Could I Have Interstitial Cystitis? My Frequent Urination - Urology

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Do I have a possibility of interstitial cystitis?


I would like to ask if I might have interstitial cystitis, as I've been struggling with frequent urination for a long time...
since high school, actually! I have had issues with frequent urination, but after visiting a gynecologist and taking medication, there was some improvement, although it seems to have relapsed afterward...
many times.
Now, as a junior in college, I am still experiencing frequent urination.
I have suspected that I might have interstitial cystitis because some of my symptoms are similar.
I frequently feel the urge to urinate, and even after urinating, I still feel the need to go again, but the volume is small.
When I try to hold it in, I feel discomfort, like a bloated sensation, and sometimes I feel nauseous.
Occasionally, my abdomen feels warm.
Recently, I visited a large hospital, and during the initial urine test, I can't remember if there was an infection, but the doctor prescribed me medication for five days, which included a bladder relaxant and medication to help with frequent urination.
However, after finishing the five days (I took it on schedule), my condition did not improve.
When I returned for a follow-up, the doctor told me that I had no issues and suggested that my frequent urination might be due to stress, advising me that it's okay to hold my urine (but I feel uncomfortable when I do, and after holding it for a while, I feel the urge to go).
I don't feel like I have much stress, so how could it be stress-related frequent urination? I mentioned my suspicion of interstitial cystitis to the doctor, but he said that at my young age (I'm currently 20), the likelihood is very low.
I wanted to undergo cystoscopy, but the doctor said it could be harmful and unnecessary.
However, I want to have a cystoscopy to check for interstitial cystitis...
at least to have some peace of mind! What should I do now? (Since I have seen many doctors without improvement, I suspect it might be interstitial cystitis.)

Mei, 20~29 year old female. Ask Date: 2011/12/07

Dr. Xu Weikai reply Urology


Mei: Hello, interstitial cystitis refers to a very specific type of chronic bladder inflammation, the cause of which is currently unknown, although it may be related to viral infections.
It is clinically very rare.
A characteristic feature is a significantly reduced bladder capacity.
Other symptoms include frequent urination and pelvic pain.
To diagnose it, a cystoscopy along with a bladder biopsy (which involves taking a small piece of bladder tissue for examination) is necessary for confirmation.
A cystoscopy alone cannot provide a definitive diagnosis.
Your symptoms resemble chronic cystitis, but it cannot be confirmed whether it is interstitial cystitis.
Recommendations: 1.
Drink plenty of plain water daily, at least 3000 cc, and maintain a daily urine output of over 1200 cc.
2.
Keep a record of your urination and fluid intake, noting the time and amount of water consumed and the time and amount of urine produced for at least 7 days.
Bring this record to your urology appointment.
3.
Gradually increase the volume of each urination; if you experience pelvic pain, you can use a heating pad on your lower abdomen to alleviate it.
It is also advised to gradually extend the time between urinations.
4.
Check your urine weekly to ensure there is no infection.
5.
If there is an infection, address it as soon as possible.
6.
If there is still no improvement, medication treatment may be considered.
7.
You may use a "pelvic floor magnetic therapy device," which can promote circulation in the pelvic area and is effective for urinary difficulties like yours.
(Our hospital has introduced this device; for more details, please refer to our urology department's website.)

Reply Date: 2011/12/07

More Info


Interstitial cystitis (IC), also known as painful bladder syndrome, is a chronic condition characterized by bladder pressure, bladder pain, and sometimes pelvic pain. It can lead to frequent urination, urgency, and discomfort, which can significantly impact quality of life. Given your symptoms and history, it is understandable that you are concerned about the possibility of having IC.

Your experience of frequent urination, the sensation of incomplete bladder emptying, and discomfort when holding urine are indeed symptoms that can be associated with interstitial cystitis. However, it is important to note that these symptoms can also arise from other conditions, such as urinary tract infections (UTIs), bladder infections, or even stress-related issues. The fact that you have experienced some improvement with medication suggests that there may be a treatable underlying cause, but the recurrence of symptoms indicates that further investigation is warranted.

You mentioned that you have seen multiple doctors and have been prescribed medications to help relax the bladder and reduce frequency. While these medications can be effective for some patients, they may not work for everyone, and it is not uncommon for symptoms to persist or recur. The suggestion from your doctor that stress might be contributing to your symptoms is also a valid consideration. Stress can exacerbate many physical conditions, including bladder-related issues, leading to increased urgency and frequency.

Regarding your desire for a cystoscopy, it is a common procedure used to examine the bladder and urethra. While it may seem invasive, it can provide valuable information about the condition of your bladder and help rule out other potential issues, such as infections, bladder stones, or tumors. If your symptoms continue to be bothersome and you feel that your concerns are not being adequately addressed, it may be worth seeking a second opinion from a urologist who specializes in bladder disorders. They may be more open to discussing the possibility of a cystoscopy or other diagnostic tests.

In the meantime, there are several self-care strategies you can consider to help manage your symptoms:
1. Dietary Modifications: Some individuals with IC find that certain foods and beverages can irritate the bladder. Common irritants include caffeine, alcohol, spicy foods, and acidic foods. Keeping a food diary to track your symptoms in relation to what you eat may help identify potential triggers.

2. Bladder Training: This involves gradually increasing the time between bathroom visits to help train your bladder to hold more urine. It may take time, but many patients find this technique helpful.

3. Stress Management: Since stress can exacerbate symptoms, incorporating relaxation techniques such as mindfulness, yoga, or deep breathing exercises may be beneficial.

4. Hydration: Staying well-hydrated can help dilute urine and reduce irritation. However, be mindful of your fluid intake and adjust it based on your symptoms.

5. Physical Therapy: Some patients benefit from pelvic floor physical therapy, which can help address muscle tension and improve bladder function.

Ultimately, it is essential to advocate for your health and communicate openly with your healthcare providers about your concerns. If you feel that your symptoms are not being taken seriously or adequately addressed, seeking a specialist in interstitial cystitis or chronic pelvic pain may provide you with the answers and treatment options you need. Remember, you are not alone in this journey, and many people have successfully managed their symptoms with the right support and treatment.

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