Raynaud's and Scleroderma: Challenges in Major Illness Claims - Internal Medicine

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Raynaud's phenomenon and scleroderma are considered significant illnesses that are not eligible for disability claims?


Hello, Doctor Gao.
After being diagnosed with COVID-19 this year, I suddenly noticed abnormalities in my fingers.
After researching online, I found information about Raynaud's phenomenon, so I went to the rheumatology and immunology department for an examination.
After blood tests and capillaroscopy, I was diagnosed with scleroderma (with elevated antinuclear antibodies and mid-segment antibodies, as well as vascular abnormalities in capillaroscopy).
Since I am currently experiencing early symptoms and other tests (urine, X-ray, electrocardiogram) are still normal, the doctor prescribed medication and also suggested receiving *moxifloxacin*, but it requires out-of-pocket payment.
I would like to ask the doctor if it is safe to receive the treatment while the symptoms are mild? Additionally, I do not understand why the doctor cannot help apply for a major illness card despite the scleroderma diagnosis.
Is it because there needs to be fibrosis in the internal organs or skin? Thank you, Doctor.

Lingdang, 20~29 year old female. Ask Date: 2023/02/25

Dr. Gao Jiankai reply Internal Medicine


Hello, thank you for your question.
The treatment for scleroderma is primarily based on the extent of its impact on vital organs.
If you only have Raynaud's phenomenon with mild symptoms, you might want to discuss with your physician the necessity of using off-label medications.
Additionally, if your symptoms meet the criteria, you can apply for major illness benefits, regardless of whether there is any impact on internal organs.
I suggest you consult with your physician further.
The Allergy, Immunology, and Rheumatology Department at Changhua Hospital, Ministry of Health and Welfare, is here to support you.

Reply Date: 2023/02/25

More Info


Raynaud's phenomenon and scleroderma are two interconnected conditions that can pose significant challenges for patients, especially when it comes to diagnosis, treatment, and navigating healthcare systems for major illness claims.
Raynaud's phenomenon is characterized by episodic vasospasm of the small blood vessels, typically in the fingers and toes, leading to color changes, numbness, and pain in response to cold or stress. It can occur as a primary condition or secondary to other diseases, such as scleroderma. Scleroderma, or systemic sclerosis, is an autoimmune disease that leads to the hardening and tightening of the skin and connective tissues. It can also affect internal organs, which can complicate the clinical picture and management of the disease.

In your case, the diagnosis of scleroderma following the discovery of Raynaud's symptoms is not uncommon. The presence of specific autoantibodies, such as anti-centromere or anti-Scl-70 antibodies, along with capillary abnormalities observed in nailfold capillaroscopy, can help confirm the diagnosis. Early detection is crucial, as scleroderma can progress and lead to significant complications, including fibrosis of internal organs.

Regarding the treatment options, the use of medications such as *莫須瘤* (likely referring to a specific immunosuppressive agent) can be beneficial in managing symptoms and slowing disease progression. However, the decision to initiate treatment, especially with immunosuppressive therapies, should be carefully considered, particularly in the context of mild symptoms. It is essential to have a thorough discussion with your healthcare provider about the risks and benefits of starting such treatment. In some cases, lifestyle modifications, such as avoiding cold exposure and managing stress, may be sufficient in the early stages.

As for the issue of applying for a major illness card, this can indeed be a complex matter. The criteria for such applications often require evidence of significant organ involvement or functional impairment. In the case of scleroderma, while skin changes may be apparent, the absence of severe internal organ involvement or significant fibrosis may lead to challenges in obtaining this designation. It is not uncommon for patients to feel frustrated by this process, especially when they are experiencing symptoms that impact their quality of life.
To improve your chances of a successful application, it may be helpful to gather comprehensive documentation from your healthcare providers that outlines your symptoms, treatment plan, and any limitations you are experiencing in daily activities. This can provide a clearer picture of your condition and its impact on your life.

In summary, navigating the complexities of Raynaud's phenomenon and scleroderma requires a collaborative approach with your healthcare team. Open communication about your symptoms, treatment options, and concerns regarding major illness claims is vital. While the journey may be challenging, many patients find that with appropriate management and support, they can lead fulfilling lives despite their conditions. Always remember to advocate for yourself and seek clarification on any aspects of your care that you find confusing or concerning.

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