Struggling with Ichthyosis: Seeking Effective Treatments for Relief

Doctor, please help me... I have ichthyosis?

Hello...
I previously had ichthyosis on my feet and have seen many doctors.
I underwent electrosurgery once, but it was ineffective (the doctor said it would resolve on its own eventually).
I also tried cryotherapy, undergoing it about 4 to 5 times (the doctor mentioned it would take several sessions to heal).
However, none of these treatments worked, and my feet have been painful for several months.
The electrosurgery was particularly painful, preventing me from attending school.
Although the cryotherapy was less painful, it still hurt, and there were no results.
I'm really at my wit's end.
Now, I have five affected areas on my feet.
I researched online and found that salicylic acid might help.
I asked my doctor about it, but he said there’s no topical medication available.
My dad and I went to the pharmacy to buy salicylic acid, but we couldn't find it.
Is there any topical medication for ichthyosis? If so, where can I buy it, and how should I use it? Doctor, please help me...
I’m too embarrassed to show my feet to anyone because they look terrible.
I no longer want to undergo electrosurgery or cryotherapy.
Please provide me with some answers.
Thank you!

A-Hui, 10~19 year old female. Ask Date: 2004/11/12

Dr. Jiang Zheen reply Dermatology

The skin condition you have is referred to as fish scale disease, and the medical term is viral warts.
The latest method for treatment involves the use of a topical immunomodulator called Adara.
You may want to consult your dermatologist about this.
Wishing you well.

Reply Date: 2004/11/12

More Info

Ichthyosis is a group of skin disorders characterized by dry, scaly skin that can be quite distressing and uncomfortable. It can significantly impact a person's quality of life, leading to physical discomfort and psychological distress due to its visible nature. Your experience with treatments such as electrosurgery and cryotherapy, which have not yielded the desired results, is unfortunately not uncommon in the management of ichthyosis.
The treatment of ichthyosis often requires a multifaceted approach, as there is no one-size-fits-all solution. The primary goal is to manage symptoms and improve the skin's appearance and texture. Here are some effective treatment options and strategies that may help you find relief:
1. Moisturizers: Regularly applying emollients or moisturizers is crucial for managing ichthyosis. Look for products that contain ingredients like urea, lactic acid, or glycerin, which can help to hydrate the skin and reduce scaling. These should be applied immediately after bathing to lock in moisture.

2. Exfoliating Agents: Keratolytic agents, such as salicylic acid, can help to remove the buildup of dead skin cells. While you mentioned difficulty in obtaining salicylic acid, it is often available in over-the-counter formulations. You can find creams or lotions that contain salicylic acid at pharmacies or online. Start with a lower concentration to see how your skin reacts, and apply it as directed.

3. Topical Retinoids: Prescription topical retinoids, such as tretinoin, can help to normalize skin cell turnover and reduce scaling. These medications can be effective but may cause irritation, so it's essential to follow your dermatologist's guidance on usage.

4. Bathing Practices: Taking warm baths with added oils or oatmeal can help soothe the skin. After bathing, gently pat the skin dry and apply a moisturizer while the skin is still damp to maximize hydration.

5. Oral Medications: In some cases, dermatologists may prescribe oral retinoids for more severe forms of ichthyosis. These medications can help to reduce the production of skin cells and improve overall skin texture. However, they come with potential side effects and require careful monitoring.

6. Phototherapy: Some patients benefit from phototherapy, which involves exposure to ultraviolet light under medical supervision. This treatment can help to reduce scaling and improve skin appearance.

7. Support and Counseling: Given the psychological impact of ichthyosis, consider seeking support from mental health professionals or support groups. Connecting with others who share similar experiences can provide emotional relief and coping strategies.

8. Consultation with a Dermatologist: If you haven't already, it may be beneficial to seek a second opinion from a dermatologist who specializes in ichthyosis or other skin disorders. They can provide tailored treatment options and may have access to newer therapies.

In summary, while ichthyosis can be challenging to manage, there are various treatment options available that can help alleviate symptoms and improve your quality of life. It's essential to work closely with a healthcare provider to develop a personalized treatment plan that addresses your specific needs. Don't hesitate to advocate for yourself and seek out the resources and support you need to manage this condition effectively.

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