Positron Emission Tomography (PET) Report Issues
Hello Doctor, I sincerely ask for your help in analyzing my situation and providing some advice, as I feel very helpless and do not know how to handle this.
I am grateful for your assistance.
I have been experiencing a persistent foreign body sensation and sharp pain in my throat, from the uvula down to the left base of my tongue and deep throat.
Even when my mouth is closed, I still have symptoms and inflammation with a pulsating sensation.
Swallowing food feels like something is stuck, and swallowing saliva also causes discomfort.
Eating is not difficult, but there is a slight sharp pain.
I underwent a bilateral tonsillectomy and uvulopalatoplasty in April, and I am unsure if the pain and foreign body sensation are postoperative sequelae.
During a follow-up visit in July, the surgeon said my surgical site was fine.
However, my symptoms have persisted 24/7, with sudden sharp pains in my throat and a constant ringing in my left ear, along with occasional ear pain.
Over the past six months, I have undergone numerous examinations: nasopharyngoscopy in May, thyroid ultrasound in June, another nasopharyngoscopy in June, gastroscopy in July and September, another thyroid ultrasound in September, and a final nasopharyngoscopy in September.
An MRI of the head and neck in August with contrast showed specific lymphadenopathy on the right side of my neck, but no other significant issues were found.
The sensation of a foreign body and sharp pain in my throat has been constant, even when not eating or speaking, accompanied by a persistent inflammatory throbbing pain.
I also experience unilateral tinnitus and ear pain.
Due to my concerns about potential undetected issues, I underwent a PET scan at the end of September.
The report indicated a possible lesion in the area of the base of the tongue and epiglottis, but the doctor could not confirm the presence of cancer cells, suggesting it might be physiological changes but could not rule out the possibility of malignancy.
I found some information online regarding the SUV values, and the report indicated an SUVmax of 4.9, which raises concerns since values above 2.5 are more likely to indicate cancer.
I am very frightened and worried.
If there is a problem, I hope to address it as soon as possible to increase my chances of survival, especially since I have a three-year-old child at home.
I am truly scared and helpless.
I have attached the report and hope you can provide some advice on what I should do next.
Thank you.
I previously visited an ENT specialist at a health check hospital, but the doctor reviewed my report and said it was physiological changes and that I would not have any issues.
However, my symptoms persist, and the sensation of a foreign body and sharp pain is unbearable.
I consulted another hospital, and the doctor noted that my epiglottis appeared bright, suggesting that if confirmation is needed, a complete excision would be necessary, which is a major surgery.
Alternatively, they could take a biopsy from the brightest area, but there is no guarantee that the unbiopsied areas are free of issues.
I genuinely do not know how to ascertain whether there is a pathological change or cancer cells, or if my symptoms can be treated.
My symptoms cause me significant anxiety and discomfort, and I feel lost.
I sought a second opinion from a well-known ENT specialist at National Taiwan University.
Before seeing the main doctor, another doctor conducted a brief examination.
However, the main doctor quickly concluded that I had nasopharyngitis and advised me to buy a nasal spray without addressing my concerns in detail, which left me feeling disappointed.
Perhaps the doctor had too many patients and did not perceive my case as cancerous.
If my symptoms were not so prolonged and distressing, I could ignore them, but they have persisted for six months, and I am in constant discomfort.
It feels as if there is a bone lodged in my throat.
If I were to hypothetically have cancer, would it be nasopharyngeal cancer, or oropharyngeal cancer, or laryngeal cancer? Based on my symptoms, would it be considered early-stage? Would surgery be the first line of treatment, or are there other options? Having previously undergone a bilateral tonsillectomy, the postoperative pain was quite challenging, and I am very afraid of undergoing another oral surgery.
Currently, there are no obvious signs of disease from the endoscopic examination, and the doctor only mentioned that the lymph nodes are enlarged.
Would arranging for a narrow-band imaging (NBI) endoscopy be helpful? Would a biopsy of the suspected lesion in the epiglottis provide diagnostic clarity? Should I continue seeing an ENT specialist or consult an oncologist? I am currently taking medication for acid reflux and esophagitis, as well as medication for post-nasal drip and a nasal anti-inflammatory spray, but none of these have provided any relief or improvement.
I seek your help, thank you.
Miss Lin, 40~49 year old female. Ask Date: 2021/11/08
Dr. Chen Sirong reply Oncology
Ms.
Lin / 45 years old / Female
1.
Doctor, if I truly have cancer, whether it is nasopharyngeal cancer, oropharyngeal cancer, or laryngeal cancer, would the symptoms I described indicate an early stage? Would the primary treatment be surgery, or are there other approaches?
A: From a physician's perspective, I cannot directly answer your question.
Continuous monitoring and examinations are necessary.
Typically, if there are no changes in imaging over a period of 3-6 months, even if a diagnosis cannot be made, it is likely not a malignant cancer.
2.
Doctor, would scheduling a narrow-band imaging (NBI) endoscopy be helpful?
A: Personally, I believe it would not lead to a definitive diagnosis.
3.
Would a biopsy have a distinguishing role for the suspected lesion on the epiglottis?
A: A biopsy at the site of the PET scan should be helpful.
If you want to avoid invasive procedures, you can think logically: typically, if there are no changes in imaging over a period of 3-6 months, even if a diagnosis cannot be made, it is likely not a malignant cancer.
A PET scan was done on September 10, 2021, and another self-paid PET scan is scheduled for March 2022.
If there are no changes, it should be physiological changes or inflammation.
4.
Should I continue seeing an otolaryngologist or consult an oncologist?
A: You should continue with the otolaryngologist.
Wishing you a speedy recovery.
Taoyuan Hospital, Dr.
Chen Sih-Rong.
Reply Date: 2021/11/08
More Info
Navigating the complexities of medical diagnoses, especially when it comes to potential malignancies, can be incredibly daunting. Your symptoms, including persistent pain, a sensation of a foreign body in your throat, and the recent PET scan results indicating a possible lesion in the base of your tongue, understandably raise significant concerns. Let's break down the situation and explore your options.
Understanding Your Symptoms
The symptoms you've described—persistent pain, a feeling of something stuck in your throat, and ear discomfort—can be indicative of several conditions, ranging from benign issues like inflammation or reflux to more serious concerns such as malignancies. The fact that you have undergone multiple examinations, including endoscopies and imaging studies, suggests that your healthcare providers are taking your symptoms seriously.
PET Scan Results and SUV Values
The SUV (Standardized Uptake Value) is a quantitative measure used in PET scans to assess how much glucose is being metabolized by tissues. An SUVmax of 4.9, as you mentioned, is indeed above the typical threshold of 2.5, which can raise suspicion for malignancy. However, it's important to note that elevated SUV values can also occur in inflammatory processes, infections, or even post-surgical changes. Therefore, while your SUV value is concerning, it is not definitive proof of cancer.
Next Steps in Diagnosis
Given the persistent nature of your symptoms and the findings from your PET scan, further evaluation is warranted. Here are some potential steps you could consider:
1. Consultation with an Oncologist: Since there is a possibility of malignancy, consulting with an oncologist who specializes in head and neck cancers may provide you with a more comprehensive understanding of your situation. They can help interpret your PET scan results in the context of your symptoms and medical history.
2. Narrow Band Imaging (NBI): NBI is a technique that enhances the visualization of mucosal structures and can help identify subtle lesions that may not be visible with standard endoscopy. This could be a valuable tool in assessing the area of concern in your throat.
3. Biopsy: If a suspicious lesion is identified, a biopsy may be necessary to determine whether it is malignant. This can often be done with a fine needle aspiration or through a more direct approach, depending on the lesion's location and characteristics.
4. Multidisciplinary Approach: Engaging a team that includes an ENT specialist, an oncologist, and possibly a gastroenterologist (given your history of reflux) can provide a holistic view of your condition and help tailor a management plan.
Treatment Considerations
If a malignancy is confirmed, treatment options typically include surgery, radiation therapy, and chemotherapy, depending on the type and stage of cancer. Early-stage cancers often have better outcomes and may be treated primarily with surgery. However, if the cancer is more advanced, a combination of therapies may be necessary.
Managing Anxiety and Seeking Support
It’s completely normal to feel anxious given the uncertainty surrounding your health. Seeking support from mental health professionals, support groups, or counseling can be beneficial in managing the emotional toll of your situation. Additionally, discussing your concerns openly with your healthcare providers can help you feel more empowered and informed about your health decisions.
Conclusion
While the potential for a serious diagnosis is understandably frightening, it’s essential to approach this situation methodically. Continue to advocate for your health, seek second opinions if necessary, and ensure that you are comfortable with the decisions being made regarding your care. Remember, early detection and intervention are key in managing any potential malignancy effectively. Your health and well-being are paramount, and taking proactive steps can help you navigate this challenging time.
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