Flatulence, leakage, and urinary issues in individuals with amyotrophic lateral sclerosis (ALS)?
Hello, doctor.
I am 21 years old, 183 cm tall, and weigh 70 kg.
Recently, I was very worried that I might have Parkinson's disease, so I consulted a neurologist.
He assured me that it is 100% not Parkinson's and advised me to relax.
He also ordered blood tests for electrolytes because my muscles have been twitching.
A few days later, I became anxious again, fearing that I might have amyotrophic lateral sclerosis (ALS).
Just now, while sitting in a chair (in a poor posture, half sitting and half lying down), I felt the urge to pass gas, but instead, a small amount of liquid stool accidentally soiled my underwear and slightly seeped through my pants.
I was completely shocked and terrified.
I went to the bathroom, took off my underwear, and noticed another drop (the stool this time was both watery and formed).
I don't recall experiencing this before, and I feel like I might really be sick.
Regarding neurological examinations, I have undergone nerve conduction studies (previously worried about peripheral neuropathy), electromyography (EMG), and evoked potentials (visual/auditory/upper limb) (I asked the neurologist to perform these tests because I suspected I might have multiple sclerosis).
I also had a wakefulness EEG.
The doctors I consulted prescribed me a pink medication for autonomic nervous system regulation, which I hadn't taken before, but I did take the medication given to me last time (one pink pill in the morning and evening, and half a white pill in the morning and evening, all after meals, which was said to help relax the muscles).
Next, regarding my urination issues, I have always felt that I have frequent urination and have undergone several tests for it (checking blood sugar every six months and seeing a nephrologist once a year).
When I am worried about my health, I tend to urinate frequently.
For example, there was a period when I was very concerned about having Sjögren's syndrome complicated by lupus erythematosus, and I kept drinking water and urinating.
After that, when I stopped worrying, it went away.
Recently, I have also noticed that towards the end of urination, I sometimes have to wait for the last bit to come out, which can vary in difficulty.
All of these issues make me very anxious that my muscles and nerves are deteriorating, and I fear becoming disabled or developing ALS.
Every time my muscles twitch, I feel a lot of fear.
Currently, I am waiting for my report on April 30.
I am unsure what to do about my body in this state.
Should I schedule a follow-up appointment with my doctor for a full-body EMG? Thank you for taking the time to read this.
I apologize if my message is a bit disorganized; the recent incident with the liquid stool has left me very shaken.
Dàxuéshēng, 20~29 year old female. Ask Date: 2021/04/19
Dr. Du Shixi reply Urology
Hello: Regarding the issue of frequent urination, I have felt this way since childhood and have undergone several tests (checking blood sugar every six months and visiting a nephrologist once a year).
I often experience increased urination when I am worried about my health.
For example, there was a time when I was concerned about having Sjögren's syndrome complicated by lupus erythematosus, and I kept drinking water and urinating frequently; however, once my worries subsided, it disappeared.
Recently, I have noticed that I sometimes have to wait for the last bit of urine to come out when I am almost finished urinating.
At times, it is better.
Is this difficulty in urination? --> It should not be; urination can be influenced by many factors such as emotions, diet, hydration, metabolism, and so on, so variations can occur.
Wishing you good health.
Reply Date: 2021/04/19
More Info
Understanding urinary and bowel issues in young adults, particularly from a neurological perspective, can be quite complex. Your concerns about experiencing involuntary bowel leakage and urinary difficulties at the age of 21 are valid and warrant a thorough examination.
Firstly, it's important to recognize that the symptoms you are describing—such as the involuntary leakage of liquid stool and the sensation of incomplete urination—can be indicative of underlying neurological or muscular issues. Given your history of anxiety about conditions like Parkinson's disease and multiple sclerosis (MS), it is understandable that you might be hyper-aware of bodily sensations and changes. However, it is crucial to approach these symptoms with a clear mind and seek professional medical advice.
From a neurological standpoint, the nervous system plays a significant role in regulating both urinary and bowel functions. The autonomic nervous system, which controls involuntary bodily functions, is responsible for the coordination of bladder and bowel movements. If there is any disruption in this system, it can lead to symptoms such as urgency, frequency, and incontinence.
Your experience of feeling the need to urinate frequently, especially during periods of anxiety, could be a manifestation of a hyperactive bladder, which is often exacerbated by stress. The sensation of incomplete urination may also be related to muscle tension or dysfunction in the pelvic floor muscles, which can be influenced by anxiety and posture.
The involuntary leakage of liquid stool, particularly if it is accompanied by formed stool, may suggest a condition known as fecal incontinence. This can occur due to a variety of reasons, including muscle weakness, nerve damage, or even psychological factors. It is essential to differentiate between these potential causes through appropriate diagnostic tests, which may include imaging studies or nerve conduction tests.
Regarding your concerns about neurological diseases, it is reassuring that you have undergone various neurological evaluations, including electromyography (EMG) and nerve conduction studies. These tests are designed to assess the health of your muscles and the nerves that control them. If your neurologist has ruled out conditions like Parkinson's disease and MS, it may be beneficial to focus on managing your symptoms rather than worrying excessively about these serious conditions.
You mentioned being prescribed medication for autonomic regulation, which suggests that your healthcare provider is addressing the potential for dysregulation in your nervous system. It is important to follow your doctor's recommendations regarding medication, as these can help alleviate some of the symptoms you are experiencing.
In addition to medication, lifestyle modifications can also play a significant role in managing urinary and bowel issues. Regular physical activity, pelvic floor exercises (such as Kegel exercises), and stress management techniques (like mindfulness or cognitive behavioral therapy) can be beneficial. Maintaining a healthy diet rich in fiber can help regulate bowel movements and reduce the risk of constipation, which can exacerbate fecal incontinence.
If your symptoms persist or worsen, it would be prudent to follow up with your healthcare provider. Discussing your concerns about the need for further testing, such as a comprehensive EMG or additional imaging studies, can help clarify the underlying issues.
In summary, while your symptoms are understandably distressing, they can often be managed effectively with the right combination of medical treatment, lifestyle changes, and psychological support. It is essential to maintain open communication with your healthcare providers and to address any new or worsening symptoms promptly. Remember, you are not alone in this, and there are effective strategies available to help you regain control over your urinary and bowel functions.
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