Systemic lupus erythematosus (SLE)
Hello Dr.
Huang, thank you for your previous response.
The biopsy results indicate Lupus.
The diagnosis from the ENT specialist is "Relapsing Polychondritis." However, in "The Lupus Book" by Daniel J.
Wallace, M.D., it is mentioned that a very small number of SLE patients may experience chondritis of the external ear, but it does not spread to other cartilage.
The doctor has prescribed Prednisone (60mg/day), and the condition seems to be improving.
I have also switched to a vegetarian diet, hoping it will help my condition.
I will continue to update photos in this album: http://s812.photobucket.com/albums/zz43/dudusun/Lupus/
Could you please tell me what the chances of recovery are for lupus patients in Taiwan when treated with a combination of traditional and Western medicine? Additionally, are there any dietary and lifestyle restrictions I should be aware of? Thank you.
Wishing you good health, dudu.
dudu, 20~29 year old female. Ask Date: 2010/02/22
Dr. Huang Ruiyun reply Dermatology
Hello: Lupus erythematosus (LE) does not necessarily equate to systemic lupus erythematosus (SLE).
A patient with LE must meet certain criteria to be diagnosed with SLE.
Whether you are an SLE patient should be determined by your clinician based on your overall condition.
Relapsing polychondritis is an autoimmune disease, and SLE is also an autoimmune disease; it is possible for both different autoimmune diseases to occur in the same patient.
A vegetarian diet may not necessarily be beneficial, so there is no need to take it too seriously.
Do not approach these diseases with the mindset of recovery or eradication; instead, learn how to coexist with them.
Each patient will have a different experience, and treatment will fluctuate with the condition.
If you seek a traditional Chinese medicine practitioner, it is best to find one who also holds a Western medical license.
Maintain a regular routine, avoid staying up late, and minimize stress in your life.
Eat a balanced diet.
Unless permitted by your clinician, do not consume so-called immune-boosting foods such as reishi mushrooms or alfalfa sprouts, as these may exacerbate your autoimmune system.
During flare-ups, doctors will prescribe medications to suppress the immune system, so it is important to avoid infections; wear a mask in crowded places and wash your hands thoroughly after returning home.
Regardless of the weather, always apply sunscreen before going out during the day.
Wishing you safety.
Reply Date: 2010/02/22
More Info
Managing lupus, particularly systemic lupus erythematosus (SLE), requires a comprehensive approach that integrates both conventional and alternative therapies. Your experience with the diagnosis of lupus and the associated condition of relapsing polychondritis is not uncommon, as lupus can manifest in various ways, including affecting cartilage and soft tissues. The use of prednisone at a dosage of 60 mg/day is a standard approach for managing inflammation and autoimmune responses in lupus patients, and it appears that you are experiencing some improvement.
In terms of the effectiveness of combining Western and traditional Chinese medicine (TCM) for treating lupus in Taiwan, there is a growing body of evidence suggesting that integrative approaches can be beneficial. While the exact recovery rates can vary widely based on individual circumstances, including the severity of the disease, the presence of comorbidities, and adherence to treatment protocols, many patients report improved quality of life and symptom management when combining these approaches. TCM may offer supportive therapies that can help alleviate symptoms, improve immune function, and enhance overall well-being.
Diet and lifestyle play crucial roles in managing lupus. Here are some dietary considerations and lifestyle tips that may help you in your recovery journey:
1. Anti-inflammatory Diet: Focus on a diet rich in fruits, vegetables, whole grains, and healthy fats, such as omega-3 fatty acids found in fish and flaxseeds. These foods can help reduce inflammation and support overall health.
2. Avoid Trigger Foods: Some lupus patients find that certain foods can exacerbate their symptoms. Common culprits include processed foods, high-sugar items, and excessive salt. It may be beneficial to keep a food diary to identify any potential triggers.
3. Hydration: Staying well-hydrated is essential for kidney health, especially since lupus can affect kidney function. Aim to drink plenty of water throughout the day.
4. Sun Protection: Many lupus patients are sensitive to sunlight, which can trigger flares. Use sunscreen with a high SPF, wear protective clothing, and seek shade whenever possible.
5. Regular Exercise: Engage in low-impact exercises, such as walking, swimming, or yoga. Regular physical activity can help maintain joint flexibility, reduce fatigue, and improve mood.
6. Stress Management: Stress can exacerbate lupus symptoms. Consider incorporating stress-reducing practices such as meditation, deep breathing exercises, or mindfulness into your daily routine.
7. Adequate Rest: Fatigue is a common symptom of lupus. Ensure you get enough sleep and listen to your body when it needs rest.
8. Regular Medical Check-ups: Keep up with your appointments and communicate openly with your healthcare providers about any changes in your symptoms or side effects from medications.
9. Support Systems: Engage with support groups or communities of individuals with lupus. Sharing experiences and coping strategies can provide emotional support and practical advice.
In conclusion, while the path to managing lupus can be challenging, a holistic approach that includes both medical treatment and lifestyle modifications can significantly enhance your quality of life. Always consult with your healthcare provider before making any significant changes to your treatment plan or lifestyle. Your proactive approach to your health, including dietary changes and seeking integrative therapies, is commendable and can lead to better management of your condition. Wishing you continued improvement and well-being on your journey.
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