Endometriosis: Concerns and Best Practices for Young Women

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My girlfriend and I are both 20 years old, and her family has a history of endometriosis.
She used to experience abdominal pain during her menstrual period and ovulation, but recently the pain has become unbearable, so she went to see a doctor who diagnosed her with endometriosis.
She hasn't shared much with me, but I'm really worried about her and hesitant to ask too many questions.
She mentioned that it's in the early stages, so it's not very severe yet.
I asked her if she had any ultrasounds or laparoscopy done, and she said her mom still thinks she is a virgin, so her mom believes those procedures are inappropriate.

I want to know what the best course of action is.
Should she get checked? If so, should we first talk to her mom and explain that we are sexually active, or should we just go ahead with the tests? My main concern is her health; I don't want her condition to worsen to the point where surgery might be necessary.
I'm really worried...
Thank you, doctor.

Xiao Lan, 20~29 year old female. Ask Date: 2002/05/19

Dr. Lin Manying reply Obstetrics and Gynecology

1.
Endometriosis does have a familial tendency (i.e., if a mother, sister, or daughter has the disease, the individual has a sevenfold increased risk of developing it).
If dysmenorrhea worsens in adulthood, it is necessary to visit a hospital for evaluation to differentiate between primary and secondary dysmenorrhea.

2.
The diagnosis of endometriosis includes a detailed menstrual history, pelvic examination (which can be omitted if there has been no sexual intercourse), non-invasive tests (such as ultrasound and blood tests), and invasive procedures (like laparoscopy).
The use of ultrasound and laparoscopy is unrelated to virginity, so please encourage her to bravely seek examination and treatment at the hospital.

Reply Date: 2002/05/19

More Info

Understanding endometriosis, especially in young women, is crucial given its potential impact on health and quality of life. Your concern for your girlfriend is commendable, and it's important to approach this situation with sensitivity and care.

Endometriosis is a condition where tissue similar to the lining of the uterus grows outside the uterus, leading to pain, especially during menstruation. It can also cause other symptoms such as irregular periods, pain during intercourse, and even fertility issues. Given that your girlfriend has a family history of endometriosis, her risk of developing the condition is indeed higher.

Since she has already been diagnosed with early-stage endometriosis, it is essential to monitor her condition closely. The fact that she is experiencing increasing pain is a signal that further evaluation may be necessary. While she mentioned that she hasn't undergone any imaging tests like ultrasounds or invasive procedures like laparoscopy, these are important diagnostic tools that can help assess the extent of the condition. An ultrasound can help identify cysts associated with endometriosis, while laparoscopy is often considered the gold standard for diagnosis, allowing direct visualization and potential treatment of endometrial lesions.

Regarding the concerns about her mother's beliefs about her virginity and the implications of undergoing these tests, it's important to prioritize her health. Open communication is key. If your girlfriend feels comfortable, she should discuss her health situation with her mother. However, if she prefers to keep this information private, she can still seek medical advice independently. In many places, young adults can make their own healthcare decisions, especially regarding reproductive health.

Encouraging her to see a healthcare provider is crucial. A gynecologist can provide a comprehensive evaluation and discuss treatment options. Treatment for endometriosis can vary based on the severity of the symptoms and may include pain management strategies, hormonal therapies, or surgical options if necessary. It's also worth noting that many women with endometriosis can still conceive, although it may take longer for some.

In terms of lifestyle and dietary considerations, while there is no specific diet proven to cure endometriosis, maintaining a balanced diet rich in fruits, vegetables, whole grains, and healthy fats can support overall health. Some women find that reducing inflammatory foods, such as processed foods and sugars, may help alleviate symptoms.

Lastly, it's essential for your girlfriend to understand that she is not alone in this journey. Many women experience similar challenges, and support groups or counseling can provide emotional support and coping strategies.

In summary, the best course of action is to encourage her to seek medical evaluation and treatment while being supportive and understanding of her feelings. Open communication, whether with her mother or healthcare providers, will empower her to take charge of her health. Your concern for her well-being is a strong foundation for supporting her through this challenging time.

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