Finding Balance After Epilepsy: Seeking the Right Medical Guidance - Neurology

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How to find a sense of balance?


Hello doctors: I have a history of epilepsy since childhood, which caused me to have seizures and lose my balance.
At times, I would fall into a deep unconscious state.
However, after undergoing surgery at Taipei Veterans General Hospital in June 1995, I completely stopped taking antiepileptic medication in September 2000 and have not had any seizures since.
Nevertheless, I still experience some fear due to past trauma, which makes me hesitant to ride a bicycle.
Doctors, how can I regain my sense of balance? Which specialist should I consult? Note: I had brain surgery in June 1995 and spinal surgery in September 1995 due to scoliosis caused by previous seizures, and I wore a brace for a year and a half before removing it.
Thank you!

Mr. Lai, 20~29 year old female. Ask Date: 2004/04/22

Dr. Ye Boshou reply Neurology


Congratulations on your full recovery.
Building mental resilience takes time, and achieving balance can be practiced gradually.
Seeking psychological counseling from a psychiatrist may also be beneficial.

Reply Date: 2004/04/22

More Info


Finding balance after experiencing epilepsy, especially following surgical intervention, can be a complex journey that involves both physical and psychological aspects. Your history of epilepsy, including significant surgeries and the cessation of medication, suggests that you have made remarkable progress. However, the lingering fear and anxiety about potential seizures can understandably affect your confidence and willingness to engage in activities like riding a bicycle.

To address your concerns about finding balance and overcoming psychological barriers, it is essential to consider a multi-faceted approach. Here are some recommendations:
1. Consult a Neurologist: Since you have a history of epilepsy, it is crucial to maintain a relationship with a neurologist who specializes in epilepsy. They can provide ongoing assessments of your neurological health and help monitor any potential changes or concerns that may arise. Regular follow-ups can also reassure you about your condition and help you manage any fears related to seizure recurrence.

2. Psychological Support: Given the psychological impact of your past experiences with epilepsy, seeking help from a mental health professional, such as a psychologist or psychiatrist, can be beneficial. Cognitive-behavioral therapy (CBT) is particularly effective for addressing anxiety and fear. A therapist can help you develop coping strategies to manage your fears and gradually expose you to situations that trigger anxiety, such as riding a bicycle.

3. Physical Rehabilitation: Engaging in physical therapy or rehabilitation can help improve your overall balance and coordination, which may have been affected by your past seizures. A physical therapist can design a personalized exercise program that focuses on strength, balance, and coordination, helping you regain confidence in your physical abilities.

4. Gradual Exposure: Start with small, manageable steps to rebuild your confidence in activities that you enjoy. For instance, you might begin by riding a stationary bike or practicing balance exercises at home before transitioning to riding a bicycle outdoors. Gradual exposure can help desensitize you to the fear associated with these activities.

5. Support Groups: Connecting with others who have experienced similar challenges can provide emotional support and practical advice. Look for local or online support groups for individuals with epilepsy or those who have undergone similar surgeries. Sharing experiences and coping strategies can be empowering.

6. Lifestyle Modifications: Maintaining a healthy lifestyle can significantly impact your overall well-being. Ensure you get adequate sleep, eat a balanced diet, and engage in regular physical activity. Mindfulness practices, such as yoga or meditation, can also help reduce anxiety and improve your mental health.

7. Education and Awareness: Educating yourself about epilepsy and its management can empower you to take control of your health. Understanding your condition, recognizing triggers, and knowing how to respond in case of a seizure can alleviate some of the fear associated with potential recurrence.

In summary, finding balance after epilepsy involves a combination of medical guidance, psychological support, physical rehabilitation, and lifestyle adjustments. By taking proactive steps and seeking the right medical professionals, you can work towards overcoming your fears and regaining confidence in your abilities. Remember, it’s a gradual process, and it’s okay to seek help along the way. Your journey is unique, and with the right support, you can find your balance and enjoy activities that bring you joy and fulfillment.

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