Epilepsy Issues and Solutions
I am a law student preparing for the national examination.
Several years ago, I was hospitalized in the intensive care unit due to encephalitis, and later developed postictal epilepsy, for which I was prescribed Sabril and Revotril for two years.
During that time, I underwent an EEG, and after a physician's assessment, my medication dosage was gradually reduced until I successfully discontinued the medication for two years.
In late February of last year, I experienced a seizure relapse in the middle of the night.
At that moment, I was unaware of it and was only awakened by my parents after the episode, leaving me feeling despair and shock.
I had no choice but to return for a follow-up appointment.
The doctor prescribed the same two medications, two pills each in the morning and evening.
However, due to my studies, my family often attended the outpatient appointments on my behalf.
Unbeknownst to me, they had reduced the medication dosage without consulting me, as they were concerned about me taking too many medications, which inadvertently caused greater harm.
Five months later, one day while having breakfast as usual, my legs became uncontrollable and I collapsed stiffly, resulting in multiple injuries.
That summer, it took me three months just to find a suitable medication, and I finally settled on Zonegran, which has the side effect of "memory impairment." After school started, the stress of studying and exams became overwhelming.
I had initially been confident about the upcoming national examination, but now I feel like a turtle retreating into its shell, as if all my efforts have been wasted due to one medication.
The two years leading up to the relapse were marked by significant emotional upheaval and the loss of loved ones, which drastically changed my lifestyle.
Even now, I often feel that I have little value.
I have been on three medications for nearly a year now, and I have not experienced seizures like before, but it seems that the types of seizures have varied.
I am scheduled for an EEG this summer, and I am very afraid; I really do not want to take medication again or experience a seizure once more.
This process has been too painful.
Nìmíng zhě, 20~29 year old female. Ask Date: 2020/06/24
Dr. Jiang Junyi reply Neurology
Hello: Adjustments to epilepsy medication should be made under the guidance of a physician.
The authority on epilepsy in Taiwan is at Taipei Veterans General Hospital.
If you have concerns about your medication, you can consult with the epilepsy specialists at this medical center.
Wishing you health, peace, and happiness.
Dr.
Jiang from the Department of Neurology cares about you.
Reply Date: 2020/06/24
More Info
Overcoming epilepsy, especially as a student preparing for significant exams, can be an incredibly challenging journey. Your experience of dealing with epilepsy after a serious illness like encephalitis is not uncommon, and it’s understandable that the recurrence of seizures can lead to feelings of despair and frustration. The emotional and psychological toll of living with a chronic condition, particularly one that affects your cognitive functions and daily life, can be overwhelming.
Firstly, it’s important to acknowledge the emotional impact of your situation. The feelings of hopelessness and the fear of losing control over your body are valid and should not be dismissed. Many individuals with epilepsy experience anxiety and depression, particularly after a seizure or when facing the uncertainty of their condition. This can be exacerbated by the pressures of academic life, especially in a demanding field like law. It’s crucial to seek support, whether from friends, family, or mental health professionals, who can help you navigate these feelings.
Your experience with medication is also a common aspect of managing epilepsy. Finding the right medication can be a lengthy process, and it’s not unusual for patients to experience side effects, such as memory loss, which can further complicate your studies. It’s essential to maintain open communication with your healthcare provider about how the medications affect you, especially regarding cognitive side effects. They can help adjust your treatment plan to find a balance that minimizes side effects while effectively controlling your seizures.
The incident where your family inadvertently reduced your medication dosage highlights the importance of clear communication regarding your treatment. It’s vital that everyone involved in your care understands the importance of adhering to the prescribed treatment plan. If possible, consider taking an active role in your healthcare decisions. This might include attending appointments with your family or discussing your treatment openly with them to ensure they understand the implications of any changes.
As you prepare for your national exams, it’s understandable to feel pressure and anxiety. Here are some strategies that might help you cope:
1. Structured Study Plan: Create a study schedule that breaks down your material into manageable sections. This can help reduce feelings of being overwhelmed and allow you to focus on one topic at a time.
2. Mindfulness and Relaxation Techniques: Incorporate mindfulness practices, such as meditation or deep-breathing exercises, into your daily routine. These techniques can help reduce anxiety and improve focus.
3. Physical Activity: Regular exercise can improve mood and cognitive function. Even light activities like walking can be beneficial.
4. Support Groups: Consider joining a support group for individuals with epilepsy. Sharing experiences with others who understand your challenges can provide emotional relief and practical advice.
5. Professional Help: If feelings of worthlessness persist, it may be beneficial to speak with a mental health professional. They can provide coping strategies and support tailored to your situation.
6. Open Communication with Educators: If you feel comfortable, inform your professors about your condition. They may offer accommodations that can help you manage your studies more effectively.
Lastly, remember that your worth is not defined by your condition or your academic performance. You have already shown resilience by navigating the complexities of your health and education. Focus on your progress and the steps you are taking to manage your epilepsy. Recovery is often not linear, and it’s okay to seek help along the way. You are not alone in this journey, and there are resources and people ready to support you.
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