Feeling Lost After Neurology Tests: What Should I Do Next?

I'm not sure what to do?

Hello Doctor: I visited due to hand numbness and tremors, and the doctor noticed that my left leg also had some weakness.
I was asked to be hospitalized for further examination, and I stayed for two weeks during which I underwent MRI scans (of the head and neck), electromyography (EMG), and electroencephalography (EEG), all of which came back normal.
The physician has now conducted a nuclear medicine test for Parkinson's disease, and if that also comes back normal, he mentioned that he would not be able to determine the cause of my symptoms and advised me to discharge myself and rest at home.
I am unsure about what my next steps should be.
I have already been evaluated at a medical center; should I seek a transfer to another hospital for further examination? I feel very anxious not knowing the cause of my condition.

A Jian, 20~29 year old female. Ask Date: 2015/11/05

Dr. Gao Chunde reply Neurology

Medical centers are the places with the most healthcare resources and serve as the cradle for training specialized physicians.
If one medical center cannot make a diagnosis, another may not necessarily be able to either.
It is possible that the current medical equipment is unable to detect abnormalities, or the symptoms of the disease have not yet matured enough to be detectable.
In such cases, physicians may recommend that patients go home to rest and return for follow-up.
It is ultimately up to the individual to decide whether to seek another medical center, but there is a concern that they may undergo numerous tests that yield no results.

Reply Date: 2015/11/05

More Info

It sounds like you are going through a very challenging and confusing time with your health, especially after undergoing various neurological tests that have not provided clear answers. It's completely understandable to feel lost and anxious when faced with unexplained symptoms like hand tremors and weakness in your leg, especially after extensive testing that has yielded normal results.

Firstly, it’s important to acknowledge that the experience of not receiving a definitive diagnosis can be frustrating and disheartening. However, it is also essential to remember that normal test results do not necessarily mean that there is nothing wrong. Many neurological conditions can be subtle and may not always show up on standard tests like MRI or EEG.
Given your symptoms, it might be beneficial to consider a few steps moving forward:
1. Follow-Up with Your Neurologist: If you haven’t already, schedule a follow-up appointment with your neurologist to discuss your symptoms in detail. Bring up any new symptoms or changes you’ve noticed since your last visit. It’s crucial to communicate how you’re feeling both physically and emotionally.

2. Consider a Second Opinion: If you feel that your concerns are not being addressed adequately, seeking a second opinion from another neurologist or a specialized clinic might provide you with new insights or alternative diagnostic approaches. Different specialists may have varying experiences and perspectives that could lead to a more comprehensive evaluation.

3. Explore Other Specialists: Depending on your symptoms, it may be worthwhile to consult other specialists. For example, if your symptoms could be related to movement disorders, a specialist in movement disorders might offer additional insights. Similarly, if you suspect that your symptoms could be stress-related or psychological, a consultation with a psychiatrist or psychologist could be beneficial.

4. Lifestyle Modifications: While you are navigating through this uncertainty, consider focusing on lifestyle changes that can improve your overall well-being. Regular physical activity, a balanced diet, adequate sleep, and stress management techniques such as mindfulness or yoga can have a positive impact on your health and may help alleviate some symptoms.

5. Support Systems: Don’t hesitate to lean on your support system during this time. Talking to friends, family, or support groups can provide emotional relief and help you feel less isolated in your experience. Sharing your feelings and concerns with others who understand can be incredibly therapeutic.

6. Document Your Symptoms: Keeping a detailed diary of your symptoms, including when they occur, their intensity, and any potential triggers, can be helpful for your healthcare providers. This information can assist them in identifying patterns or correlations that may not be immediately apparent.

7. Stay Informed but Cautious: While it’s good to educate yourself about potential conditions, be cautious about self-diagnosing based on information found online. Focus on gathering information that can help you have informed discussions with your healthcare providers.

In conclusion, while the uncertainty surrounding your health can be daunting, taking proactive steps to seek further evaluation, exploring lifestyle changes, and utilizing your support network can help you navigate this challenging time. Remember, you are not alone in this journey, and there are professionals who can help guide you toward finding answers and relief.

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