Frustrating Journey: Seeking Answers for Arm Pain and Nerve Issues

I visited several hospitals, and the answers I received were all different. I felt like I was being tossed around like a football. Is this what you call the professionalism and quality of doctors?

I have swelling and pain in my left arm, my left index finger is naturally raised and cannot bend, and there is atrophy in my left thumb.
I have visited several hospitals in central Taiwan, including Tzu Chi, Changhua Christian Hospital, Show Chwan Hospital, Yuan Sheng Hospital, traditional Chinese medicine practitioners, and martial arts clinics, but no doctor has been able to provide a correct diagnosis.
I was referred from orthopedics to neurosurgery, and then neurosurgery referred me to cardiology, which in turn sent me back to orthopedics.
I want to know what is going on! The pain is unbearable, and when I went to the emergency room, they said it was lymphadenopathy but did nothing.
Do I have to wait until amputation is necessary before receiving proper medical care? Where can I find a doctor with professionalism and a sense of ethical responsibility?

mark, 40~49 year old female. Ask Date: 2011/05/23

Dr. Ding Xianwei reply Neurosurgery

Due to the incomplete nature of your information, I can only provide suggestions based on experience.
Your issue may involve more than one problem; the atrophy of your thumb could be related to a neurological issue.
If it is a lymphatic obstruction, then you would need to consult a cardiovascular surgeon.
It could also potentially be a rheumatological or immunological issue.
Further recommendations cannot be made based on the information provided.
Therefore, if you are unable to find a suitable physician, I recommend seeking medical attention at Taipei Medical Center.

Reply Date: 2011/05/23

More Info

It sounds like you are experiencing a very frustrating and painful situation with your left arm, and I empathize with the challenges you are facing in seeking a proper diagnosis and treatment. The symptoms you describe—swelling, inability to bend your left index finger, and atrophy of your left thumb—are concerning and warrant a thorough evaluation.

From your description, it appears that you have seen multiple specialists, including orthopedic surgeons, neurosurgeons, and cardiologists, without receiving a definitive diagnosis. This can often happen in complex cases where symptoms overlap multiple systems in the body, leading to a cycle of referrals without resolution. The fact that you are experiencing significant pain and functional limitations is particularly troubling and should not be dismissed.

The symptoms you are experiencing could be indicative of several potential conditions. For instance, the inability to bend your finger and the atrophy of your thumb could suggest a nerve issue, such as carpal tunnel syndrome, ulnar nerve entrapment, or even a more systemic issue affecting nerve function. Swelling in the arm could be due to various causes, including lymphatic obstruction, inflammation, or vascular issues.
Given the complexity of your symptoms, it may be beneficial to seek a comprehensive evaluation from a neurologist who specializes in peripheral nerve disorders. They can perform specific tests, such as nerve conduction studies and electromyography (EMG), to assess the function of the nerves and muscles in your arm. These tests can help identify if there is a nerve injury or compression that is contributing to your symptoms.

Additionally, imaging studies, such as MRI or ultrasound, may be necessary to visualize the structures in your arm and identify any abnormalities that could be causing your symptoms. It is essential to have a healthcare provider who is willing to take the time to understand your symptoms and perform a thorough evaluation rather than simply referring you from one specialist to another.

In the meantime, managing your pain is crucial. You might consider discussing pain management options with your healthcare provider, which could include medications, physical therapy, or even alternative therapies such as acupuncture or chiropractic care. Physical therapy can be particularly beneficial in maintaining mobility and strength in your arm while you seek a diagnosis.

It is also important to advocate for yourself during this process. If you feel that your concerns are not being taken seriously or that you are not receiving appropriate care, do not hesitate to seek a second opinion or ask for a referral to a specialist who has experience with complex cases.
Lastly, I understand your frustration with the healthcare system and the feeling of being passed around without answers. It is essential to find a physician who listens to you, respects your concerns, and is committed to finding a solution. You deserve a thorough evaluation and a treatment plan that addresses your pain and functional limitations.

In summary, I recommend seeking a neurologist for a comprehensive evaluation, considering pain management strategies, and advocating for yourself in the healthcare system. Your symptoms are significant, and it is crucial to find a healthcare provider who will take them seriously and work with you to find a resolution.

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