Can Thrombocytopenic Purpura Be Fatal? Urgent Help Needed for 30-Year-Old - Rare Disease

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Can purpura be fatal? My younger sibling is only 30 years old and is in critical condition!


Dear Sir,
My sibling has been diagnosed with purpura at Tri-Service General Hospital.
They have red spots on their back and abdomen, and their condition fluctuates between better and worse.
Sometimes they are conscious, and sometimes they are not.
They have undergone blood transfusions, but in the past two days, they have been unconscious and unable to recognize people.
There seems to be a deterioration in their condition.
Is there any specific medication for this? Can purpura be fatal? We urgently need guidance!
My sibling is only in their early 30s and has developed this rare illness.
The hospital has issued a critical condition notice and has had us sign a consent form.
We hope that someone with a kind heart can help save them.
A good-hearted person should be able to sleep well every night, so please help!
The symptoms are as follows: They were generally healthy with no prior illnesses, but a few days ago, they suddenly felt unwell with leg pain and were unable to walk.
They went to the hospital for examination and were admitted.
That night, they experienced severe pain, but two days later, they felt better and were discharged.
However, the following day, they felt unwell again and returned to the hospital.
That night, they experienced severe pain again, and their condition became critical with full-body edema, requiring dialysis.
They have inflammation, are unconscious, and are on life support with tubes inserted.
They are unable to urinate, sometimes their eyes are wide open, and they have leg cramps, but they are unconscious.
They have been to Beihua University Hospital, National Taiwan University Hospital, and Tri-Service General Hospital, where they only know there is an infection but cannot identify the source or virus.
Their life is hanging by a thread, and we kindly ask for any advice from experts.
Thank you!
If you have valuable suggestions, please call 0960720294 or email: [email protected].

Sincerely,
Mr.
Hsu

Mr. Hsu, 40~49 year old female. Ask Date: 2007/07/03

Dr. Jian Yingxiu reply Rare Disease


There are many causes of purpura, and the prognosis is often poor.
It is advisable to discuss a detailed treatment plan with your attending physician.

Reply Date: 2007/07/03

More Info


Thrombocytopenic purpura, particularly in its severe forms, can indeed be life-threatening. This condition is characterized by a low platelet count, which can lead to increased bleeding and bruising. In the case of your sister-in-law, the presence of purpura (the red or purple spots on the skin) indicates that her blood vessels are leaking blood into the skin due to the low platelet count.
The symptoms you describe, such as fluctuating consciousness, severe abdominal pain, and swelling, suggest that her condition may be deteriorating. The fact that she has required blood transfusions and is currently on dialysis indicates significant complications, possibly related to her underlying condition or secondary complications such as infections or organ failure.

There are different types of thrombocytopenic purpura, including Immune Thrombocytopenic Purpura (ITP), Thrombotic Thrombocytopenic Purpura (TTP), and others. Each type has different causes and treatment approaches. TTP, for example, is a medical emergency that requires immediate treatment, often with plasma exchange therapy, steroids, and sometimes immunosuppressive medications.
In terms of specific treatments, there is no "one-size-fits-all" medication for thrombocytopenic purpura. The treatment depends on the underlying cause of the thrombocytopenia. For instance, if it is due to an autoimmune process, corticosteroids or other immunosuppressive therapies may be used. If it is due to a secondary cause, such as an infection or a reaction to medication, addressing that underlying issue is crucial.

Given the severity of your sister-in-law's condition, it is essential that she remains under close medical supervision in a hospital setting. The medical team will likely continue to monitor her platelet levels, assess for any signs of bleeding, and manage any complications that arise.
As for the question of whether thrombocytopenic purpura can be fatal, the answer is yes, particularly if it leads to significant bleeding or if there are complications such as organ failure. The prognosis can vary widely depending on the underlying cause, the patient's overall health, and how quickly treatment is initiated.

In urgent situations like this, it is critical to maintain open communication with the healthcare team. They can provide the most accurate information regarding her condition and the potential for recovery. If there are concerns about the current treatment plan or if you feel that her condition is not improving, do not hesitate to ask for a second opinion or to discuss alternative treatment options with her doctors.

In summary, thrombocytopenic purpura can be a serious and potentially fatal condition, especially in the context of severe symptoms and complications. Immediate and appropriate medical intervention is crucial for the best possible outcome. Please ensure that your sister-in-law receives the necessary care and support during this critical time.

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