Autonomic Nervous System Disorders: A Family's Struggle

Autonomic Nervous System Dysregulation

Hello, my mother is 54 years old.
Since the beginning of this year, we thought she was experiencing menopausal disorders, but by early July, after seeing a psychiatrist, it became clearer that she is suffering from autonomic nervous system dysfunction.
I researched some related information online and learned that this is not a condition that can be cured in just a few days.
However, my mother's symptoms are erratic, fluctuating between good and bad, leading her to believe she has other diseases.
She has seen specialists in cardiology, urology, undergone colonoscopy, and blood tests; she has gone through a series of examinations at different hospitals, but nothing conclusive has been found.
The medications prescribed by the psychiatrist are largely similar.
She has not been adhering to the medication regimen and has even stopped taking her medications, claiming they cause her heart weakness.
One day, she even attempted to go upstairs to hang herself.

My mother's symptoms are truly difficult to describe.
Recently, my father and I have begun to wonder if the medications prescribed by the psychiatrist are too strong, potentially leading to dependency, but not taking them is not an option either.
Gradually, even with sedatives, she is unable to sleep; taking an extra pill does not help her sleep.
She has lost the sensation to urinate and defecate, needing to remind herself to go, and sometimes she cannot even do that.
She has no appetite and is in a very poor state, unable to find comfort whether sitting or lying down.
Yesterday, she visited Chang Gung Memorial Hospital and was found to have a slight gastric ulcer.
I believe this is part of a vicious cycle.
We have visited all the nearby hospitals, and the medications prescribed are quite similar, which is disheartening because the doctors have not provided any definitive answers, only prescribing more medications.
However, the medications are causing my mother significant distress, and not taking them is not a solution.
When I suggested she see a traditional Chinese medicine practitioner, she said it was too late.
I truly do not know what to do.
Attached are the names of the medications she received during her first visit to the psychiatrist: Kinax, Dogmatyl, Eszo, Mocalm.

A Ban, 10~19 year old female. Ask Date: 2009/10/18

Dr. Su Zongwei reply Psychiatry

There are many instances when severe autonomic nervous system dysfunction can lead to the development of depression.
I wonder if the doctor is aware of your mother's current condition? If there have been changes related to the autonomic nervous system dysfunction, it is important to communicate effectively with the physician, as it may be necessary to adjust her medication.
Additionally, it's not just a matter of whether the medication is strong or weak; if it is either too potent, too mild, or not suitable, adjustments should be made through proper communication with the doctor.

Reply Date: 2009/10/18

More Info

It sounds like your mother is experiencing a complex interplay of symptoms that may be related to autonomic nervous system (ANS) disorders, compounded by her mental health challenges. The autonomic nervous system regulates involuntary bodily functions, including heart rate, digestion, respiratory rate, and more. When it becomes dysregulated, it can lead to a variety of symptoms that can be distressing and difficult to manage.

From your description, it appears that your mother has been through a significant amount of medical evaluation, which is often necessary to rule out other potential causes of her symptoms. The fact that she has seen multiple specialists and undergone various tests indicates a thorough approach to her care, but it can also lead to frustration when no clear answers are found.

The symptoms you describe—such as fluctuating health, insomnia, gastrointestinal issues, and emotional distress—can indeed be indicative of an ANS disorder. Conditions like dysautonomia can manifest in ways that mimic other diseases, leading to confusion and a sense of helplessness for both the patient and their family. It’s important to recognize that these symptoms can be exacerbated by stress, anxiety, and depression, which may be contributing to your mother's overall condition.

The medications prescribed by her psychiatrist, such as Kinax (an antipsychotic), Dogmatyl (an anxiolytic), Eszo (an antidepressant), and Mocalm (a muscle relaxant), may have side effects that complicate her symptoms. It’s not uncommon for patients to experience adverse reactions to psychiatric medications, which can lead to a cycle of worsening symptoms and increased distress. If your mother feels that the medications are causing her more harm than good, it’s crucial to communicate this to her healthcare provider. Adjustments to her medication regimen may be necessary, and it’s essential that any changes are made under medical supervision.

Given the complexity of her symptoms, it may be beneficial to seek a multidisciplinary approach to her care. This could involve not only her psychiatrist but also a neurologist, a gastroenterologist, and possibly a psychologist or therapist who specializes in chronic illness. A team approach can help ensure that all aspects of her health are being addressed and that her treatment plan is comprehensive.

Additionally, consider exploring non-pharmacological interventions that may help alleviate some of her symptoms. Techniques such as cognitive-behavioral therapy (CBT), mindfulness, and relaxation exercises can be effective in managing anxiety and improving overall well-being. Nutritional support and gentle physical activity, if appropriate, can also play a role in improving her physical health and mood.

It’s understandable that you feel overwhelmed and uncertain about how to proceed. Supporting a loved one with complex health issues can be incredibly challenging. Make sure to take care of your own mental health as well; seeking support for yourself, whether through counseling or support groups, can provide you with the tools to better assist your mother.

In summary, your mother’s situation is multifaceted and requires careful management. Open communication with her healthcare providers about her symptoms and medication side effects is essential. A collaborative approach involving multiple specialists may provide a clearer path forward. Lastly, consider integrating supportive therapies that can enhance her quality of life and help her cope with the challenges she is facing.

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