and CT scan findings suggest that you have multiple cysts, which may require monitoring.


2. Management and Follow-Up
Given that your kidney function tests are normal, and you have only trace amounts of protein in your urine, it is a positive sign. However, the presence of proteinuria (even in small amounts) can indicate that the kidneys are under some stress. Here are some recommendations for managing your condition:
- Regular Monitoring: Since your doctor has advised annual follow-ups with ultrasound, it is crucial to adhere to this schedule. Regular monitoring will help track any changes in the size or number of cysts and assess kidney function over time.

- Consult a Nephrologist: It would be beneficial to schedule an appointment with a nephrologist (kidney specialist). They can provide a more in-depth evaluation of your renal health and offer tailored advice based on your specific situation.


3. Dietary Considerations
While there is no specific diet that can eliminate renal cysts, maintaining a healthy lifestyle can help support kidney function:
- Stay Hydrated: Drinking plenty of water can help your kidneys function properly and may help reduce the risk of complications.

- Limit Sodium Intake: Reducing salt in your diet can help manage blood pressure, which is crucial for kidney health.

- Balanced Diet: Focus on a diet rich in fruits, vegetables, whole grains, and lean proteins. Avoid excessive protein intake, as it can put additional strain on the kidneys.


4. Concerns About Progression to Dialysis
It’s understandable to feel anxious about the possibility of needing dialysis, especially at a young age. However, many individuals with renal cysts live normal lives without significant complications. The key is to monitor kidney function regularly and manage any risk factors, such as hypertension or diabetes, that could affect kidney health.


5. Additional Considerations
- Symptoms to Watch For: Be vigilant for any new symptoms such as increased blood pressure, changes in urination, or worsening fatigue. If you experience any of these, seek medical attention promptly.

- Genetic Counseling: If there is a family history of kidney disease, consider genetic counseling to understand your risk and the implications for family members.

In summary, while the presence of bilateral renal cysts can be concerning, with proper monitoring and lifestyle adjustments, many individuals manage their condition effectively. Regular follow-ups with your healthcare provider and a nephrologist will be essential in ensuring your kidneys remain healthy. Remember, you are not alone in this, and there are resources and support available to help you navigate your health concerns.

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