Coping with Terminal Lung Cancer: A Daughter's Journey and Care Tips - Oncology

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My father passed away last Tuesday?


Dr.
Chen Si-Rong: Hello! Thank you for your suggestions.
My father underwent emergency surgery for a perforated intestine on the 27th of last month.
Although the surgery was successful, he later contracted a CMV virus, leading to a lung infection and severe pneumonia, which ultimately resulted in his passing.
The death certificate we received two days ago states that my father died from lung cancer, respiratory failure, and lung infection.
We are currently making arrangements for his funeral, hoping he can reach a peaceful afterlife.
Best wishes!
Reader Mandy: Your question: Hello, doctor! My 68-year-old father has been diagnosed with lung cancer for three years.
By the time it was discovered, he was already at the late stage of stage II.
He has undergone surgery, radiation therapy, and chemotherapy, with no signs of recurrence.
For the past three years, he has also been seeing a traditional Chinese medicine practitioner and consuming cloud mushrooms to maintain his health.
Unfortunately, cancer cells have continued to invade other organs.
Two years ago, the cancer metastasized to his pelvis and femur, requiring him to undergo a hip replacement.
In October of last year, it was discovered that the cancer cells had continued to invade the site of the artificial joint, necessitating another replacement surgery on April 17 of this year to prevent him from being unable to walk.
He was discharged in early June and returned home to rest.
In mid-June, after returning home, my father began experiencing headaches and gradually became less alert, showing signs of forgetfulness and lethargy.
After returning to the hospital for examination, it was found that the cancer cells had metastasized to his brain.
The doctor advised against brain surgery, and after medication, his alertness returned, but he still feels weak and prefers to stay in bed.
Now, he needs to sleep for long periods each day and is undergoing radiation therapy at the hospital until this Friday (July 20).
However, he experiences shortness of breath after walking just a few steps; the distance from the bathroom to his room is only twenty steps, and he feels breathless even after lying down.
After consulting with the family doctor, it was suggested that his lung condition will continue to deteriorate, and he should try to walk more, but my father says he no longer has the strength to take another step.
I would like to ask the doctor how we can care for him in terms of diet and daily living.
I apologize for the inconvenience and sincerely seek your guidance.
Best wishes!
Response from Dr.
Chen Si-Rong, Oncology:
1.
Generally speaking, if there is brain metastasis, the average life expectancy is 4-6 months.
Please prepare yourself mentally, and for a more accurate time estimate, consult his attending physician.
2.
The process of disease deterioration will naturally lead to shortness of breath and difficulty walking.
The doctor’s advice is to encourage him to walk as much as possible, which psychologically conveys the message of not giving up.
3.
While everyone will eventually face death, how one confronts it can lead to a sense of peace and acceptance, even joy.
The waiting period can be very challenging.
4.
Family and friends should face death together with him.
5.
If he has religious beliefs, it would be beneficial to pray together or engage in spiritual practices.
6.
In terms of diet, as a Western medicine practitioner, I recommend he eat whatever he enjoys.
If he is losing weight, it indicates he is not eating enough.
High-protein supplements or drinks, such as Ensure or Abbott, should be included, with a daily caloric intake of at least 1800-2000 calories.
7.
He can take dietary supplements or even have a professional traditional Chinese medicine practitioner prepare tonics, but expensive options are not necessary.
If he has been taking something for a while without feeling any improvement in energy or strength, it may be best to discontinue it.
8.
Spend more time with him, even discussing death openly.
Engage in prayer or spiritual practices together, and encourage him to be active within his capabilities, even if it means just going for a drive to see the outside world.
9.
Focus on the name of a deity, visualizing sunlight enveloping your home completely, and bless him.

Mandy, 30~39 year old female. Ask Date: 2007/08/11

Dr. Chen Sirong reply Oncology


Please accept my condolences.
I suggest you focus on the name of a deity, visualizing the sun descending upon your home, completely enveloping it, and offering blessings for him.

Reply Date: 2007/08/11

More Info


Coping with terminal lung cancer is an incredibly challenging journey, both for the patient and their loved ones. As a daughter navigating this difficult time, it is essential to focus on providing comfort, support, and quality care for your father. Here are some insights and tips that may help you during this journey.


Understanding the Situation
Your father has been diagnosed with terminal lung cancer, which can lead to various complications, including respiratory issues, pain, and fatigue. As the disease progresses, it is common for patients to experience a decline in their physical abilities, leading to increased dependence on caregivers. It is crucial to understand that this is a natural part of the disease's progression.


Pain Management
One of the most critical aspects of caring for a terminal cancer patient is effective pain management. Ensure that your father is receiving appropriate pain relief medications, which may include opioids or other analgesics. Regularly communicate with his healthcare team about his pain levels and any adjustments needed in his medication regimen. Palliative care specialists can provide additional support in managing pain and other symptoms.


Nutritional Support
Nutrition plays a vital role in maintaining your father's strength and overall well-being. Encourage him to eat small, frequent meals that are high in calories and protein. Foods like smoothies, yogurt, and protein shakes can be beneficial if he has a reduced appetite. It’s essential to focus on what he enjoys eating, as this can help improve his quality of life. If he struggles to eat solid foods, consider consulting a nutritionist who specializes in oncology to develop a tailored meal plan.


Emotional and Psychological Support
The emotional toll of terminal illness can be significant. Encourage open conversations about his feelings, fears, and wishes. It can be helpful to involve family members and close friends in these discussions, as they can provide additional emotional support. If your father is open to it, consider involving a counselor or therapist who specializes in grief and end-of-life issues.


Creating a Comfortable Environment
Ensure that your father's living space is comfortable and conducive to rest. This may involve adjusting his bed for better positioning, minimizing noise, and ensuring he has easy access to necessary items. Soft lighting and familiar items can create a soothing atmosphere. Additionally, consider incorporating elements that bring him joy, such as favorite music or photographs.


Encouraging Mobility
While your father may feel fatigued, gentle movement can help maintain some level of physical function. Encourage him to engage in light activities, such as short walks or stretching, as tolerated. This can help improve circulation and reduce feelings of fatigue. However, always prioritize his comfort and safety, and consult with his healthcare team about appropriate levels of activity.


Spiritual Care
If your father has religious or spiritual beliefs, incorporating these into his care can provide comfort. This may involve prayer, meditation, or simply discussing his beliefs and values. Engaging in spiritual practices can help him find peace and acceptance as he approaches the end of life.


Planning for the Future
Discussing end-of-life wishes is essential. This includes preferences for medical interventions, hospice care, and funeral arrangements. Having these conversations can relieve some of the burdens on family members later on and ensure that your father's wishes are honored.


Seeking Professional Help
Consider involving hospice or palliative care services, which specialize in providing comprehensive support for patients with terminal illnesses. These services can offer medical care, emotional support, and assistance with daily activities, allowing you to focus on spending quality time with your father.


Conclusion
Coping with terminal lung cancer is a profound journey filled with emotional and practical challenges. By focusing on pain management, nutritional support, emotional well-being, and creating a comfortable environment, you can help enhance your father's quality of life during this time. Remember to take care of yourself as well, as caregiving can be demanding. Seek support from friends, family, or support groups to navigate this journey together.

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