Chronic difficulty in breathing since childhood?
Hello, doctor.
As the title suggests, I have undergone many tests since childhood.
I do not have asthma, and my heart occasionally has a valve that stops moving, but the doctor said this is not a major concern.
However, since I was young, I have experienced sudden periods of unexplained fatigue (not related to depression or anorexia), with weakness in my limbs.
I can breathe normally, but I feel like I am not getting enough oxygen, and my head feels very dizzy.
I must lie down immediately to conserve energy, but I still experience difficulty breathing.
The sensation of not getting enough oxygen makes me breathe more consciously, which leads to further energy depletion.
To avoid feeling dizzy from lack of oxygen, I completely lose my appetite, and eating becomes a very exhausting task, making me even less inclined to eat.
If I try to eat during these times, it only increases my discomfort.
Recently, my work involves frequently looking at bright lights (using a headlamp to examine small objects), accumulating at least 5 to 6 hours a day.
I do not experience afterimages, but when I am not looking at bright lights, I sometimes have issues with my vision turning completely white.
I have seen an ophthalmologist, who could not confirm whether this is a sign of neurological decline or a precursor to cataracts.
The medical field is not advanced enough to provide a definitive answer, but it could possibly be a form of neurological decline or an early cause of cataracts.
I have had this condition since childhood.
A friend who has been ill for many years happened to hear about my situation and suggested that it might be due to insufficient blood oxygen levels.
Could this be a possibility? I believe I was tested for this in childhood, and there were no issues then.
It seems similar to arthritis, where the underlying cause is often undetectable unless symptoms are at their worst (when breathing is most difficult).
Jue, 20~29 year old female. Ask Date: 2022/07/26
Dr. Wang Zhengde reply Pulmonology
Hello, Miss Jue: Your question is a bit complex, so I will first address your last inquiry.
Insufficient blood oxygen levels can indeed cause difficulty in breathing.
You can use a home pulse oximeter to measure your oxygen saturation; if it falls below 94%, you need to seek medical attention immediately! As for the breathing difficulties you have experienced since childhood, sometimes it is necessary to assess for abnormalities while you are experiencing symptoms.
In some cases, medications or other methods may need to be used during the examination to provoke abnormalities for accurate results.
I recommend that you visit a pulmonologist or cardiologist for a clinical evaluation by a professional physician, which would be more appropriate.
Thank you for your question! Wishing you good health.
Dr.
Wang Cheng-Te, Attending Physician, Department of Pulmonary Medicine, Ministry of Health and Welfare, Xinying Hospital.
Reply Date: 2022/07/26
More Info
Persistent breathing difficulties can be a complex issue, often requiring a multifaceted approach to diagnosis and management. Based on your description, it seems you have experienced a range of symptoms that include sudden drops in energy, feelings of weakness, and a sensation of not being able to breathe properly, despite having undergone various medical evaluations that have ruled out asthma and significant heart issues.
Firstly, it is essential to understand that breathing difficulties can stem from various causes, including respiratory, cardiovascular, neurological, and psychological factors. Given your history of feeling weak and experiencing difficulty breathing without any apparent cause, it may be beneficial to explore several potential avenues.
1. Respiratory Issues: Although you have been tested for asthma, other respiratory conditions could be at play. Conditions such as chronic obstructive pulmonary disease (COPD), interstitial lung disease, or even allergic reactions could lead to similar symptoms. A thorough evaluation by a pulmonologist, including pulmonary function tests and possibly imaging studies, could help identify any underlying issues.
2. Cardiovascular Factors: While your heart has been evaluated, it might be worth revisiting this area, especially if you experience symptoms like palpitations or chest discomfort. Sometimes, conditions like mitral valve prolapse or other structural heart issues can lead to symptoms that mimic respiratory distress. An echocardiogram or a Holter monitor could provide additional insights.
3. Neurological Considerations: Your symptoms of dizziness and feeling faint could suggest a neurological component. Conditions such as vestibular disorders or even anxiety-related hyperventilation could cause similar sensations. A referral to a neurologist for further evaluation might be warranted, especially considering your mention of visual disturbances when exposed to bright light.
4. Psychological Factors: Anxiety and stress can significantly impact breathing patterns and overall energy levels. Even if you do not feel overtly anxious, subtle anxiety can manifest physically. Cognitive-behavioral therapy (CBT) or other forms of psychological support may help address these underlying issues.
5. Oxygen Saturation: Your friend's suggestion regarding low blood oxygen levels is worth considering. While you mentioned previous tests showed no issues, it might be beneficial to monitor your oxygen saturation levels at home using a pulse oximeter, especially during episodes of difficulty breathing. This can provide real-time data on your oxygen levels and help identify any patterns.
6. Lifestyle Factors: Your work environment, particularly exposure to bright lights for extended periods, could contribute to your symptoms. It may be helpful to take regular breaks, adjust your lighting, or even consult with an occupational health specialist to ensure your work conditions are not exacerbating your symptoms.
7. Nutritional Considerations: You mentioned a lack of appetite and difficulty with eating. Nutritional deficiencies can lead to fatigue and weakness, which could compound your breathing difficulties. A consultation with a nutritionist may help ensure you are meeting your dietary needs, especially if you are experiencing significant weight loss or changes in appetite.
In summary, persistent breathing difficulties can arise from a combination of factors, and it is crucial to take a comprehensive approach to diagnosis and management. Engaging with a multidisciplinary team of healthcare providers, including pulmonologists, cardiologists, neurologists, and mental health professionals, can help you uncover the root causes of your symptoms and develop an effective treatment plan. Additionally, monitoring your oxygen levels and addressing lifestyle factors may provide further insights and relief. Always communicate openly with your healthcare providers about your symptoms and concerns to ensure you receive the best possible care.
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