Difficult to decide?
Hello Doctor, I apologize for summarizing my previous questions again.
Fatigue, excessive daytime sleepiness, altered consciousness, difficulty thinking, and poor memory are typical symptoms of Obstructive Sleep Apnea (OSA).
Initially, I had severe OSA with a minimum blood oxygen level below 65%.
After surgery, my Apnea-Hypopnea Index (AHI) has decreased to mild, and my blood oxygen levels are generally around 90%.
Although the obstruction has lessened, I still feel significant discomfort when lying flat.
The only strange finding is that my Respiratory Disturbance Index (RDI) remains above 17 per hour, with an arousal index greater than 11 per hour, and a lack of Slow Wave Sleep (SWS).
Currently, there are no facilities in the country to measure Pes to confirm the RDI.
My fatigue and chest tightness have improved by about half, but other symptoms persist, making work and daily life quite challenging.
Post-surgery, I consulted with ENT, neurology (where I had an MRI), psychiatry, and endocrinology, and most doctors believe that my OSA should have improved.
I have seen many patients online with similar situations (low AHI, high RDI) that have turned into clear Upper Airway Resistance Syndrome (UARS), presenting symptoms similar to OSA, such as brain fog, fatigue, and excessive daytime sleepiness (ESS).
Since the symptoms are indeed present, I have noticed significant obstruction in the soft palate area post-surgery, and the PSG data still shows significant sleep-disordered breathing with an elevated RDI.
I have also undergone some low-dose CT scans, which confirmed that the retropharyngeal space is still not very large when relaxed.
Due to the improvement in data, doctors believe that OSA should not be an issue.
However, further evaluations by internal medicine and psychiatry have not identified any psychological problems (I find that using CPAP pre- and post-surgery only makes me feel more fatigued, as I seem to be very sensitive to airflow).
If we follow the majority of doctors' opinions, does this not lead to a diagnosis of an unexplained condition? I am considering trying a soft palate surgery again, but the doctors' assessments leave me in a dilemma, and I am unsure of what to do.
Niming, 40~49 year old female. Ask Date: 2016/01/22
Dr. Gao Chunde reply Neurology
Based on your situation, it appears to be a relatively unique and rare case.
Therefore, I recommend seeking a specialist in sleep medicine at a medical center for a more thorough analysis.
Reply Date: 2016/01/22
More Info
Navigating post-surgery sleep issues, particularly in the context of Obstructive Sleep Apnea (OSA) and Upper Airway Resistance Syndrome (UARS), can be quite complex and frustrating. Your symptoms of fatigue, excessive daytime sleepiness, cognitive difficulties, and memory issues are indeed typical of OSA, and it’s understandable that you are seeking clarity and solutions after your surgery.
Firstly, it’s important to recognize that while your Apnea-Hypopnea Index (AHI) has improved to a mild level post-surgery, the persistence of a high Respiratory Disturbance Index (RDI) and arousal index suggests that there are still significant disturbances in your sleep. UARS is characterized by increased respiratory effort and arousals due to partial airway obstruction, which can lead to similar symptoms as OSA, including brain fog and fatigue. The fact that your RDI remains elevated indicates that you may still be experiencing these disturbances, even if the AHI has improved.
The absence of Slow Wave Sleep (SWS) is particularly concerning, as this stage of sleep is crucial for restorative processes in the body and mind. The lack of SWS can contribute to feelings of unrefreshing sleep and persistent fatigue, even if you are spending enough time in bed. It’s also worth noting that the subjective experience of sleep quality can differ significantly from objective measures, which can complicate the diagnosis and treatment.
Given that you have consulted multiple specialists, including ENT, neurology, and psychiatry, and have not found a satisfactory resolution, it may be beneficial to seek out a sleep medicine specialist who can conduct a comprehensive evaluation of your sleep patterns. This may include a repeat polysomnography (PSG) or a home sleep apnea test to assess your current sleep architecture and disturbances more accurately.
Your mention of the soft palate area still causing obstruction is significant. If you are considering a second surgical intervention, such as soft palate surgery, it is crucial to have a thorough discussion with your surgeon about the potential benefits and risks, as well as the likelihood of improvement in your symptoms. Surgical outcomes can vary widely among individuals, and a multidisciplinary approach involving sleep specialists, ENT surgeons, and possibly even oral and maxillofacial surgeons may provide a more holistic view of your options.
Additionally, it’s important to consider non-surgical interventions that may help alleviate your symptoms. Continuous Positive Airway Pressure (CPAP) therapy is often the first line of treatment for OSA, but if you find it exacerbates your fatigue, discussing alternative therapies with your sleep specialist could be beneficial. Options may include positional therapy, oral appliances, or even lifestyle modifications that can improve your overall sleep quality.
Lastly, addressing any underlying conditions that may contribute to your symptoms is essential. For instance, conditions such as anxiety or depression can exacerbate feelings of fatigue and cognitive dysfunction, even in the absence of sleep disorders. A comprehensive approach that considers both your physical and mental health will be key to finding a resolution.
In summary, while your post-surgery improvements in AHI are encouraging, the ongoing symptoms and high RDI indicate that further evaluation and possibly additional interventions are necessary. Engaging with a sleep medicine specialist who can provide a tailored approach to your unique situation will be crucial in navigating these complex issues.
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