Coping with Autonomic Nervous System Disorders: A Patient's Journey

Autonomic nervous system dysfunction

Recently, I don't know what's wrong with me.
I often engage in activities that I shouldn't, like going to hot springs despite knowing my heart isn't healthy, or eating junk food even though I'm aware of my poor health.
Naturally, my parents are very angry and scold me for these actions.
The more they tell me not to do these things, the more I feel compelled to do them.
My life seems to revolve around what my dad says and what my mom says about what I should or shouldn't do, and I'm increasingly reluctant to go home.
I don't even know what home means anymore.

I have heart issues, and my doctor has warned me about many things, such as quitting tea and coffee.
I struggle with insomnia at night, and the next day I feel the need to drink coffee to stay alert, which creates a vicious cycle.
I am a patient with mitral valve prolapse and autonomic nervous system dysfunction, and I take beta-blockers and anti-anxiety medications.
For several months, I have been taking a medication called Eulises before bed, but my symptoms worsen with stress.
I often experience chest pain and shortness of breath at night, and I don't sleep well at all.

I would like to ask my doctor what I should do next besides taking medication.
I visit the cardiology clinic every month for follow-up.

Hui Ting, 20~29 year old female. Ask Date: 2015/12/13

Dr. Ding Shuyan reply Psychiatry

Hello, autonomic nervous system dysregulation tends to have a constitutional predisposition.
This means that individuals like us are more susceptible to autonomic responses under the same stressors.
Therefore, it is advisable to avoid controllable external factors that may destabilize the autonomic nervous system, such as coffee, tea, alcohol, and stimulating activities.
Autonomic nervous system dysregulation can also exhibit fluctuations; during more unstable periods, it may be necessary to particularly reduce stimulating factors and engage in activities that promote autonomic stability, such as maintaining a regular daily routine, eating a balanced diet, exercising moderately, practicing muscle relaxation, diaphragmatic breathing, meditation, and yoga.
If these measures do not stabilize the condition, it may be necessary to consult a physician for medication.
Based on personal experience, following medical advice for medication treatment and gradually tapering off has been very effective in controlling symptoms and ensuring quality of life.
Wishing you all the best.
Sincerely, Dr.
Ding Shuo-Yan.

Reply Date: 2015/12/13

More Info

Coping with autonomic nervous system disorders can be a challenging journey, especially when compounded by underlying conditions such as mitral valve prolapse and anxiety. Your situation reflects a common struggle faced by many patients dealing with chronic health issues, particularly when lifestyle choices seem to contradict medical advice.
Firstly, it’s important to understand that the autonomic nervous system (ANS) regulates involuntary bodily functions, including heart rate, blood pressure, and digestion. Disorders of the ANS can lead to symptoms such as palpitations, dizziness, and gastrointestinal issues. In your case, the combination of mitral valve prolapse and autonomic dysfunction can exacerbate feelings of anxiety and physical discomfort, leading to a cycle of stress and poor health choices.

Your acknowledgment of engaging in behaviors that are counterproductive to your health, such as consuming caffeine and junk food, is a crucial first step. These choices can indeed worsen symptoms of anxiety and disrupt sleep patterns, creating a vicious cycle. Caffeine, for instance, is a stimulant that can increase heart rate and exacerbate anxiety, while poor dietary choices can lead to fluctuations in blood sugar levels, further impacting your mood and energy levels.

Here are several strategies to consider as you navigate this journey:
1. Mindful Eating: Focus on a balanced diet rich in whole foods, including fruits, vegetables, lean proteins, and whole grains. This can help stabilize your blood sugar levels and improve your overall well-being. Consider consulting a nutritionist who can help you create a meal plan that aligns with your health needs.

2. Stress Management Techniques: Incorporating relaxation techniques such as deep breathing exercises, meditation, or yoga can significantly reduce anxiety levels. These practices can help regulate your autonomic nervous system and improve your sleep quality. Apps like Headspace or Calm can guide you through mindfulness exercises.

3. Regular Physical Activity: Engaging in regular, moderate exercise can help improve cardiovascular health and reduce anxiety. Activities like walking, swimming, or cycling can be beneficial. However, it's essential to listen to your body and avoid overexertion, especially given your heart condition.

4. Sleep Hygiene: Establishing a consistent sleep routine can help improve your sleep quality. Aim to go to bed and wake up at the same time each day, create a relaxing bedtime routine, and limit screen time before bed. If you find that anxiety is keeping you awake, consider discussing with your doctor the possibility of adjusting your medication or exploring cognitive behavioral therapy (CBT) for insomnia.

5. Open Communication with Healthcare Providers: Continue to attend your follow-up appointments with your cardiologist and discuss any new or worsening symptoms. If you feel that your current treatment plan is not effective, don’t hesitate to seek a second opinion or ask for a referral to a specialist in autonomic disorders or a psychologist who can help address anxiety.

6. Support Systems: Surround yourself with supportive individuals who understand your journey. This could be family, friends, or support groups for individuals with similar health issues. Sharing experiences and coping strategies can provide emotional relief and practical advice.

7. Limit Stimulants: As you mentioned, reducing or eliminating caffeine and other stimulants can help manage anxiety and improve sleep. Consider herbal teas or decaffeinated beverages as alternatives.

8. Journaling: Keeping a journal can help you process your thoughts and feelings. Writing down your experiences can provide clarity and help you identify triggers for your anxiety or unhealthy behaviors.

In conclusion, while medication plays a vital role in managing your symptoms, lifestyle changes and coping strategies are equally important. By taking proactive steps to address your health holistically, you can improve your quality of life and better manage the challenges associated with autonomic nervous system disorders. Remember, this journey is about progress, not perfection, and it's okay to seek help along the way.

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