Hairy cell vascular lesions
Hello, I am a rare disease patient.
I underwent two cerebral vascular reconstruction surgeries 13.4 years ago.
There are still issues in the lower right part of my brain, but my doctor does not recommend further surgery.
I also have a chronic asthma condition.
I would like to ask which specialty I should consult or what tests I should undergo if I frequently experience coughing, chest tightness, difficulty breathing, accompanied by numbness in my head, tinnitus, dizziness, and weakness in my limbs.
Thank you.
satina, 30~39 year old female. Ask Date: 2019/03/05
Dr. Zhang Junwei reply Neurosurgery
It is recommended to first consult a pulmonologist to properly treat asthma.
Reply Date: 2019/03/05
More Info
When dealing with vascular malformations, especially after undergoing significant procedures such as brain vascular reconstruction, it is crucial to be vigilant about any new or worsening symptoms. Your history of two brain surgeries and the ongoing issues in the right posterior part of your brain suggest that you may have residual effects or complications from those surgeries. The symptoms you describe—persistent coughing, chest tightness, difficulty breathing, along with head tingling, tinnitus (ear ringing), dizziness, and limb weakness—are concerning and warrant immediate medical attention.
Given your complex medical history, including chronic asthma, it is advisable to seek help from a multidisciplinary team. Here are some steps and considerations for your situation:
1. Primary Care Physician (PCP): Start by consulting your primary care physician. They can perform an initial assessment, review your symptoms in the context of your medical history, and determine if you need to see a specialist.
2. Neurology: Given your history of brain surgery and current neurological symptoms (head tingling, dizziness, and limb weakness), a consultation with a neurologist is essential. They can evaluate for any neurological deficits or complications related to your previous surgeries, such as vascular malformations or other neurological conditions.
3. Pulmonology: Since you have chronic asthma and are experiencing respiratory symptoms (coughing, chest tightness, and difficulty breathing), it would be beneficial to see a pulmonologist. They can assess your lung function and determine if your asthma is well-controlled or if there are other underlying respiratory issues contributing to your symptoms.
4. Cardiology: If your symptoms include significant chest discomfort or if there is a concern about your cardiovascular health, a cardiologist may need to evaluate your heart function. This is particularly important if you experience symptoms like chest pain or severe shortness of breath.
5. Imaging Studies: Depending on the findings from your consultations, your doctors may recommend imaging studies such as a CT scan or MRI of the brain to assess for any changes or complications related to your previous surgeries. Additionally, chest imaging may be warranted to evaluate your lungs and heart.
6. Blood Tests: Routine blood tests can help assess your overall health and identify any underlying issues, such as anemia or infection, which could contribute to your symptoms.
7. Emergency Care: If you experience severe symptoms, such as sudden weakness, difficulty speaking, severe headache, or chest pain, you should seek emergency medical care immediately, as these could be signs of a stroke or other serious conditions.
In summary, your symptoms are multifaceted and could stem from various underlying issues related to your past surgeries, chronic asthma, or other health conditions. It is crucial to approach this systematically by consulting with your primary care physician first, who can guide you to the appropriate specialists based on your symptoms. Early intervention is key in managing your health effectively, especially with a history of vascular malformations and neurological surgeries.
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