Muscle issues
Hello, doctor.
I am the person who used to come to you with questions (about multiple sclerosis, blood sugar issues, and short heart pains).
Recently, I felt something strange when swallowing and was worried it might be myasthenia gravis.
The doctor said it was just autonomic dysregulation.
After returning home, I started observing my hands (the doctor had asked me to extend my hands to see if they trembled).
I noticed that the shaking seemed to worsen, and my muscles began to twitch occasionally, which made me concerned about having Parkinson's disease.
So, I went back for a follow-up appointment (a week ago).
The doctor assured me it was definitely not Parkinson's and ordered blood tests for ions and prescribed medication for autonomic nervous system regulation (red) and muscle support (white), which I have been taking.
I have a follow-up appointment on April 30, but now I am worried that I might have amyotrophic lateral sclerosis (ALS).
The more I observe, the more it seems like it.
Recently, my right hand has also become somewhat less coordinated, fluctuating between good and bad.
Additionally, the last electromyography test was already a year ago.
In the past couple of days, I restarted my walking activities (wearing flip-flops), and sometimes I feel that my leg muscles fatigue more easily, especially in the morning.
After walking for a while, I don't feel it as much.
The more I think about it, the worse I feel.
Also, I have noticed that the water pressure at the end of urination has decreased, but I checked, and at 21 years old, it shouldn't be due to prostate enlargement.
Yesterday, something quite alarming happened: while half-lying down and passing gas, a small amount of liquid stool came out and stained my underwear.
I keep thinking that all my body’s muscle nerves are failing.
I researched why muscles in ALS patients twitch, and it seems to be related to issues with neuronal death and signal transmission.
My twitching sometimes occurs without a specific reason, and sometimes it happens when I sneeze (involving the intercostal and abdominal muscles).
When I lie on my side and turn over, the muscles that were previously in contact with the ground sometimes twitch, which feels quite consistent with ALS symptoms.
I feel like I am doomed and that I am becoming like an ALS patient.
Should I go back to the doctor to schedule a full-body electromyography test? But I am afraid of receiving a diagnosis, and I feel very conflicted inside.
dàxuéshēng, 20~29 year old female. Ask Date: 2021/04/20
Dr. He Dongjin reply Cardiology
Hello, you're overthinking it.
Don't rely too much on online information; everyone seems to think they're a severe case, but it's not that serious.
Relax and discuss the possible situations with your doctor instead of scaring yourself at home.
Wishing you peace and well-being.
Changhua Hospital cares about you.
Reply Date: 2021/04/20
More Info
It sounds like you are experiencing a significant amount of anxiety related to your physical symptoms, which can be quite distressing. Your concerns about neurological conditions, such as multiple sclerosis or amyotrophic lateral sclerosis (ALS), are understandable given the nature of your symptoms. However, it's important to remember that anxiety can manifest in various physical ways, including muscle twitching, weakness, and fatigue.
From what you've described, it seems that your symptoms may be exacerbated by anxiety. Muscle twitching, for example, can be a common symptom of anxiety and is often referred to as "benign fasciculation." This condition is typically harmless and can occur in anyone, especially during periods of stress or anxiety. The feeling of weakness or lack of coordination in your right hand could also be related to muscle tension or overthinking about your symptoms, which can create a cycle of anxiety and physical discomfort.
You mentioned that your doctor has already ruled out serious conditions like Parkinson's disease and has prescribed medication to help with your autonomic nervous system regulation. This is a positive step, as it indicates that your healthcare provider is taking your symptoms seriously while also considering the role of anxiety in your experience. It’s crucial to trust your healthcare provider’s assessment, especially if they have conducted tests and examinations that have not indicated any severe underlying conditions.
Regarding your concerns about the urinary symptoms and the incident you described, it’s important to discuss these with your doctor as well. While they may seem alarming, they can also be related to anxiety or stress. Stress can affect various bodily functions, including bladder control, and can lead to temporary changes in how your body responds.
Here are some suggestions for managing your symptoms and anxiety:
1. Follow Up with Your Doctor: Since you have an appointment scheduled, it would be beneficial to discuss all your concerns, including the new symptoms you’ve experienced. If you feel that a full electromyography (EMG) is necessary for your peace of mind, express this to your doctor. They can help determine if further testing is warranted.
2. Cognitive Behavioral Therapy (CBT): Consider seeking therapy, particularly cognitive behavioral therapy, which is effective for managing anxiety. A therapist can help you develop coping strategies and address the thoughts that contribute to your anxiety about your health.
3. Mindfulness and Relaxation Techniques: Practices such as mindfulness meditation, yoga, or deep-breathing exercises can help reduce anxiety and improve your overall sense of well-being. These techniques can help you manage stress and may alleviate some of the physical symptoms you are experiencing.
4. Physical Activity: Continue with your walking activities, as exercise can be a great way to reduce anxiety and improve physical health. However, listen to your body and avoid overexertion.
5. Limit Information Overload: While it’s natural to seek information about your symptoms, excessive research can lead to increased anxiety. Try to limit your time spent looking up symptoms online, as this can often lead to unnecessary worry.
6. Support System: Talk to friends or family about how you’re feeling. Sharing your concerns can help alleviate some of the burdens you’re carrying and provide you with emotional support.
In conclusion, while it’s essential to take your symptoms seriously, it’s equally important to recognize the role that anxiety can play in how you perceive and experience these symptoms. By working closely with your healthcare provider and considering therapeutic options, you can find ways to manage both your physical symptoms and the anxiety that accompanies them. Remember, you are not alone in this, and there are effective strategies to help you feel better.
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