Persistent Breathing Difficulties: Seeking Answers After 18 Months - Pulmonology

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Shortness of breath lasting for one and a half years?


Hello,
Since I developed symptoms of shortness of breath after a fever last May, I have been experiencing a tight feeling in my neck and a sensation of exertion (even when relaxed).
The tightest area extends from my neck up to the area under my chin (I do not have a double chin but am unsure of the name for that location).
The muscles below my collarbone are also very tight, giving me a feeling as if both shoulders are being pressed down from above.
I often feel like I am breathing but not getting enough oxygen, and I cannot take deep breaths.
If I try to take deep breaths continuously, I feel dizzy and my fingertips become numb.
My tongue tends to press against the roof of my mouth unconsciously, and I often maintain a sensation as if my throat is being pressed, similar to the urge to vomit, and occasionally my tongue feels sore.
During this period, I have seen many doctors.
In July of last year, I visited an ENT specialist and had a chest X-ray, but the doctor said my lungs were clear.
I was prescribed Banxia Houpu Decoction and medication for gastroesophageal reflux (Vocinti), but after a week, I still felt uncomfortable, so I went to a general internist.
The doctor suspected a gastrointestinal issue and prescribed Domperidone, Ambroxol, Tranexamic Acid, and Itopride Hydrochloride, but there was still no improvement.

Although I gradually got used to occasionally needing to exert more effort to breathe, by December of last year, the frequency of my breathing difficulties suddenly increased, and I sometimes worried about potential serious issues, so I consulted a pulmonologist.
At that time, I also had another chest X-ray, which showed no specific problems.
The doctor prescribed a powder inhaler (Salbutamol), but there was no significant improvement.
In May of this year, I returned to the ENT specialist, who performed a laryngoscopy and found a small piece of yellow, viscous material behind my uvula.
The doctor suggested it might be phlegm or mucus stuck there, so I was prescribed Cefditoren Pivoxil, Carbocisteine, Tranexamic Acid, Ambroxol, and Sodium Gualenate Hydrate for gargling.
The sensation of mucus in my throat improved, but the breathing difficulties remained unresolved.
In July of this year, I switched to another internal medicine clinic, where the doctor listened to my heart and found no particular abnormal sounds.
If forced to say, there might be early-stage wheezing on the left side, but they stated that I do not have asthma (which I also do not fully understand).
They prescribed Montelukast and a dry powder inhaler (200/25), suggesting a follow-up visit, but my condition did not improve during the follow-up, so a CT scan was arranged.
The CT scan from the head to the chest showed no abnormalities in my head, lungs, or thyroid.
Finally, the doctor prescribed the Banxia Houpu Decoction again, which I had received from the first clinic.
Due to the current pandemic, I am unable to return to Taiwan for a consultation, but I have already seen several different specialists in Japan.
I truly do not know what the issue is or which specialty I should consult.
The shortness of breath and numbness are very uncomfortable...
I hope the doctor can provide me with some advice.
Thank you.

Kirby, 20~29 year old female. Ask Date: 2021/07/28

Dr. Yang Wenda reply Pulmonology


Hello: 1.
Based on the X-ray and CT scan, you likely do not have any pulmonary parenchymal disease.
2.
Since you have not experienced improvement with the use of bronchodilators (asthma medication), it is unlikely that you have asthma; please do not dwell on this diagnosis.
3.
The ENT specialist noted mild post-nasal drip; if you do not frequently experience nasal congestion or sneezing, allergic rhinitis can be ruled out.
4.
Considering the above, your symptoms are more consistent with anxiety-induced respiratory discomfort.
I recommend that you manage your stress levels; there is no need to overreact to mild chest tightness or breathing difficulties, as there is no risk of hypoxia or respiratory arrest.
Relax, take adequate rest and exercise, and learn to cope with stress, which should help improve your condition!

Reply Date: 2021/07/28

More Info


It sounds like you have been experiencing a complex and distressing set of symptoms related to your breathing difficulties for quite some time. Given the extensive medical history you've provided, it is important to consider several potential factors that could be contributing to your situation.

Firstly, your symptoms of tightness in the neck and shoulders, along with the sensation of not being able to take a deep breath, may indicate a combination of physical and psychological factors. Stress and anxiety can manifest in physical symptoms, including muscle tension, which can lead to a feeling of constriction in the throat and chest. This is often referred to as "psychophysiological" or "somatic" breathing difficulties. When under stress, individuals may unconsciously alter their breathing patterns, leading to a sensation of breathlessness or the feeling of not getting enough air. This can create a vicious cycle where anxiety about breathing leads to further tension and discomfort.

Your history of seeing multiple specialists, including ENT and pulmonology, and undergoing various tests (like X-rays and CT scans) that have returned normal results is reassuring in terms of ruling out serious pulmonary conditions. The fact that your lungs appear clear on imaging studies suggests that there may not be a significant underlying lung disease, such as asthma or chronic obstructive pulmonary disease (COPD). However, it is essential to consider that conditions like vocal cord dysfunction or even gastroesophageal reflux disease (GERD) can sometimes mimic respiratory issues.

The medications you have been prescribed, such as bronchodilators and mucolytics, are typically used to treat asthma and mucus-related issues, respectively. If these have not provided relief, it may further suggest that your symptoms are not primarily due to a respiratory condition. The presence of a yellowish, thick mucus noted during your ENT visit could indicate post-nasal drip, which can irritate the throat and contribute to a sensation of tightness or discomfort.

Given your ongoing symptoms and the lack of improvement with various treatments, it may be beneficial to explore a multidisciplinary approach. This could include:
1. Psychological Support: Engaging with a mental health professional who specializes in anxiety or stress management could help address the psychological components of your symptoms. Techniques such as cognitive-behavioral therapy (CBT), mindfulness, and relaxation exercises may be beneficial.

2. Physical Therapy: A physical therapist, particularly one with experience in respiratory therapy or myofascial release, could help alleviate muscle tension in the neck and shoulders, which may be contributing to your breathing difficulties.

3. Further Evaluation: If you have not already, consider asking for a referral to a specialist in functional breathing disorders or a pulmonologist with expertise in non-asthmatic eosinophilic bronchitis or vocal cord dysfunction.

4. Lifestyle Modifications: Incorporating regular physical activity, practicing breathing exercises, and ensuring adequate sleep can also help improve your overall well-being and potentially alleviate some of your symptoms.

In summary, while your symptoms are undoubtedly distressing, the absence of significant findings on imaging and the response to various treatments suggest a multifactorial issue that may include anxiety and muscle tension. A comprehensive approach that addresses both the physical and psychological aspects of your condition may provide the best pathway to relief. It is crucial to continue working closely with healthcare providers to explore these avenues and find a tailored solution that works for you.

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