Urgent Concerns: Family's Struggle with Father's Neurological Condition - Neurosurgery

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A family member's inquiry about a patient with an urgent medical condition?


Dear Dr.
Ding,
I am a family member of a patient.
My surname is Lai, and I live in Miaoli.
I would like to ask some questions regarding my father's condition.
Two weeks ago, my father fell at home and sustained a head injury.
On the day of the injury, there was a large bump on his head, but we did not take him to the emergency room immediately; instead, we applied ice and monitored for signs of a concussion.
Throughout the day, he did not report any discomfort, so we temporarily felt reassured and did not take him to see a doctor.
However, starting the next day, he began to complain of headaches.
He has a history of insomnia and takes a high dosage of sleeping pills.
We assumed his headaches were due to lack of sleep, so we took him to a nearby clinic for pain relief injections.
After several days of persistent headaches and the onset of vomiting, we finally took him to the hospital's emergency department.
The doctor performed a CT scan, which showed no abnormalities.
We informed the doctor about the head injury, and he examined the bruise, which had turned purple and black, and advised us to apply heat at home.
After returning home, my father's headache symptoms did not improve.
The doctor only prescribed pain medication, which was ineffective, and he continued to complain of headaches.
Two days later, we took him to the emergency room again.
This time, he underwent a chest X-ray and blood tests.
The X-ray results were normal, but his white blood cell count was over 19,000.
The doctor inquired if there were any wounds on his body.
I mentioned that he had a previous bacterial skin infection on his leg, which had caused some skin breakdown, and he was undergoing treatment with dermatological medication.
The doctor attributed the elevated white blood cell count to the skin condition and sent us home.
A few days later, my father became unsteady on his feet and walked as if he were intoxicated.
Since we were all at work, we did not notice his abnormal behavior and assumed it was due to the heavy dosage of sleeping pills.
He did not express any discomfort until the morning of May 12, when he was completely unable to stand.
Upon attempting to stand, he collapsed and vomited black liquid, also experiencing a loss of consciousness.
We called an ambulance to take him to the hospital, where he underwent a chest X-ray, CT scan, and blood and urine tests.
At this point, his white blood cell count had risen above 20,000.
The examination revealed (1) mild bleeding in the head, (2) fever, (3) pneumonia in the chest, and (4) vomiting of black liquid.
Tests suggested that he might have gastric bleeding due to excessive medication (he has a history of stroke and is on medications from neurology, psychiatry, and pain management).
He was then admitted to the neurosurgery department.
Since his admission, he has been receiving antibiotics and hemostatic injections, but his headache persists.
They also administered medications to reduce intracranial pressure and additional oral pain medications.
The doctors discontinued all his usual medications for stroke and psychiatric conditions.
His headaches have been intermittent, and his blood pressure has remained around 170.
Although he responds when called, he spends the entire day in a stupor, gradually eating less and has not had a bowel movement since May 11.
During this time, there have been no consultations with other specialists.
When we inquired about the ongoing headaches, the doctor stated that the bleeding in the brain would be reabsorbed and that we could follow up in outpatient care.
However, he mentioned that there was water accumulation causing increased intracranial pressure, leading to the headaches, and that the area of accumulation had become compressed and stagnant, requiring a minor surgical procedure to place a drain to remove the excess fluid.
However, due to concerns about pneumonia and infection, no procedures can be performed at this time.
My father is over 70 years old, and we are worried that the continued injections without further examinations of his chest and brain may worsen his condition.
It is concerning that the doctor mentioned that the first CT scan should have detected the fluid accumulation, suggesting that the emergency physician was not sufficiently skilled to notice it, which raises doubts about the professionalism of the medical staff.
Additionally, we are dissatisfied with the attitude of the attending neurosurgeon, who spoke casually and dismissively, did not conduct a thorough patient assessment, and left without addressing our concerns.
If we had not asked, we would still be unaware of the fluid accumulation and the need for surgery.
We would like to know what steps we should take now.
Should we consider transferring to another hospital, or do you have any other recommendations for our family? Thank you for taking the time to read this letter.
We look forward to your response and sincerely appreciate your help.
Best regards.

Miao Miao, 40~49 year old female. Ask Date: 2011/05/14

Dr. Ding Xianwei reply Neurosurgery


Due to the lack of clarity in your description, it would be helpful if you could bring all imaging data, a list of medications previously taken, and a summary of the medical case directly to my clinic.
This would assist in making further decisions.
Since the information is incomplete, I can only make logical inferences.
There may be two potential brain-related causes: one is normal pressure hydrocephalus, and the other is chronic subdural hematoma.
If it is normal pressure hydrocephalus, this could very well be the primary reason for your father's fall.
He may require a ventriculoperitoneal shunt surgery; however, this condition is part of a degenerative process in the brain, so such surgery would only delay the progression of degeneration.
It may improve his quality of life for a period, but the duration of that improvement varies from person to person.
If it is chronic subdural hematoma, surgery might be more beneficial for him.
However, there is a 10-20% chance of recurrence with such surgeries.
Additionally, you mentioned he is in a coma but did not clearly describe the nature of his coma, making it difficult to assess his condition.

It appears that your father's most pressing issues are not related to the brain but rather to infections and gastrointestinal bleeding, with a possibility of sepsis and respiratory failure.
Since you did not provide his past medical history or details about previous strokes and the specific medications he has taken, it is unclear whether the intracranial bleeding could be due to medications for ischemic stroke or if diabetes has compromised his immune function.
Furthermore, what psychiatric medications is he on, and are there signs of early dementia that necessitate their use? Many aspects cannot be adequately addressed online.
A clinic visit for further inquiries and discussions is necessary to obtain the required answers.

Regarding the hydrocephalus (based on your description, I am unsure of the specific type), if dementia is already present, the likelihood of normal pressure hydrocephalus increases significantly.
However, I do not believe it is an urgent issue that requires immediate intervention.
Based on your initial description of the care following the head injury, it seems that was the best treatment and care.
If he had been taken to the hospital immediately, it likely would not have significantly impacted the overall course of his illness, and any examinations conducted at that time would not have influenced subsequent developments, potentially leading to unnecessary complications.
Emergency physicians are not specialists in neurosurgery; they can only manage acute conditions and should not be held to a higher standard.

It may be necessary to address various internal medicine issues before neurosurgery becomes relevant.
The above is merely speculation based on the information you provided, and I hope these insights may assist your father.
Online inquiries are only a reference and cannot serve as a basis for any medical decisions; furthermore, online consultations are not legally permissible.
Therefore, I recommend that you seek a second opinion by bringing all imaging data, a list of medications previously taken, and a summary of the medical case.
If it is inconvenient to come to my clinic, please consult another hospital.
I wish for your father's swift recovery.

Reply Date: 2011/05/14

More Info


Dear Lai,
Thank you for reaching out and sharing the detailed account of your father's medical situation. It sounds like your family is going through a very challenging time, and I want to address your concerns as thoroughly as possible.

From your description, it appears that your father has experienced a series of complications following his fall and subsequent head injury. Initially, the decision to monitor him at home after the fall was understandable, especially if he did not exhibit immediate concerning symptoms. However, the development of persistent headaches, vomiting, and ultimately the inability to stand indicates that his condition may have worsened significantly.

The symptoms you describe—such as the severe headaches, vomiting of black liquid, and loss of consciousness—are concerning and suggest that there may be more serious underlying issues, such as intracranial bleeding or increased intracranial pressure. The fact that he has a history of stroke and is on multiple medications adds complexity to his case, as these factors can influence both his neurological status and his overall health.

The medical team’s decision to perform imaging studies, such as CT scans, is crucial in diagnosing potential complications from the head injury. However, it is concerning that there was a delay in recognizing the presence of fluid accumulation (hydrocephalus) in his brain. Hydrocephalus can lead to increased intracranial pressure, which can cause significant neurological damage if not addressed promptly. The need for a shunt to drain excess fluid is a common procedure in such cases, but it must be balanced against the risks posed by his current pneumonia and infection.

Given your father's age and the complexity of his medical issues, it is essential to ensure that he receives appropriate and timely care. Here are some recommendations for your situation:
1. Seek a Second Opinion: If you feel that the current medical team is not addressing your father's needs adequately, it may be beneficial to seek a second opinion from another neurologist or neurosurgeon. This can provide you with additional perspectives on his treatment options and the urgency of his condition.

2. Consider Transferring Hospitals: If you are dissatisfied with the care your father is receiving, especially regarding the communication and thoroughness of the medical staff, you might consider transferring him to another facility that specializes in neurology or geriatrics. Ensure that the new hospital has a good reputation for handling complex cases like your father's.

3. Advocate for Comprehensive Care: When speaking with the medical team, be clear about your concerns regarding his ongoing symptoms, the need for further diagnostic testing, and the urgency of addressing the hydrocephalus. Don’t hesitate to ask for detailed explanations about his condition, treatment plan, and the rationale behind their decisions.

4. Monitor Symptoms Closely: Keep a detailed record of your father's symptoms, including any changes in his consciousness, mobility, and overall condition. This information can be invaluable when discussing his case with healthcare providers.

5. Support for Family Members: Caring for a loved one with complex medical needs can be emotionally taxing. Consider seeking support for yourself and your family, whether through counseling, support groups, or community resources.

In conclusion, your father's situation requires careful monitoring and potentially more aggressive intervention. It is crucial to advocate for his health and ensure that he receives the best possible care. Please keep in touch with the healthcare providers and do not hesitate to escalate your concerns if you feel they are not being addressed adequately.

Wishing you and your family strength during this difficult time.

Best regards.

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