Unexplained Decrease in Platelet Count: Understanding Rare Conditions
Thrombocytopenia of unknown etiology? Hello, Dr. Lin. Recently, during a health check-up, I found that my platelet count has been continuously decreasing. I went to the hematology-oncology department for tests, but they couldn't identify the cause and only advised me to cont...
Dr. Lin Qingyuan reply Rare Disease
Hello: May I ask your age? The reasons may vary depending on your age. Also, could you please let me know what tests you have undergone and their results? Would it be possible for you to come in for a follow-up appointment? Thank you! Dr. Lin Ching-Yuan[Read More] Unexplained Decrease in Platelet Count: Understanding Rare Conditions
Understanding Hair Loss During Dialysis: Causes and Solutions
Hemodialysis Hello Professor Lin, I would like to ask you about something. Recently, for some unknown reason, I have been experiencing significant hair loss, especially during the 4-hour dialysis sessions when I lose a particularly large amount of hair. After washing the bed line...
Dr. Lin Qingyuan reply Rare Disease
Hello: I need to see the patient and perform some examinations to determine the diagnosis.[Read More] Understanding Hair Loss During Dialysis: Causes and Solutions
Can Gout Patients Eat Ginseng? Dietary Tips for Managing Gout
Gout Diet Hello Dr. Lin: May I ask if gout patients can consume ginseng? Is it safe for them to drink yogurt? Does eating cherries help in excreting uric acid? I often feel confused about dietary aspects. Thank you for taking the time to respond amidst your busy schedule.
Dr. Lin Qingyuan reply Rare Disease
Hello: I am providing you with a reference table; you should avoid the third category. Theoretically, yogurt can be consumed, cherries are acceptable, and ginseng is also permissible. However, I have not quantified these. Director Lin Ching-Yuan, Changhua Christian Hospital Child...[Read More] Can Gout Patients Eat Ginseng? Dietary Tips for Managing Gout
Constant Yawning: Understanding a Rare Condition and Its Causes
Yawning all day long? I have a friend who yawns all the time, even after getting plenty of sleep. I'm not sure what's going on. What should I do about it?
Dr. Lin Qingyuan reply Rare Disease
Hello: I apologize! Based on your description, I cannot provide a definitive answer on how to improve your friend's symptoms. It may be necessary to see the individual in order to make a diagnosis.[Read More] Constant Yawning: Understanding a Rare Condition and Its Causes
Understanding Ultrasound Findings in Rare Kidney Diseases: A Guide
I would like to understand the content related to ultrasound? Hello Professor Lin, First of all, thank you for your response. I would like to understand the ultrasound findings better. Here are the ultrasound details: 1. Increased cortical echogenicity and swelling of the rena...
Dr. Lin Qingyuan reply Rare Disease
The first point may be acute rejection. The second point is merely to inform about the size of the kidneys. The third point is rather unusual; regarding the presence of ascites, I would personally rule out activation of cytomegalovirus (CMV) before confirming whether it is acute ...[Read More] Understanding Ultrasound Findings in Rare Kidney Diseases: A Guide
Understanding Acute Rejection: Risks, Kidney Size, and Ascites Explained
Acute rejection Hello Professor Lin, thank you for your response. After medical consultation, I was informed that if acute rejection occurs, it must be controlled; otherwise, the new kidney must be removed immediately to prevent harm to the patient, such as damage to the heart, l...
Dr. Lin Qingyuan reply Rare Disease
(1) If acute rejection occurs, it can theoretically be managed, but a biopsy is necessary to determine the type and severity of the rejection. (2) Since the implanted kidney will not grow larger, the only way to assess for atrophy is to compare it to its own previous size. (3) It...[Read More] Understanding Acute Rejection: Risks, Kidney Size, and Ascites Explained
Understanding Sepsis: Causes, Recovery Chances, and Prevention Tips
Sepsis Hello Professor Lin, I would like to ask you what causes sepsis. If a doctor tells the family that the patient has developed sepsis, is there still hope for recovery? How can a kidney transplant recipient prevent sepsis? If the patient has not urinated for a while after th...
Dr. Lin Qingyuan reply Rare Disease
Sepsis is a condition where bacteria enter the bloodstream and spread throughout the body. It can be treated effectively with the appropriate antibiotics. Prevention primarily focuses on hygiene and environmental factors, followed by the management of the dosage of immunosuppress...[Read More] Understanding Sepsis: Causes, Recovery Chances, and Prevention Tips
Kidney Transplant Concerns for Hepatitis B Patients: What You Need to Know
Kidney transplantation Hello Professor Lin, I would like to ask you a question. Recently, I read online that individuals with hepatitis B should avoid kidney transplantation. Is this true? Why is it not advisable? What side effects could occur if they undergo the procedure? Would...
Dr. Lin Qingyuan reply Rare Disease
In patients with abnormal liver function, the use of immunosuppressive drugs after liver transplantation may activate the hepatitis B virus, potentially leading to active hepatitis. More concerning is the risk of fulminant hepatitis, which can be fatal. Therefore, while the surge...[Read More] Kidney Transplant Concerns for Hepatitis B Patients: What You Need to Know
Understanding Behçet's Syndrome: Symptoms, Prevention, and Genetic Risks
What is Bessy Syndrome? Dear Professor Lin, My younger brother is 30 years old and has recently been diagnosed with Behçet's Syndrome by a physician. The doctor informed us that it is an autoimmune disease. Two years ago, he experienced iritis, and recently he has had sever...
Dr. Lin Qingyuan reply Rare Disease
Hello: In response to your questions, here are my replies: (1) Please come for an outpatient visit to determine how many organs are affected and the disease activity. (2) The presence of blood in the semen can be treated. (3) It may be hereditary. I need to know your family histo...[Read More] Understanding Behçet's Syndrome: Symptoms, Prevention, and Genetic Risks
Understanding Hepatitis: Symptoms, Treatment, and Recovery Insights
Hepatitis I have a female friend who previously had a fatty liver and after treatment, it improved. However, she is now experiencing fatigue and excessive sleepiness. Is this phenomenon related to liver disease? What is acute hepatitis, and is it treatable? Can it be cured? Thank...
Dr. Lin Qingyuan reply Rare Disease
Hello: I need to see the patient. Please bring the patient to my outpatient clinic. I am in Room 201 at Chang Gung Children's Hospital. My clinic hours are Monday and Wednesday evening (5:00 PM to 9:00 PM) and Friday afternoon (starting at 2:00 PM). Professor Lin Ching-Yuan.[Read More] Understanding Hepatitis: Symptoms, Treatment, and Recovery Insights
Understanding Vasculitis: Insights on Rare Disease Management and Resources
Vasculitis Hello, Doctor. I would like to inquire about the condition of vasculitis. My sister-in-law is 34 years old and was hospitalized last month due to pneumonia. Later tests revealed that she also has glomerulonephritis. Based on her blood tests, her ANCA levels are elevate...
Dr. Lin Qingyuan reply Rare Disease
Since you are already 34 years old, I recommend seeing an adult nephrologist. May I ask where your sister-in-law lives for a proper referral?[Read More] Understanding Vasculitis: Insights on Rare Disease Management and Resources
Understanding Glycogen Storage Disease Type VII: Symptoms, Treatment, and Prognosis
Glycogen storage disease type VII Glycogen storage disease type VII (GSD VII), also known as Tarui disease, can present with symptoms such as muscle weakness, exercise intolerance, and myoglobinuria, particularly during infancy. There is currently no cure for this condition, and ...
Dr. Lin Qingyuan reply Rare Disease
Glycogen storage disease type VII, also known as Tarui's disease, is indeed a very rare condition. According to data from Europe and the United States, it predominantly occurs in individuals of Jewish descent, with an incidence of approximately 2.3 cases per 100,000 live bir...[Read More] Understanding Glycogen Storage Disease Type VII: Symptoms, Treatment, and Prognosis
Is Neuroblastoma a Rare Disease? Applying for Disability Certification
Is neuroblastoma considered a rare disease? Can I apply for a disability certificate?
Dr. Lin Qingyuan reply Rare Disease
I apologize! It's not my area of expertise. The certification for disabilities must be obtained from Director Zheng Huan at the Chang Gung Children's Development Center. This is a response from Lin Qingyuan.[Read More] Is Neuroblastoma a Rare Disease? Applying for Disability Certification
Understanding Perticnel Abscess: A Rare Medical Condition Explained
Peritonsillar abscess Hello! It seems there might be a slight misspelling in the term you provided. The correct term is likely "peritonsillar abscess," which refers to a collection of pus that forms near the tonsils, typically as a complication of tonsillitis. It can ca...
Dr. Lin Qingyuan reply Rare Disease
Xiao Ting: I believe it's a typo! Could you please tell me the patient's symptoms? For example, where is the abscess located? Then I can respond! Professor Lin Qingyuan replied.[Read More] Understanding Perticnel Abscess: A Rare Medical Condition Explained
Dietary Considerations for Patients with Glycogen Storage Disease
Glycogen storage disease (GSD) refers to a group of inherited metabolic disorders characterized by the abnormal accumulation of glycogen in various tissues, primarily the liver and muscles. These conditions arise from deficiencies in specific enzymes involved in glyc Hello Dr. Li...
Dr. Lin Qingyuan reply Rare Disease
The diet should be "high in protein and low in carbohydrates," with protein making up 25-30% of total caloric intake (compared to the normal 12%). Carbohydrates should be reduced to 44% (whereas they typically account for 55-60%). It is important to exercise regularly t...[Read More] Dietary Considerations for Patients with Glycogen Storage Disease