Phyllodes Tumors: Symptoms, Treatment, and Recovery Tips - Surgery

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Liposarcoma


Last July, I returned to my home country from South Africa for a breast examination, which confirmed the presence of several fibromas of varying sizes.
Consequently, I underwent surgery to remove one of the larger tumors from my left breast, which was later confirmed to be a phyllodes tumor through pathology.
However, I haven't had the opportunity to return for a follow-up on the surgical site.
It has shrunk a bit, but the issue is that recently I've been experiencing intermittent sharp pain, sometimes quite severe and frequent.
Lately, the surgical site has been very itchy, and I find myself wanting to scratch it constantly! Seeing a doctor here is expensive, far away, and the language barrier makes it difficult to understand everything.
What should I do? What could be going on?

sandy, 20~29 year old female. Ask Date: 2002/03/11

Dr. Huang Zhihui reply Surgery


Phyllodes tumor is a mesenchymal tissue proliferation that is relatively rare among breast tumors, with both benign and malignant forms.
Therefore, you should consult the surgeon to clarify which type is indicated in the pathology report.
The treatment method typically involves surgical excision of the tumor, but the recurrence rate post-surgery is quite high, approximately 30-44%.
Hence, it is essential to continue follow-up examinations regardless of the situation.
As for the symptoms you mentioned, they may be due to pain from postoperative scarring; however, it is still advisable to return to your physician for further follow-up examinations for safety.

Reply Date: 2002/03/11

More Info


Phyllodes tumors, also known as cystosarcoma phyllodes, are rare fibroepithelial tumors of the breast that can vary significantly in their behavior, ranging from benign to malignant. Understanding the symptoms, treatment options, and recovery tips is crucial for anyone diagnosed with this condition.


Symptoms
Phyllodes tumors often present as palpable masses in the breast. They can grow quickly and may be painless, although some patients report discomfort or pain, especially if the tumor is large or pressing against surrounding tissues. The symptoms you are experiencing, such as pain and itching around the surgical site, could be related to several factors:
1. Post-Surgical Pain: It is common to experience pain after surgery, especially if the tumor was large or if the surgical site is still healing. Pain can also arise from nerve irritation or damage during the procedure.

2. Scar Tissue Formation: As the surgical site heals, scar tissue can form, which may cause discomfort or a pulling sensation. This can sometimes lead to pain or sensitivity in the area.

3. Infection: Although less common, an infection at the surgical site can cause pain, redness, swelling, and itching. If you notice any signs of infection, such as increased redness, warmth, or discharge, it is essential to seek medical attention.

4. Allergic Reaction: Itching could also be a sign of an allergic reaction to the materials used in the surgery, such as sutures or topical ointments.


Treatment Options
The primary treatment for phyllodes tumors is surgical excision. The goal is to remove the tumor with a margin of healthy tissue to reduce the risk of recurrence. In cases where the tumor is malignant or has a higher risk of recurrence, additional treatments such as radiation therapy may be considered, although chemotherapy is not typically effective for these tumors.

Since you mentioned that you had surgery and are experiencing pain and itching, it is crucial to monitor these symptoms. If the pain persists or worsens, or if you develop any new symptoms, it is advisable to consult a healthcare professional. If access to healthcare is challenging due to cost or language barriers, consider the following options:
1. Telemedicine: Many healthcare providers offer telemedicine consultations, which can be a more affordable and convenient way to discuss your symptoms with a doctor.

2. Community Health Services: Look for community health clinics that may offer services on a sliding scale based on income. They often provide care for patients regardless of their ability to pay.

3. Support Groups: Connecting with support groups for breast cancer or phyllodes tumor patients can provide emotional support and practical advice from others who have experienced similar challenges.


Recovery Tips
1. Follow-Up Care: It is essential to have regular follow-up appointments with your healthcare provider to monitor for any signs of recurrence or complications.

2. Pain Management: Over-the-counter pain relievers may help manage discomfort. However, consult with a healthcare provider before taking any medication.

3. Wound Care: Keep the surgical site clean and dry. If you notice any unusual changes, such as increased redness or discharge, seek medical advice.

4. Healthy Lifestyle: Maintaining a balanced diet, staying hydrated, and engaging in light physical activity can support your recovery and overall well-being.

5. Emotional Support: Dealing with a cancer diagnosis and recovery can be emotionally taxing. Consider speaking with a mental health professional or joining a support group to help cope with any anxiety or stress.

In summary, while experiencing pain and itching after surgery can be concerning, it is essential to monitor these symptoms and seek medical advice if they persist or worsen. Understanding your condition and being proactive about your health can significantly impact your recovery and overall quality of life.

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