Numbness, soreness, and sensory perception?
I previously experienced some numbness in my fingers, which progressed to numbness in my right palm, along with soreness and pain in my arm, and diminished sensation due to the numbness.
I visited the neurology department at Chang Gung Memorial Hospital in Kaohsiung, where I explained my symptoms.
The doctor arranged for nerve testing, cervical spine X-rays, and a brain CT scan.
After reviewing the results, the doctor informed me that they could not identify the cause of my symptoms and suggested I seek care elsewhere, either in neurosurgery or rehabilitation.
Ultimately, the doctor found a nearby orthopedic clinic online and referred me there, instructing me to sign the referral form before leaving.
I went to the rehabilitation center and underwent therapy for a while, but there was little improvement.
I then visited the neurosurgery department at the military hospital and shared the findings from Chang Gung.
The doctor performed a simple examination and immediately noted issues with my nerve reflexes, expressing disbelief that I had been told there was no problem and referred to rehabilitation.
When I showed him the referral form, he laughed and seemed surprised.
He promptly arranged for an MRI, and during my follow-up appointment, the doctor diagnosed me with cervical nerve inflammation, though he was unsure of the underlying cause.
He prescribed a month’s worth of steroids, but after a month with no improvement, he switched to a different steroid.
After another two weeks with no change, a friend with some medical knowledge suggested I return to neurology for further evaluation.
He referred me to an internist.
During my appointment, I explained my previous findings and the lack of improvement despite medication.
After reviewing my MRI results, the internist mentioned a potential eye condition that might be causing my symptoms, and he scheduled an eye examination.
Upon my return visit, the eye doctor found no issues.
When I inquired about the next steps, the doctor surprisingly stated that I appeared to be in good health and suggested maintaining the current status without further follow-up.
However, I was still experiencing numbness, soreness, pain, and sensory issues in my hand.
I requested medication to help alleviate my symptoms at least three times, and the doctor finally prescribed a muscle relaxant, advising me to continue rehabilitation.
When the nurse handed me the prescription, I asked if I needed to return for a follow-up.
She replied that if there were no abnormalities, I did not need to come back.
I then sought rehabilitation at another clinic and brought my MRI results for review.
The physician noted some unexplained white areas in my cervical spine and suggested that rehabilitation would not be effective, recommending that I visit a larger hospital.
Eventually, I went to Chang Gung Memorial Hospital in Chiayi to consult a more experienced neurosurgeon.
After I described my symptoms, he initially referred me to orthopedics for evaluation.
They performed X-rays and copied my MRI results to their system.
The orthopedic examination revealed no issues, but the doctor noted that the white areas in my cervical spine were abnormal.
He arranged for another MRI since my previous images were over three months old, wanting to compare for any changes.
About a month later, after completing the MRI and waiting for my follow-up appointment, the doctor reviewed the images and asked if I had undergone surgery.
I replied that I had not.
When I described my symptoms of palm numbness, arm soreness, and poor sensation, he indicated that I needed to be referred back to neurology, stating that my symptoms were not related to his specialty and that I should see an internist to investigate the underlying cause.
I have been navigating through various departments at Chang Gung in Kaohsiung, the military hospital, and Chang Gung in Chiayi for over a year now, being shuffled around.
I am left wondering which specialty I should pursue for my condition.
A-Hsien, 30~39 year old female. Ask Date: 2019/04/29
Dr. Jiang Junyi reply Neurology
Hello: I understand your concerns.
You seem to be caught in a misconception of seeking treatment from someone with the same professional background.
Currently, if my patients encounter situations that I cannot resolve due to my limitations, I adopt a perspective of empathy, meaning I suggest changing the approach within the same hospital.
For instance, if a patient has a cough, it could be evaluated by specialists in Otolaryngology, Pulmonology, Gastroenterology, Cardiology, Rheumatology, or even Traditional Chinese Medicine.
Therefore, my suggestion is to find the nearest medical center and consult different physicians from various specialties.
For example, you might consider seeing a physician in Rheumatology or Immunology.
Additionally, if there are smoking habits, those should also be addressed.
Wishing you good health, peace, and happiness.
Dr.
Jiang, your caring physician.
Reply Date: 2019/04/29
More Info
It sounds like you have been on quite a journey trying to find answers for your persistent nerve pain and associated symptoms. Your experience highlights a common challenge in the field of neurology and pain management, where patients often face a complex web of referrals and diagnostic tests without clear answers.
Nerve pain, or neuropathic pain, can arise from various underlying conditions, including nerve compression, inflammation, or damage. In your case, the symptoms of numbness, tingling, and pain in your hands and arms suggest a possible issue with the cervical spine, where nerves that innervate the upper extremities originate. The fact that multiple specialists have been involved in your care indicates the complexity of your condition, as well as the need for a multidisciplinary approach.
From your description, it appears that you have undergone several diagnostic tests, including MRI scans and X-rays, which are essential for identifying any structural abnormalities in the cervical spine. However, it is not uncommon for imaging studies to show normal results even when a patient is experiencing significant symptoms. This can be frustrating, but it does not mean that your pain is not real or that it is not caused by an underlying issue.
Given that you have seen both neurologists and orthopedic specialists, it may be beneficial to consult a pain management specialist or a physiatrist (a doctor specializing in physical medicine and rehabilitation). These professionals can provide a comprehensive evaluation of your symptoms and may offer treatments that focus on pain relief and functional improvement. They often employ a combination of therapies, including physical therapy, medication management, and possibly interventional procedures such as nerve blocks or epidural steroid injections.
Additionally, you mentioned that you have been prescribed muscle relaxants and have undergone rehabilitation without significant improvement. It is essential to communicate openly with your healthcare providers about the effectiveness of the treatments you have received. If certain medications or therapies are not providing relief, it may be necessary to explore alternative options or adjust your treatment plan.
Chronic pain can also have psychological components, and it is not uncommon for patients to experience anxiety or depression as a result of their ongoing discomfort. If you find that your emotional well-being is affected, consider discussing this with your healthcare provider. They may recommend counseling or therapy to help you cope with the psychological aspects of chronic pain.
In summary, navigating the healthcare system for nerve pain can be challenging, but it is crucial to advocate for yourself and seek out specialists who can provide a comprehensive approach to your symptoms. A multidisciplinary team that includes neurologists, pain management specialists, and physical therapists may offer the best chance for relief and improved quality of life. Don't hesitate to ask for referrals or seek second opinions if you feel that your concerns are not being adequately addressed. Your health and well-being are paramount, and finding the right care is essential in your journey toward recovery.
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